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kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/14/2008 10:36 AM (GMT -6)   
Well, I hope it is not really square one.  BUT - after having to stop Rowasa and Colazal almost 3 week ago because of side effects - I am back to cramping, bleeding, etc.
I saw the NP on Friday - she said I was doing so well but, of course, have to have some kind of medication to "finish" getting into remission and stay there.  She suggested I use the Rowasa every other night and she woudl talk to gastro doc and call me Monday.  Well, I used about 1/3 of enema Friday night and have been sick since.  Had to take Imodium thismorning to stop the cramping and D.  Also, blood is back - YUCK!!  You know, I am too old to go through all this.  Only kidding!  I am thankful every day that I did not get this as young as most of you.
So, see what she says (doctors orders) on Monday.  She has only mentioned the immunosuppressants as next but I don't want that because I need to have a knee replacment.  Oh, life is so much fun sometimes!
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every other night for now.
 
 
 
 
 
 


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 9/14/2008 12:14 PM (GMT -6)   
Sorry to hear the news, Elaine -- hang in there!
Emory
40 years old and female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
UNTIL 9/4/08: Canasa 1000 mg suppositories nightly, 25 mg hydrocortisone suppositories in a.m.
CURRENTLY: Proctofoam at bedtime
Effexor 37.5, Clonazepam .5 mg (or more) and Trazodone 50 mg for sleep
2.5 mg methimazole for thyroid
Recently started probiotic (Garden of Life Primal Defense Ultra) and acupuncture
Osteopenia (and I haven't even taken steroids!)


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 9/14/2008 3:22 PM (GMT -6)   
What kind of side efeects were you getting?

Feel better soon.
Moderate Pancolitis
Dx'd 05/2007
4 Lialda per day
Trying Canasa 2 per day a.m./p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/14/2008 3:25 PM (GMT -6)   
I hate this too!
Side effects are more nausea, sweating (with some chills at night), dizzy (woozy feeling) - something like a flu!
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every other night for now.
 
 
 
 
 
 

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