home from the hospital after 19 days

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Socalsd
Regular Member


Date Joined Jul 2008
Total Posts : 100
   Posted 9/14/2008 11:51 AM (GMT -6)   
Just checking in I was in the hospital for 19 days I got home Monday I am still weak and recouping. It was a good thing I made the choice to go in. Luckily my doc had me admitted without going to the er which was a blessing. I had two blood transfusions. It seems my colon was so inflamed they were considering removal but they have been pumping me with steriods an IV kind in there now just pred. Also found I had C diff so I have been on vancomicin and almost throught with that. I started a first remicaid and I think I have my next one tuesday. At this point I just want it all to end I am even open to surgery. How long does remicaide take to work. I still have diariah but it seems my bleeding is gone.
Prednisone 30 mg a day (can't wait to see goodbye to this)
Asacol 400mg 4 pills 3 times a day
Mesalamine enima
VSL #3DS probiotic


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 9/14/2008 1:38 PM (GMT -6)   
Maybe its a good thing they found the Cdiff as hopefully it's been contributing to your symptoms and once treated you'll feel better. I have heard it takes 6-12 weeks for 6mps to work but I'm not sure about Remi. Hope you are feeling better very soon and it sounds like you're on the right path.
Moderate Pancolitis
Dx'd 05/2007
4 Lialda per day
Trying Canasa 2 per day a.m./p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 9/14/2008 2:29 PM (GMT -6)   
Wow...seems your past symptoms were pointing in the right direction...it's a good thing you decided to go to the hospital.

I hope your road to recovery is smooth and that your doc keeps up with the stool tests to make sure the c-diff has gone.

Keep us posted as to how you're doing....

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


vega19
Regular Member


Date Joined Sep 2008
Total Posts : 91
   Posted 9/15/2008 12:38 PM (GMT -6)   

Your situation is close to what mine was like except I was only in the hospital for 16 days and the C.diff tests were negative. I started Remicade in Feb and it worked pretty quickly, within a few weeks. I'm noticing the beginnings of a flare right now though so I don't know if it stopped working. I think maybe I wasn't ready to go to 8 weeks between infusions though. My doc bumped up my next infusion and is going to keep me on 6 weeks between infusions for a while so hopefully things clear up.

V


31 year old female diagnosed with UC (entire colon) Feb 2008
(4) 400mg Asacol 3x a day
Remicade 10mg/kg every 8 weeks 6 weeks
Rowasa enemas nightly
Omega 3 supp, calcium supp, probiotics
metamucil wafers

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