For those on 6mps or Remicaide...?

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bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 9/14/2008 10:15 PM (GMT -6)   
How is it going for you since beginning treatment and how long have you been on it?
 
Thanks
Moderate Pancolitis
Dx'd 05/2007
4 Lialda per day
Trying Canasa 2 per day a.m./p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 9/14/2008 11:18 PM (GMT -6)   
I've been on Remicade for 2 1/2 years. Before that, I was on Imuran for several years. (Imuran breaks down to 6-MP in your body.)
 
I was unable to tell that Imuran did anything for me. Remicade got me into remission within a month and has kept me there.


Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

Post Edited (Judilyn) : 9/15/2008 7:16:14 AM (GMT-6)


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/15/2008 6:05 AM (GMT -6)   
I am not on Remicade nor will I ever be - this is one med in which I draw the line at (my personal choice). But I have been on 6mp for 2 years. It took a while for it to start working but once it did, I started feeling better. I have found out recently though that I can't metabolize it correctly and I am just under the liver toxicity level so I may have to reduce my dosage or stop altogether. But for the most part, this med has been a lifesaver. I still flare just not as severe.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 9/15/2008 8:37 AM (GMT -6)   
I've been on Remi for several years now and have held a remission ever since I started it.

Carol

Remicade - will have my 24th infusion on October 2
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 9/15/2008 9:06 AM (GMT -6)   
My first Remicade infusion was November 07 - I reached remission March- and began a flare in June--- Remicade appears to have stopped working. Very frustrating....
Jackie, 43

Pancolitis, DX Jan. 07

Lexapro, Lialda, Sythroid, Protonix, Rowasa suspension

Remicade 9th infusion- Sept. 9th


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 9/15/2008 10:27 AM (GMT -6)   
I will have my third infusion in two weeks and I feel wonderful. I am down to 10 mg of pred and I think this is working:) keeping my fingers crossed! There was a guy in the infusion room that got cancer from 6mp and had to have his large intesines removed b/c of the cancer. He has crohns and he still has to take remicade. I felt bad for him and it kindof brought the risks of these drugs to a new light.
Jessica 27/F 20mg pred
Remicade
Lialda 2.4GM
Citalopram 20 MG
omeprazole(for acid reflex)
Tried (Entorcort EC 9ml/day and Prednisone, Asacol ,colazal, Culturelle, dicyclomine)


ErinD
Regular Member


Date Joined Jul 2008
Total Posts : 94
   Posted 9/15/2008 11:04 AM (GMT -6)   
I just recently started 6-MP to help me get off of Prednisone as my UC had become Steroid Dependant. I was nervous about side effects but so far i have not had any. I have not noticed any differences yet but i think it is too soon anyways.
Diagnosed with UC 3/2008
10mg Prednisone
75mg 6-MP
Entocort 9mg daily
800mg Asacol 3X daily


piper_chris
Regular Member


Date Joined Jun 2008
Total Posts : 73
   Posted 9/15/2008 12:07 PM (GMT -6)   
I started 6mp/mercaptopurine about 3.5 months ago.  I'm not in a bad flare but I'm not in full remission either.  I know initially it was high doses of prednisone that got me mostly back under control.  I don't know if it was the 6mp that has been keeping me mostly controlled or if it was the prednisone, hard to say since I just got off the prednisone.  I was taking 100mg of 6mp but then my liver tests in my bloodwork shot up into abnormal range so now I take 75mg of 6mp.  Crossing my fingers that my next bloodwork (a week from tomorrow) will be more normal.  I think my lack of appetite may be due to the 6mp (which I take in the morning).  I am losing a lot of my hair and am very tired, but unsure whether those things are due to 6mp, the ulcerative colitis itself, lack of some nutrient, or possible low functioning liver or low functioning thyroid.   Now that I'm off the prednisone I will be doing some nutritional blood testing and some thyroid testing soon, but I think I want to wait until liver seems more stable first. 
- female 41, diagnosed ulcerative colitis Feb 2005
- just got off prednisone after a 5month taper from 80mg down to 0mg!!
- currently 6-MP/mercaptopurine/purinethol 75 mg, asacol/mesalamine 4800mg (4 pills x 3 times day), Canasa 1000mg nightly
- VSL#3, Benefiber, multivitamin, chewable calcium, fish oil, biotin, sometimes iron pills


vega19
Regular Member


Date Joined Sep 2008
Total Posts : 91
   Posted 9/15/2008 12:18 PM (GMT -6)   

I have been on Remicade since February08 and went into remission within a few weeks. UC symtoms started showing up again a few weeks ago and I haven't been able to get them under control. Dr moved my next infusion up to tomorrow from the 23rd and put me back on the Rowasa enemas. If things don't clear up by Wed or Thurs it's back on Prednisone. mad

V


31 year old female diagnosed with UC (entire colon) Feb 2008
(4) 400mg Asacol 3x a day
Remicade 10mg/kg every 8 weeks 6 weeks
Rowasa enemas nightly
Omega 3 supp, calcium supp, probiotics
metamucil wafers


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/16/2008 5:56 PM (GMT -6)   
I tried 6MP but it landed me in the hospital b/c of side effects.

I'm going in for my 4th Remicade infusion tomorrow. First two infusions only helped urgency. The third infusion drastically helped for two weeks, stopped working for two weeks, and then helped for a week (and then I had cscope and everything got screwed up again). This past week has been a normal flare-up, so my body is telling me that I need Remi now. However, my cscope showed that all but a few centimeters of my colon is healed (which is why I canceled surgery).
Female, Age 19
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


Bigphule
Regular Member


Date Joined Dec 2007
Total Posts : 137
   Posted 9/16/2008 10:32 PM (GMT -6)   

For me, I've been on 6mp for er 3 or 4 months now.  I suffered minor side effects, just a little nausia, but I solved that by taking the 6mp at night.

I'm down to 5mg of Pred as of last tuesday and feeling awesome. 


Diagnosed UC 12/2007
Updated 8/14/08 
 
Prednisone 15mg x 1/day taken in the morning
(6mp) Mercaptopurine 100mg x1/day taken at night
Digestive Advantage Chrones and Colitis Formula x2/day taken at night
 

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