So I'm new to UC and of course new to this forum.
My story in a nutshell:
After feeling horrible for about 4 weeks, not being able to eat, vomitting, using the bathroom 15+ times a day, one visit to the ER and one visit to my PCP, I finally ended up admitted to the hospital for 5 days. I had a colonoscopy done (which they didn't sedate me enough for and I remember), was told that 2/3 of my colon was severely inflammed and that I have UC. I was discharged on 8/31/08 with a prescription of 60mg Prednisone for 4 weeks, and 400mg Asacal 2pills 3xday.
The steroids helped me feel better fairly quickly, but it seems that I'm on a very high does for quite some time. The GI doctor was also very confident that the Asacal would not work with me. He thinks I will probably have to end up on Imuran.
So, I guess at this point, I'm just dealing with all the uncertainty around this. I was discharged from the hospital on 8/31, so it's only been a few weeks. I just don't know what to think. I worry that once they start tapering the prednisone my symptoms will return, I worry that the Asacal won't work and I'll have to end up on Imuran. Imuran would not be good for me, my family already has a history of low white blood cell counts. I still dont' really know what foods will or won't sit well with me. I'm sure as you all know, the information you find online, and from different doctors, and different people all have a different story about what you can and can't eat.
I guess that's about it. All the uncertainty around having a new illness is stressing me more than anything. AND I don't care much for the side effects of the Prednisone. I haven't had a good night's sleep in weeks.
Does my case sound like a severe one? I feel like based on the dosage of the steroids and that 2/3 of my colon was inflammed it is....but then again I don't really know what to think.
What are your thoughts? Or suggestions on how to deal when first diagnosed?
Thank you for your input!