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AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 9/15/2008 8:26 PM (GMT -6)   
So over the past few years my husband and I have been through a lot between my getting really sick with my UC, trying to get pregnant and rounds and rounds of fertility treatments, my pregnancy loss in 2006, and the loss of our baby via surrogate at 19w3d about six weeks ago. Last year when I got really stressed over a failed cycle I got Shingles and came out of remission shortly thereafter. Six weeks ago we lost the baby; the following week I had a (scheduled) tonsillectomy; got a case of Bronchitis that the docs could not heal even after 8 days in the hospital then two more weeks at home on similar treatment. Long story short (sort of), I get hives when I am really stressed and I've had them now since Friday, even waking up with them during the night. They are everywhere - on my scalp down to my legs. Today my hands swelled up and hurt like crazy. I am taking two Benadryl every two hours and I am now taking Prednisone AGAIN which I just got massive doses of in the hospital (both per my doc's instructions.) Nothing phases them - I am scratching until there is blood. I know, gross. I've tried Aveeno baths, etc. I do have Xanax I can take but not sure I can take that with Benadryl. Please share your stress relievers with me - how can I shut down my brain?. I am considering yoga, therapy, accupuncture..and anything else that might help. I can't exercise much right now b/c they are trying to diagnose a secondary breathing issue (even longer story.) Thanks for reading my long rant and in advance for your suggestions.  cry
34 year old female, Diagnosed Ulcerative Colitis 5 years ago
Current Meds: Remicade every 6 weeks, Prevacid, Sustenex, Lialda, Lexapro (anxiety), Synthroid, Iron, vitamins, Fish Oil
 


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 9/15/2008 8:52 PM (GMT -6)   
AngelTT,

I'm so sorry to hear of your misery. You have been through so much, not just stress, but grief -- and now to have such painful hives on top of it all! Wish I had some novel suggestions for you. Definitely yoga can help. See if you can find a gentle yoga or restorative yoga class to start, especially restorative. I have had success with acupuncture for insomnia in the past, and the process itself can be very relaxing. And if you feel like you need a Xanax, call your pharmacist and ask if you can take it with the amount of Benadryl you're taking. Rent some light comedies? Talk therapy could be very helpful. And you know we're all here for you when you need to rant; I think that's a form of talk therapy in itself.

Be gentle with yourself, and keep us posted --
emory
40 years old and female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
UNTIL 9/4/08: Canasa 1000 mg suppositories nightly, 25 mg hydrocortisone suppositories in a.m.
CURRENTLY: Proctofoam at bedtime
Effexor 37.5, Clonazepam .5 mg (or more) and Trazodone 50 mg for sleep
2.5 mg methimazole for thyroid
Recently started probiotic (Garden of Life Primal Defense Ultra) and acupuncture
Osteopenia (and I haven't even taken steroids!)


Luna0
Regular Member


Date Joined Jul 2008
Total Posts : 83
   Posted 9/15/2008 9:07 PM (GMT -6)   
WoW sounds like you are down on your luck. Do you like a good book? A good book might make things better? Or maybe a walk around the block. ummm let me see what else can you do to releve that stress. I like the whole laughing at how life sucks kind of thing. *if you can see hurmor in anything then life tends to get better*

No really I have been known to laugh when in the ICU and you know what it made me feel better.I even started laughing because I was laughing in the ICU...yes I am a strange one.

Laughter best meds ever! =) Hope your luck gets better.
Tawn 
18 years old, College Student ~WAHOO GO CATS=)
 
Diagnosed in 2004
Currently on:
Remicade
Imuran 3pills/day
And many other over the counter meds.


AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 9/15/2008 9:12 PM (GMT -6)   
Thanks guys. Let me say one thing - on the outside everyone would tell you I'm the strongest person in the world. I'm now wallowing in any of this. The problem is how I internalize it without realizing that I am doing so. I'll break out in hives before I realize that I was worrying about something. I feel like most things happen for a reason and emotionally I feel I've done well through all of this but my body tells me something different.

Hope that makes sense. I don't mean my threat to be a "feel sorry for me" thread. I am blessed for many reasons. I just have never really learned how to shut down my brain and truly relax and I know there are a lot of people out there who have learned to do this.
34 year old female, Diagnosed Ulcerative Colitis 5 years ago
Current Meds: Remicade every 6 weeks, Prevacid, Lialda, Lexapro (anxiety), Synthroid, Symbalta, Sustenex, Iron, vitamins, Fish Oil
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/15/2008 9:40 PM (GMT -6)   
So sorry to hear you are going through so much.
Have you tried massages, or accupuncture which is also very relaxing, that's what I remember most about it, and it might even give you some symptom relief. Treat yourself, you deserve it!
Peace.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering OFF prednisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
Sept: Mild case of thrush in throat, prescribed antifungal mouthwash.


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 9/15/2008 9:49 PM (GMT -6)   
Sweetheart, you ARE the strongest person in the world. And you will get through this. Maybe your body is just telling you that you have to take a rest. You didn't at all sound like "feel sorry for me". But I am sorry you're itching and hurting so much! Hang in there and take care of yourself -- I like Peety's idea of massage, though that might have to wait until the hives subside...
40 years old and female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
UNTIL 9/4/08: Canasa 1000 mg suppositories nightly, 25 mg hydrocortisone suppositories in a.m.
CURRENTLY: Proctofoam at bedtime
Effexor 37.5, Clonazepam .5 mg (or more) and Trazodone 50 mg for sleep
2.5 mg methimazole for thyroid
Recently started probiotic (Garden of Life Primal Defense Ultra) and acupuncture
Osteopenia (and I haven't even taken steroids!)


Luna0
Regular Member


Date Joined Jul 2008
Total Posts : 83
   Posted 9/15/2008 10:04 PM (GMT -6)   
I know what you mean. My emotions get me into a flair reall quick. I don't even know how or why i am stressed. But I like talking to a friend about my problems but sometimes they spend too much time trying to understand that they drive me crazy. One day i will find someone who won't laugh or bring up the fact that they really don't know what you are talking about. Just someone who listens to me. I am still finding this person. I really am re-evaluating some people in my life for there worth when it comes to what i am telling them about my illness. It takes skill to really look at the emotional aspect of a illness that they can't even see or touch. That is why i hate UC because you look fine but turns out inside you are not. So the old well you look fine thing really dosn't fit with us. If you know what i mean.By the way do you have thyroid problems *I ask because I noticed your taking synthroid. My mom takes that. I beleve for thyroid problems.
Tawn 
18 years old, College Student ~WAHOO GO CATS=)
 
Diagnosed in 2004
Currently on:
Remicade
Imuran 3pills/day
And many other over the counter meds.


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted Yesterday 7:07 AM (GMT -6)   
The best stress reliever is walking in the fresh air, without doubt Nothing works as well.
                                     keep the faith 

         asacol/proctifoam/
Zoton (lansoprazole)/pred/colofac


       
                   http://www.myspace.com/martylogue


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted Yesterday 11:50 AM (GMT -6)   
Hi Angel,
<<hug>>
No wonder you're stressed! For me, my stress comes from thinking about the past and or future and worrying about what will happen. The Dalai Lama says your thoughts are like a bunch of monkeys running around biting your butt.

If I think only about what's currently happening (not what's happened in the past or what I think will happen in the future) and noticing pain, etc. but not judging it as good or bad, then a lot of my stress goes away. There's a program called Mindfulness-Based Stress Reduction (MBSR). You can probably find out info about it online. That's helped me accept my illness and a lot of other things.

I hope that you can find some way to relax a little. Take care!
Tressa 35 (F) in WNY
unknown dx (UC or Crohn's), skip lesions & stomach ulcers
Canasa nightly, Asacol 12/day, prilosec twice/day for ulcers in antrum


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted Yesterday 11:52 AM (GMT -6)   
Oh, MBSR will help you become more aware of your body cues, too. So maybe you'll notice your body reacting and do something to relax before you get hives!
Tressa 35 (F) in WNY
unknown dx (UC or Crohn's), skip lesions & stomach ulcers
Canasa nightly, Asacol 12/day, prilosec twice/day for ulcers in antrum

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