what is under control?

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lil-momma
Regular Member


Date Joined Feb 2008
Total Posts : 132
   Posted 9/16/2008 10:31 PM (GMT -6)   
I usually post on the crohn's forum as I am deperate to help my daughter w/ her crohn's  but I have been reading posts on here as well.  I was diagnosed with colitis and chose to pretty much ignore it.  I have always felt that I can control it by my diet.  I guess, I don't really know what control would be defined as though.  I haven't ever even followed up with Dr's.  It is a normal day for me and just a part of my life to have multiple trips to the bathroom and really couldn't tell you the last time I didn't have the big D.  I know if I eat a danger food it will intesify greatly so I avoid them completely.  Stress is my worst enemy!  I don't know how to control that.  With stress comes more frequent bathroom visits, (generally explosive), bleeding and terrible tummy times.  So my questions are do any of you find stress a big enemy and if so do you have any suggestions?  And can you define under control?  Thanks in advance!  Much love & laughter to all of you!
Dx w/UC in 2001 - controlled by diet.
Mother to 15 yr old daughter dx w/CD 9/07-  she had surgery for abcesses 11/07.  She is taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, prednisone 10mg-x6, 6 mp 50mg-x3, Flagyl 250mg-x3


mh53mike
Regular Member


Date Joined Aug 2008
Total Posts : 149
   Posted 9/16/2008 10:53 PM (GMT -6)   
Its medically proven that stress puts so much strain on the body. Personally yes stress can make me crap my brains out. There are a few ways to control stress but first off you need to identify the cause or main cause. For me it was the actual UC and dealing with doctors not getting it under control. All that was big stress for me thus making it a never ending cycle. Luckly my UC has come under control the last few weeks, and control to me is 1-2 SOLID bowel movements a day with NO blood. So now my stress is way down.

To help with stress you can exercise daily, find someone to talk to either professionally or just family or even these forums. You can even write things out like a dairy ( this is good for medical history too). Medication is a possibility. Eat healthy, and get enough sleep. Melatonin is a good natural sleep aid i use. Do relaxing things like go to a Spa, get a massage.
26y old male medically disharged USAF veteran.Diagnosed with UC (lower proctitis) in 2004.
 
Current daily treatment:                               Probiotics & supplements:
1000mg sup asacol                                      50 Billion CFU's acidopholis daily
2400mg oral asacol                                      Digestive enzymes before each meal
35mg prednisone tapering                             5grams of glutamine
75mg azathioprine                                       folic acid & calcuim with V-D
20mg Nexum                                               Whey protien  
 
Diet:Little/no sugars, fats, carbs, caffine. Stay natural as possible.  
 
Results:1 Bowel movement in the morning no blood!


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 9/17/2008 12:21 AM (GMT -6)   
Lil-momma,

I'm not sure there is a definite answer for what is considered under control. If you were used to 20 restroom trips a day, and you were able to get it down to 5 or 6, you'd consider it progress, and maybe even say things were under control. It is good that you are trying to control things with diet and such, but it might be good for you, and a good example for your daughter, to follow up on some medical advice. Following a doctor's advice isn't a guarantee of feeling better either though. The doc might even have some good non-medication focussed stress relieving tips for you!

I once knew a woman who had colitis, but she ate what she wanted, drank like a fish, and in general didn't let it slow her down much...except for the few days every month where she spent her day sleeping, or the fairly regular accidents she had. She was not interested in following medical advice, and to her, things were under control. In my mind, she needed some serious medical assistance, but it is not my position to judge others. I did find it amusing that she felt bad for me because of all the meds I was taking for my colitis, but at the time, I was in remission, so I wasn't feeling all that bad. I'd rather take some pills and reduce suffering than avoid pills and be miserable.

It is all a matter of perspective. I hope things stay under control for you, or that you'll get to a point where you decide medical help isn't all that bad and you'll follow through with some doctor's advice. Life can be more livable, and the big D doesn't have to be a several-times-a-day experience. And most importantly, stress can be mitigated, and that will definitely help with your bm frequency.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06 - currently flaring
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Prednisone 30mg


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/17/2008 1:07 AM (GMT -6)   
Generally what goes for CD also goes for UC as far as eating healthy, taking meds that work for you (or even naturals that work for you), regular exercise, enough sleep, ect...IBD be it CD or UC is very individualistic whether you're related to another IBDer or not her pattern and behavior of disease may be very different than yours and what helps her may not help you, but as I mentioned above in general, healthy eating, exercise along with probiotics and fibre supplements daily typically aid both CD and UCers (with the exception on the fibre supplements and crohnies that have stricturing CD).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


lil-momma
Regular Member


Date Joined Feb 2008
Total Posts : 132
   Posted 9/17/2008 8:04 AM (GMT -6)   
Thanks for your advice - Healing well is my comfort without a doubt! I haven't followed up medically, initially because I guess I didn't really understand much about it and because of the medical costs and now, I certainly can't afford to. We are having a hard enough time with my daughters medical expenses. I know each person is different as well as their symptoms, etc. Some things that tear my stomach up for days my daughter can eat and vise versa. I know I am fortunate to obviously have a mild case compared to her crohn's and to many of you. I was just curious for your input on how "under control" I actually am. As always, you are all in my thoughts and prayers.
Dx w/UC in 2001 - controlled by diet.
Mother to 15 yr old daughter dx w/CD 9/07-  she had surgery for abcesses 11/07.  She is taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, prednisone 10mg-x6, 6 mp 50mg-x3, Flagyl 250mg-x3

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