Can I get some advice on this pain ?

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mom4321
Regular Member


Date Joined Aug 2008
Total Posts : 107
   Posted 9/17/2008 9:12 AM (GMT -6)   
I was up again last night for hours with extreme stomach pain in the upper abdomin along with a slight fever 99-100  this is the 4th time this week and it is so bad when it happens I cant hardly catch my breath I get nausous but did not throw up.  I dont know if its foods or what.  The whole belly area seems to get bloated or at least I feel like it does and so tender to the touch that I cant stand clothin touching it during on of these attacks. I didi take pepto bismal later which may have helped or maye the attach was subsiding I am not sure.
I have eaten some fish at 11:30 am then at 2:30 I had 2 chicken tenders which maybe were to greasy?  I also ate one cherry tomato about 5 by 7:30 I was flat out in bed in severe pain. DO you think it was food that much later in the day? 
I wondered about galbladder but it was in the center of the upper stomach mostly and I read that galbadder is on the left. Is this just another fun aspect of uc that I should just deal with or I am thinking of calling the nurse later to ask her what is normal. I didnt have these issues before so could it be the asocol?
 asocol 2- 3 times a day
dr, oharas probotics
astaxanthin  
vitamin d
calcium
magnesium
multi vitamin
biotin
colagon tablets
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 9/17/2008 9:41 AM (GMT -6)   
I would definitely call your doc's office and get some advice, especially since you've had it several times this week and it's been that severe. I'd say sometimes gas acts that way, but hey, your doc may be able to relieve some of that pain. Take care, and let us know how you are doing.

Carol

Remicade - will have my 24th infusion on October 2
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


ErinD
Regular Member


Date Joined Jul 2008
Total Posts : 94
   Posted 9/17/2008 10:01 AM (GMT -6)   
I would maybe stick to a very bland diet for awhile and see if you do any better than you have been. For me, i know i can't eat chicken tenders (or anything fried) as well as Tomatos but that is just me. It sounds like your distress is coming from your foods more than anything?
Diagnosed with UC 3/2008
10mg Prednisone
75mg 6-MP
Entocort 9mg daily
800mg Asacol 3X daily


mom4321
Regular Member


Date Joined Aug 2008
Total Posts : 107
   Posted 9/17/2008 10:09 AM (GMT -6)   
I called but they havent returned my call yet.
so you think its food? It was about 5 hours after I ate the chicken that it happened. Is that about right?
 asocol 2- 3 times a day
dr, oharas probotics
astaxanthin  
vitamin d
calcium
magnesium
multi vitamin
biotin
colagon tablets
 


potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 9/17/2008 12:34 PM (GMT -6)   

It could still be gall bladder, which is actually on your right side, not your left.  Pain from a diseased gall bladder can radiate to other spots, and the center of your upper abdomen could definitely be from your gall bladder.  The pain I felt from my gall bladder was mostly in my back.  The largest scar I have from when mine was removed is in the upper center of my stomach.   

Really, have your doc follow through on gall bladder tests.  Your gall bladder can get bad enough that it won't matter what you eat, you can still get attacks.  It's a miserable way to live, and I did it for way too long.   


Potato...  Female, 58, dx 11/07 mild left sided ulcerative colitis (50 cm)
asacol 3 3x a day, cortenema (generic) am & pm rowasa every other day  culturelle, benefiber wafers  generic acidophilus, metamucil wafers, activia, primadophilus reuteri
children's vitamin, Vitamin E 400 mg, omeprazole 2xday
oxazepam when needed, lomotil or ImodiumAD (not in the same day) when needed
Yoga, meditation, The Work by Byron Katie, exercise at least 5 days a week
 
 
 
 
 
 


ErinD
Regular Member


Date Joined Jul 2008
Total Posts : 94
   Posted 9/17/2008 1:17 PM (GMT -6)   
5 hours could be right, it depends on how fast your body digests things... i know when i had my pillcam done they determined it takes me about 2 hours to digest my meals, which is fast, but it does fall right into place when i eat something that will bother me...

Diagnosed with UC 3/2008
10mg Prednisone
75mg 6-MP
Entocort 9mg daily
800mg Asacol 3X daily


mom4321
Regular Member


Date Joined Aug 2008
Total Posts : 107
   Posted 9/17/2008 1:21 PM (GMT -6)   
I havent eaten since yesterday afternoon so I made a scrambled eggs and applesauce I thought they would be soft foods but I have no idea if those foods were a good choice or not I guess we shall see.................
what foods do you choose when you need to eat but are afraid to ? ( I cant do dairy)
 asocol 2- 3 times a day
dr, oharas probotics
astaxanthin  
vitamin d
calcium
magnesium
multi vitamin
biotin
colagon tablets
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 9/17/2008 1:42 PM (GMT -6)   
Peanut butter always worked well for me. Don't know if you have a Trader Joe's close by but they have a lot of different fruit sauces to choose from. I love the Mango or Peach! Also, if you can tolerate soy there are a lot of yogurts, puddings etc. that are really good. Also soy cheese for mac and cheese; I think Amy's has some good soy frozen soy mac and cheese. Just some thoughts.

Carol

Remicade - will have my 24th infusion on October 2
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 9/17/2008 2:34 PM (GMT -6)   
I'm impressed with your diet. When you ate fish and a tomatoe what would make you eat chicken tenders and blow the good diet down the drain? fried foods are bad. My favorite food used to be fried chicken by far and in the last 3.5 years with UC I have only had it like 5 times b/c it doesn't agree with me anymore. during summers I work in a concession stand and fry fries and corndogs all in the same oil and it's kind of gross to me especially when I go home and steam vegetables.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/17/2008 9:14 PM (GMT -6)   
It sounds like you might have something else going on.
Asacol is designed to not even dissolve until it reaches your colon, so I don't think it would upset your stomach. Maybe you are sensitive or even allergic to some food that you would think would be easy on your gut. Personally, I don't do well with tomatoes, but just a couple cherry tomatoes would not bother me! I think it's something else, or just that you are so inflamed that when eating (even a taste) stimulates your bowels, it causes that kind of distress.
So sorry you are suffering, that kind of bloat feels just awful!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering OFF prednisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
Sept: Mild case of thrush in throat, prescribed antifungal mouthwash.


mom4321
Regular Member


Date Joined Aug 2008
Total Posts : 107
   Posted 9/18/2008 12:02 PM (GMT -6)   

  I ate the chicken because I was hungry and I had eaten chicken strips before with out issue so how was I to know that day it would be a bad thing to eat.

The pain was up high so Im not sure the issue is my stomach but who knows I will see Dr this afternoon but of course I feel great today so it never acts up when you are seeign the Dr of course.


 asocol 2- 3 times a day
dr, oharas probotics
astaxanthin  
vitamin d
calcium
magnesium
multi vitamin
biotin
colagon tablets
 


mom4321
Regular Member


Date Joined Aug 2008
Total Posts : 107
   Posted 9/18/2008 12:04 PM (GMT -6)   
I wonder of I accidentally took my 2nd and 3rd dose of asocol to close together on these days? Would that do it ? taking 2 pills and 2 more a couple hours later?
 asocol 2- 3 times a day
dr, oharas probotics
astaxanthin  
vitamin d
calcium
magnesium
multi vitamin
biotin
colagon tablets
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/18/2008 3:35 PM (GMT -6)   
It's best if you space them evenly apart but my GI once told me that it doesn't matter when you take them, just make sure to take all the correct dose. When I was on 6 a day, I would take 3 in the morning and 3 at night, when I was on 9 a day, I took 4 in the morning and 5 at night. My GI didn't seem to have an issue with that.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


mom4321
Regular Member


Date Joined Aug 2008
Total Posts : 107
   Posted 9/18/2008 7:45 PM (GMT -6)   

  Ok ...I went to the gastro again today. He feels like the pain is something else not the Uc. He did a bunch of blood work and ordered an ultrasound for tommorow morning.  It kindof wierd all this would happen at the same time.  Do you think there a link with Uc and gallbadder ? or hes also looking at liver . 


 asocol 2- 3 times a day
dr, oharas probotics
astaxanthin  
vitamin d
calcium
magnesium
multi vitamin
biotin
colagon tablets
 


30UC
New Member


Date Joined Dec 2006
Total Posts : 3
   Posted 9/18/2008 8:40 PM (GMT -6)   
Hi - I don't post often (last time was about 2 years ago or so) but I've had very similar pain lately (horrible knotting, upper abdomen, writhing around crampy pain), and my GI also thinks it is my gallbladder or liver. While we work out what it is, my GI recommended that I eat "lightly" - so small meals and fairly bland. He recommended I start with soups after the pain ends and when I am ready to eat, so I've been having a lot of brown rice that I overcook/cook in extra water to make it softer, and lots of gentle broths with noodles, like boxed or homemade chicken stock, very watered down campbell's chicken noodle soup (so it's not too salty), and a clear broth soup from a local Thai restaurant which is not spicy and has glass noodles in it - very soothing. Nothing with cheese or butter or too much oil. Perhaps that might help for the time being? Good luck and I hope it all works out.

Kathy
UC 16 yrs; sulfasalazine (temporarily stopped)

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/19/2008 8:54 AM (GMT -6)   
Yes, gallbladder issues can arise with having Uc especially gallstones.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


mom4321
Regular Member


Date Joined Aug 2008
Total Posts : 107
   Posted 9/20/2008 9:56 PM (GMT -6)   
well Im actuaqlly in the hospital now for the second night but should be able to go home tommorow. havent ruled out gallbladder but looking more like asocol caused gastric ulcers ? 

 asocol 2- 3 times a day
dr, oharas probotics
astaxanthin  
vitamin d
calcium
magnesium
multi vitamin
biotin
colagon tablets
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 9/21/2008 8:30 PM (GMT -6)   

I'd put money on gallstones.  Your symptoms sound exactly like mine and I just had my gallbladder taken out last week.  I had horrible bloating pain in my upper abdomen (left side and center) that was much worse at night.  Then the day after I was admitted to the hospital, my symptoms went away.  This is typical with a gallbladder attack.  You feel awful for a while, then it goes away.  Definitely get yourself checked for gallstones by an ultrasound. 

Good luck and I hope you feel better soon!!


Katie, 30.   Chicago 'burbs.
DX:  Pancolitis
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 3X daily, Zoloft 50 MG daily, Bentyl 20 MG and Tylenol (as needed).
Diet/Exercise:  Avoiding trigger foods, eating very healthy.  Yoga or walking, when possible.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare
 
 


mom4321
Regular Member


Date Joined Aug 2008
Total Posts : 107
   Posted 9/21/2008 9:22 PM (GMT -6)   
They did an ultrasound as well as ekg and chect x ray then they did a cat scan and tommorow a hide test of teh galbladder. They dont see stones but think there could be on in hte duct blocking because liver count was way up and pancreas I think. I havnet had any problem while there but then again I havent eaten any food since thursday and theyve been giving me antibiotics and something for stomach acid by iv till I left the hospital this morning. They also think it s possible to have had the asocol eat up my stomach lining and cause bad ulcers but for now theey sre still ruling out the galbladder.

So, katie......how was having it out ? easy ?painful? how long before you can work etc?
 asocol 2- 3 times a day
dr, oharas probotics
astaxanthin  
vitamin d
calcium
magnesium
multi vitamin
biotin
colagon tablets
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 9/22/2008 7:15 AM (GMT -6)   
It wasn't too bad. I had pain for about 5 days afterwards, so I was taking a good amount of Hydrocodone. The first couple nights of sleeping at home are difficult, because laying flat is not comfortable. The one thing they did not tell me was that I would be LOADED with fluids and bloated from the gas. (Apparently when they do the laparoscopy, they shoot some gas into your abdomen to puff it out so that they can see/work in there.) I was about 10 pounds heavier when I came home, but all the fluid and bloating has gone away, and I'm back to my pre-surgery weight. You'll probably get up 3-4 times in the night to pee (to get rid of all that fluid). My feet were swollen in the beginning from the fluids, but that went away, too. The incisions are small, so they use a glue instead of stiches.

As for returning to work, I would say it depends on what you do. I'm a stay-at-home mom of a two-year-old, so I needed help for 3-4 days because of the lifting, running around. You will be tired, and the painkillers will make you drowsy. There is definitely soreness for about a week, but if you have a desk job it may be tolerable.

With all that said, I've read that people respond to this surgery very differently. Some people feel great right away, but a friend of mine told me she was out of commission for a couple weeks. The surgery recovery can be hard to plan for because of this. I've also heard from several people that having the gallbladder removed improved they're overall health dramatically. A friend of mine with IBS said her symptoms all but disappeared after surgery. My doctor did tell me that my ulcerative colitis would not be affected/improved by the removal, but some of us with UC may also have IBS or other underlying issues that may get resolved, so who's to say?

Hope I'm not boring you with details, and I hope you get these issues resolved soon. I know how hellish the hospital can be. They didn't let me eat anything but clear liquids for three days, and it felt like absolute torture. Good luck with everything, and let us know what happens!
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 3X daily, Zoloft 50 MG daily, Bentyl 20 MG and Tylenol (as needed).
Diet/Exercise:  Avoiding trigger foods, eating very healthy.  Yoga or walking, when possible.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare
 
 


mom4321
Regular Member


Date Joined Aug 2008
Total Posts : 107
   Posted 9/22/2008 5:38 PM (GMT -6)   
I just had hida scan this morning so we will see what that has to say.
 asocol 2- 3 times a day
dr, oharas probotics
astaxanthin  
vitamin d
calcium
magnesium
multi vitamin
biotin
colagon tablets
 

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