Hi Linda....I live in Canada...north east of Michigan...
I'm pretty much in perpetual remission...but on maintenance meds..Asacol 6 daily and the enema every 4th night. I might go to every 5th night, I'll see how I'm feeling. I don't usually go beyond every 5th night.
I think the success I've had is that I use the meds consistently. Lower dosage orally and use the enemas to treat flares and decrease when feeling better. Maintenance is a good thing. It is what it is for me..
Too many milk products can cause discomfort, loose stool and cramping. Some protein products have artificial sweeteners...again, can cause the above. I've yet to find a protein drink that doesn't bother my gut..meaning gas/discomfort.
I save the milk product ingestion via coffee with milk or cream...and of course...ICE CREAM! Yes, I get gas...it's worth it.
It's good you're using both the sulfasalazine and rectal 5ASA. I know you're sensitive to 5ASA meds...but using the Canasa will help with the inflammation. You've already had improvement. That's good.
I don't get some doctors...
UC diagnosis is pretty much assumed that the rectum is involved no matter how high. It starts there, progresses upwards. If you have cecum involvement plus rectum, it may eventually go throughout. Having that combo is more difficult to treat especially if the cecum isn't being treated as well as the rectum. UC doesn't "usually" heal in skip pattern either...rectum first to inflame, last to heal.
It's difficult to know/understand why some people do better on certain meds and supplements regarding flares, etc. Don't you just love being enigmatic??
Hope you have improvement now at you have both ends covered...keep us posted as to how you're doing.
Fear definitely sucks. I can relate too often about
some things. I do find that information/education helps...eventually I accept and the fear goes with it.
Hang tough...seems things are more brighter regarding your future.
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!