Rowasa headache?

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kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/17/2008 6:23 PM (GMT -6)   
Anyone else get headaches from Rowasa?  Hoping it is temporary!  ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/17/2008 7:18 PM (GMT -6)   
Shows how we are all different - Canasa did nothing for me - wouldn't get up far enough.  I do Rowasa on the toilet and was told 1/2 was ok so I do fine with that.  Having headaches but think it is tension!  ElaineNY

68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 9/18/2008 1:35 AM (GMT -6)   
No headaches from Salofalk (same as Rowasa).

Try it for a few nights..if you get worse headaches, you can't use them.

keep us posted.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/18/2008 8:55 AM (GMT -6)   

I feel like I have been through this all before.  Doctor prescribed LIalda to try.  When I talked to the NP last week she and I both agreed I could not use the melasamines because of side effects.  I can't imagine why he thinks I can do Rowasa AND Lialda.  I had to quit Colazal - is there that much difference?  Just will have to see, I guess! 

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 9/18/2008 9:10 AM (GMT -6)   
I don't know, it's definitely a "crap" shoot regarding some meds. I've only ever been on Asacol and Salofalk...for well over 19 years. I can take aspirin as well...salicilates I tolerate well it seems.

That could all change, however, if I had to switch to another...who knows.

Maybe you should do Asacol instead of Colazal or Lialda.
You could start with 4 and increase if needed in smaller incriments rather than jump 1200mg each time as with the Lialda.

You're right..all you can do is try. Hope the doc has samples for you to try firstly rather than purchasing them.

keep us posted
quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/18/2008 9:16 AM (GMT -6)   

Thanks!  The doctor or the NP has never mentioned Asacol.  They know I have sensitivities to aspirin and NSAIDS.  I get the pills this afternoon so will start tomorrow and give it a try.  I know it is the lowest dose possible for Lialda - just might work, who knows?  When I took Colazal - started at 6 a day and then up to 9 (adding Rowasa then) and then dropped to 4 a day and had to quit - nausea, dizzy, sweating, everything increased so I could not stand it.

As for cost of medication - I have a $9 co-pay for medications so no problem there.  My husband is retired Army.  I am very lucky.  I was offered samples but have to drive 30 miles to get them so had her call in the prescription.  Cheaper than the gas. 

I am too old for this - ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 9/18/2008 9:20 AM (GMT -6)   
yes, being too old for this is really a PITA....lol!

Strange about not having the ASacol first prescribed...but I guess it's old news already.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/18/2008 9:25 AM (GMT -6)   

If I remember (and I don't very well) doctor said Colazal was best for left-sided which I have. 

I am telling you that the two weeks I went without anything (after quitting Colazal and Rowasa cold turkey Labor Day weekend) I felt the best.  Then I saw the NP and I knew I had to be on something - I was not in full remission.  However, no blood I could see, little left sided "discomfort" and normal one or two BM's.  Then she added Rowasa back every other day and it is helping but makes me sore and the headaches and anxiety is worse.  So, she consulted with doc and he said add Lialda and see him in three months.  I have a feeling I will be calling her - I will, however, give it a fair trial.  Last time I had to stay home 5 days - before I stopped the meds.  I was so sick with dizzy, nausea, aching, etc.

I will let you all know what happens!  I am VERY tempted to go back to just Imodium and pepto bismal as I have used for a year until I get too sick to handle it that way.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 9/18/2008 9:44 AM (GMT -6)   
If you do the imodium daily, you will set yourself up for failure.

Pepto bismol is a salicylate as well.....maybe asacol will do you better as well as the Pepto.


What about fibre supplements...

You should call the pharmacy and maybe make sure about the dosage whether it's 2g or 4g. Starting with the 2g could make it more likely toward your success?

Something to consider...

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/18/2008 9:50 AM (GMT -6)   
NP said it was the lowest dose. Why do you say failure - failure of what? I have controlled IBS for about 25 years with Imodium prescribed from my doctor. Just bleeding led me to UC - certainly mild according to many here. If I did not have the bleeding I would not know it from IBS - except maybe a little more sweating at night and nausea mornings only.
I so want to have the knee replacement but it is a lot to deal with. How in heavens name have you dealt with it all so many years? God bless you.
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/18/2008 4:03 PM (GMT -6)   

Just picked up my Lialda.  It is 2 tablets morning with breakfast.  I will start with only one tomorrow to be sure side effects do not happen fast (as they sometimes do for me).

Q - you said -

If you do the imodium daily, you will set yourself up for failure. 
 
I would never use it daily - before it wa sonly a couple times a week when I go out or something special.  I always make sure I have one or two BM's morning after coffee before I take the Imodium and then never more than 1/2 tablet.  Still not sure what you meant!
 Elaine
68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 9/18/2008 10:00 PM (GMT -6)   
I mean regarding using imodium to control the diarrhea or loose stool, it can give one a false sense of being OK and not treating the inflammation..possibly leading to failure of using meds or feeling that one needs them.

As well, imodium if taken consistently can set the colon up for being extra lazy (it learns very quickly), and just not want to work at all.
While toxic megacolon isn't common, it can happen where if one's colon isn't doing it's peristalsis and one has gas....it can expand the colon in areas and therefore lose its elasticity to function.

Those of us with IBS and UC have a difficult time differentiating when there's no bleeding.

But, you say you've used it for a long time...so, I can only "suggest" you don't depend on it. Fibre supplemantation can help with bulking the stool, helping exercise the colon and encourage regular bms...etc.

If your doc isn't concerned...I shouldn't be I guess. You know what works for your body. I do understand why you use it....

quincy


*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 9/18/2008 10:59:15 PM (GMT-6)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/19/2008 9:16 AM (GMT -6)   

Well, I have used Imodium to control IBS for probably at least 20 years but always small doses and only when needed.  I usually take 1/2 AFTER two or three lose BM's or to go out when I really have to.  I did not realize until diagnosed with UC about Megacolon and gastro doc said mine is ok now.  I would prefer to controil this with medication such as the Lialda I started this morning.  However, the daily Rowasa seems to making some symptoms worse (blood and cramping).  I will give it time for sure.  I don't ever remember having constipation even after anesthesia like some people! I was prescribed two Lialda with breakfast.  I took one this morning - just to be sure I have no serious reactions.  All medications are tough for me to take.  I cannot take narcotics of any kinds (never found any yet) and I actually take a 1/4 of antihistamines to help me sleep and they make me groggy for days.  I do ont intend to give up but hope I don't have to go to steroid = that would be my downfall for sure.

Thanks for your help as usual!

ElaineNY      


68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 9/19/2008 10:46 AM (GMT -6)   
Yeah, it's difficult when we're sensitive to meds...slow to increase is best. Salicylates may not be compatible with you at all...but do give it a fair chance. If it's any consolation, I got a bit worse before the meds started to do their thing. My husband was not happy about it...but I told him what my doc said..be patient.
It was bad time for me considering I had lost so much weight and was in the bathroom up to 20 times with horrific explosive bloody diarrhea feeling like I was expelling razor blades.

Imodium for you seems to be fine according to your doc...I guess if you weren't having bms he'd be concerned

Have you tried any antispasmodics such as dicyclomine? low dosage, of course?

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/19/2008 10:53 AM (GMT -6)   

q - I had not heard of them until here.  Exactly what do they help with?

I will give the Lialda a fair chance.  I did that with Colazol and it just did not work out.  Sometimes I think it is the outside that makes me sick.  ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 9/19/2008 10:58 AM (GMT -6)   
Well, putting it all in perspective is difficult. You have much more on your plate than just UC...it's also hard to treat ourselves in a holistic way. Sometimes the smallest things can be the biggest. They don't say "cut in the cake" or "straw that broke the camel's back" for nothing.

Dicyclomine is an antispasmodic and smooth muscle relaxant and will also help with acidic stomach (a bit) and indirectly a bit with diarrhea if it's caused by spasming guts. Sometimes our digestive tracts lose the rhythm...like arrhythmia of the heart...this helps to level it out (best way I can explain it), encouraging it not to make such a big deal of stuff.

IBS is also called spasmodic colitis....just a hint as to why antispasmodics can help with it. I've used it for the entire time of having UC...I depend on it, and do end up taking at least one most days.

It's good to hear you'll give the Lialda and rowasa a fair chance.

Keep us posted.
quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/19/2008 11:09 AM (GMT -6)   
Dicyclomine - like all drugs there is a long list of side effects.  I see you have GERD - it said you should not take with GERD.  Anyway, we know we are all different.  I might worry more about my eyes as I have a cornea disease and also hiatel hernia.  However, it sounds good and I may ask especially if Lialda and Rowasa are not working.
Thanks.  ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


teacher
Regular Member


Date Joined May 2004
Total Posts : 316
   Posted 9/19/2008 4:53 PM (GMT -6)   
I think I get headches from Rowasa. They are terrible and last for over a day.
3x400mg Asacol, 3x daily
Rowasa enemas
Bee propolis
Flora-Q (probiotic)
Multi-Vitamins
Tylenol, 1000mg/headaches


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 9/20/2008 12:47 AM (GMT -6)   
Elaine..understandable regarding the possible side effects and what you have could be cause for concern.

I haven't gotten any worse regarding reflux and taking dicyclomine...actually it seems to help, go figure.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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