Remicade + Jobs

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bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/18/2008 9:49 AM (GMT -6)   
So, my parents are forcing me to get a job and I'm having a tough time finding something that'll be a good fit. I applied for a couple pharmacy technician jobs, but now I'm thinking that it'll be a bad idea since I'll be interacting w/ sick people (and I just got my 4th infusion yesterday). And I'm having a tough time finding an office kind of job. What kinds of restrictions should we be on while we take Remicade? Like I know going to the zoo would be a bad idea, as would working w/ young children.
 
While kinda on this topic, what are UC-friendly careers? I'm always fatigued, so I know I couldn't work a job that required more than 40 hrs/week and I would need something that what mostly require sitting. Currently, I get dizzy or weak if I get less than 9 hours of sleep. I'm so confused about what career path to choose. confused
 
Any input would be great. Thanks!
Female, Age 19
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 9/18/2008 10:14 AM (GMT -6)   
Hey ComedyDork,

I don't know your education or work history, and without knowing that I would say a customer service job on the phone should fit the criteria you listed.

However, start thinking about all the things you can do and want to do and do not give up on yourself.

I have been working non-stop since I was 14, I have never had the option of not working. My Mom is mentally and physically disabled and my father lived in a different state, was laid off most of my teenage years during the recession and always scraped by.

I had a horrible flare about a year ago, I could not have gone on and worked like that, I would have had the surgery rather than try to even live like that, I probably would have bled to death and would not have had any option if I did not respond to meds.

What I am saying is that you can do it. It is good to earn your own money, try to think positive.

I am assuming you are covered by your parents insurance??? If so, realistically, you need to find a job to get your own bennies, how much longer will theirs cover you and most places you need to be there a few months before the bennies kick in. With the infusions so expensive you need to be able to already have a job.

I get home from work at 6:30 each night and go to bed at 8:30 during the week, I get about 9 to 10 hours of sleep a night and am still tired.

Go out there and show yourself and your parents what you can do! Rock it!
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


Lucky777
Regular Member


Date Joined Aug 2008
Total Posts : 128
   Posted 9/18/2008 6:34 PM (GMT -6)   
I have an office job and that is not UC friendly either.

Unfortunately symptomatic UC -friendly careers to me are self-employment types. What I have been doing (since I do not have a social life), is taking night courses/online university. I know the likely inevitability of being let go from my current job, so I am pursuing the degree and the real estate certification. Our market here in Idaho is in kind of a holding pattern for home sales, so I have a break in which I can get certified and licensed. WHen they eventually let me go, I will take a stab at being a Realtor. I have a few friends that do it (they were set up to do so, I was not), and when the market is good, they have very nice lives and work on a very forgiving schedule - which is really what I need.

We'll see how that goes. SHould be fun. Might want to take a look into some things like that.

And yes I am sure that zoos and children's hospitals would be not so great for Remicaders.. but that's my assumption. I have a dog and clean the poop in the back yard, and there is a cat whom I empty the litterbox, but the moment someone sneezes at work, I am outa there. Kinda silly like that.
Sean - 31
Prednisone again for another 12 days, 25mg
UC Since April 2006, diagnosed 2007 (Flex-Sig)
4 x Liada (4 am)
175mg Azathioprine
2 x Imodium (on days where I have to leave the house)
Remicade infusion starting
1 x 1000mg Fish Oil Cap
Activia yogurt and SCD-like foods to see if I can make a change. Just got in my 4 day trial of Haldi.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 9/18/2008 7:29 PM (GMT -6)   
I think it depends on the person. I recently retired from a job as the program manager for a parenting program. I had only occasional direct contact with the 0-3 year old children, but daily close contact with staff who made home visits to the families every day. I never got an infection. In fact, I've had one cold since starting Remicade; it lasted about 6 days.

Jobs with government agencies can be good, because they're usually a bit more understanding of individual differences.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 9/18/2008 9:04 PM (GMT -6)   
I'm not on remicade, but on Humira. That also brings the immune system down, and I work with kids. No problem, just monitor myself with the illness I catch, and call the doctor like a paranoid person if something doesn't seem right. I'm actually a 2 year old teacher and totally love it. I also think it depends on the remission of the person. I've been in total remission since May 2007. Everyone's body is different.
Diagnosed with UC since March 2007
Taking Humira and Imuran since May 2007


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 9/18/2008 9:51 PM (GMT -6)   
You need to think - what am I really passionate about? Answering that question may help you decide some possible career choices.  I haven't been any sicker since I started Remicade over a year ago. I have three children and I'm around kids a lot. Handwashing is important. Think how many sick kids doctors and nurses see in those tight little rooms and they rarely get sick. I think the most important thing is not to go in for an infusion if you are sick - that can be bad. You'll need to postpone it.
 
Don't let your infusions dictate what you are going to do with the rest of your life. That's the nice thing about Remicade - for so many of us it has given us our lives back. The jobs where you don't really interact with other people are the jobs most people don't want.
Diagnosed with UC in Feb. 2005
 
Colazal (9 a day)
Folic Acid
Biotin
Calcium
Remicade


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 9/19/2008 8:53 AM (GMT -6)   
I don't think you need to take any special precautions with Remicade, aside from the norms. I mean, I work in a health clinic- all I deal with every day are sick, sick people- I wash my hands a LOT, & will try to avoid the obvious person hacking & coughing in my direction, but that's about it. Plus my daughter brings home every single cold & bug possible from kindergarten- some I catch, others I don't. Aside from the BIG infection I got once while on Remicade (strep pneumonia, which I believe I already had at the time of one of my infusions), I have had no problems with the run of the mill colds & such. I do get a flu shot. As far as work goes, sometimes the healthcare field is your best bet- I've been in the non-profit health care field for well over a decade. Since diagnosis, I have missed weeks here & there, have been out for about a month & a half with hospitaliztions & recovery time, & have gotten nothing but support from my co-workers. Most of them are doctors & nurses- they understand illness! And I don't feel weird about having the occasional bad day & running to the bathroom 6 times in a 5 hour shift! I also find the non-profit sector to be much more friendly in the sense that they tend to let things slide that a for-profit company wouldn't. And personally I just prefer to work for non-profits. I don't think you should let your UC rule your choice of work- whatever you want to do, just do it. The more power you give your disease, the more overpowering it is. If you ask your GI about taking precautions while on Remicade, I'm betting he'll tell you not to worry about it.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


Bionic B
Regular Member


Date Joined Apr 2008
Total Posts : 42
   Posted 9/19/2008 11:22 AM (GMT -6)   
there are many good days and there are many not so good days, but being independent and doing things for yourself is always good for the spirit.

i do a job where i spend 90 % of my time at work sitting behind a computer and i get days where i have to run to the ladies a lot and there are days when everything is just calm...

i was diagnosed 2 years ago and since then has had two flare ups which left me hospitalised and recently i had a minor flare up that was brought under control with meds. i do feel a bit down at times when i am not feeling well, because of my uc and have to stay off work, especially when i feel fine otherwise, but i cant help for my condition....and when i do feel well and am at work, i give my best.....i am blessed to be in a job where they understand my condition....believe you me at times i just want to stay at home and i feel like i would want to work from home, but i perservere.

uc shouldn't be the deciding factor as to enjoying your life and what you are good at.....

i know that at times a person does get tired...since i have had my uc i can not do as much as i used to and i have to listen to my body when it tells me to STOP NOW! because i still think i am the old bianca doing lots at a time....i make sure that im in bed by no later than 10 during the week as i have to get up at 430 every morning and get home at 1730 so i get about 6 and a half hours to 8 hours (when im lucky) of sleep per day.....life just is like that with uc, you have to listen when your body says NO VISITORS, NO GOING OUT TONIGHT and so on

anyway i wish you all the best with your job hunting...i know there will be something just for you somewhere. i pray that what you are going through with your uc will be a learning curve in your life and will build much character.

Praying for you
B :-)
bIaNcAcHaRlEnE aGe 29
DiAgNoSeD sEpTeMbEr 2006
AsAcOl TaBlEts 2x DaIlY
aSaCoL sUpPoSiToRiEs 2x dAiLy
 
 
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/19/2008 11:40 AM (GMT -6)   
Thanks for the advice.
 
I've had a constant runny nose and a couple full-blown colds since starting Remicade, so I'm a bit paranoid about catching anything else. And I still haven't reached remission.
 
I'm glad that everyone else has been doing well with Remi/Humira!

Post Edited (ComedyDork) : 12/5/2008 9:34:44 PM (GMT-7)


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 9/19/2008 12:13 PM (GMT -6)   
Do what you love, the money will follow... I disagree with your parents, & frankly can't believe any parent would tell a child how much they need to earn! Non-profits don't pay that well, but they tend to offer great benefits. There will be pluses & minuses with any career path, & not all of it is money related. That has just never been a motivating factor for me, & I get by ok.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 9/19/2008 7:10 PM (GMT -6)   
How much money you need to live on depends on where you live and what the cost of living is, and what sort of lifestyle you maintain. And with UC, it also depends on what your insurance covers, i.e., if you have to pay for a percentage of the cost of your UC meds vs. if you just have to deal with a copay. A website called www.sperlingsbestplaces.net breaks down the cost of living in just about every place.

To get a rough idea of what you need to make, look through the real estate ads and see what typical apartment rentals are in your area. Ask your parents what they are paying for their utilities (gas, electric, water). If they have a single family house you will pay less, but it will at least give you a ballpark figure. Notice when you are looking at the ads that some apartments monthly cost includes some or all utilities. Will you want cable TV? Cell phone AND land line or can you manage with just cell phone? How much will internet access be? Do you need it in your apartment or can you get it thru Starbucks or McDonalds or someplace? Try to figure out a realistic food budget. Plan for some meals out -- they add to your budget, but realistically, you won't be eating all meals in or brown bagging 100%. Don't forget about auto insurance, renters insurance (that's typically extremely cheap, but important).

If you can manage to live below your means and not run paycheck to paycheck you'll have a lot less stress, so budget in something, any amount, no matter how small, for savings. It'll add up fast if your religious about paying yourself first.

A single person can be self-supporting in most parts of the country for much less than 65K -- especially if you can get into a roommate situation. Check out Craigs list, explore what friends or friends-of-friends may be looking for a room mate.

Getting a job is a good thing, and it's a pretty good time of year to be doing so because a lot of places are going to be hiring for holiday help and if you're good they may keep you on. Don't let the UC or being on Remicade stop you. Because of the ADA accommodations MUST be made for you. For example, if you have a retail job you won't be held to fixed breaks for bathroom usage. You will probably need a note from your doctor explaining the condition and what reasonable accommodations would be. If you are working with the public make liberal use of hand sanitizer and frequent hand washing, keep your hands away from your face, expecially mouth and nose, and you should be okay.

I am self-employed, a dog groomer (if you like animals, grooming schools run about four months full time and you can make quite a bit more than your parents' "magic number").

Being a dog groomer I am exposed to lots of bizarre skin issues, poop, parasites, you name it .... I wash my hands frequently, keep them away from my face, and I haven't been ill in the year plus I have had Remicade every six weeks. I also haven't achieved a good remission, just a reasonable improvement. I have good days and bad. Some days you just have to force yourself to get up and do what you need to do.

Getting a job is not the end of the world. When you make your own way you have lots more choices and you won't have to owe it to your parents to listen to everything they say. My own daughter is 18 and struggling to make it and work. We're happy to be her safety net, provide a roof over head while she is trying to get on her feet, but she is working, paying many of her own expenses. Right now, for example, we're still helping her with insurance (health and car) and a few other things, but she pays for her own clothes, gas, cell phone, entertainment. We lent her some money for her car and she pays us a monthly payment. She is trying to put together some savings and intends to move out once she has three months living expenses saved. THAT is a more important number than an arbitrary income figure.

Good luck!!

Meesh
Diagnosed UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08
9 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Tylenol Arthritis Formula or Tramadol as needed for arthritis pain; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D; Past meds: Prednisone 4/06-4/08; Entocourt EC; Rowesa; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix;Lexipro


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 9/20/2008 7:34 AM (GMT -6)   
and just for some perspective, we are a family of 3 living quite comfortably on about $50,000 a year..... we live on Cape Cod, which is considered an expensive place to live. And it is. We don't wear designer clothes, I shop at K-Mart, Wal-Mart, thrift stores.... We don't go out to eat all too much, but I prefer to cook at home. Anything we can get in a restaurant I can make better, cheaper, & healthier. Aside from sushi, which is our occasional splurge. We do take mini-vacations, right now I am in a hotel lobby in Western Massachusetts! We drive fairly decent cars- I have the better family car, a newer PT Cruiser which we got for under $10,000. My husbands F-150 is on it's last legs, but we're holding out 'til we have to get another vehicle. We have about $35,000 in savings & were recently pre-approved for a mortgage of $250,000. So it's all relative. Ignore your parents!

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/20/2008 10:23 AM (GMT -6)   
Thanks again everyone.

Post Edited (ComedyDork) : 12/5/2008 9:35:08 PM (GMT-7)

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