Some questions for you guys...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 9/18/2008 2:32 PM (GMT -6)   
I keep asking so may questions so thought I'd get them into this in email - sorry for troubling you but was wondering if you knew the answers to the following:
 
1. What is the significance of having mucous?
I get have it come out with lots of wind that feels almost like a bowel movement.
 
2. What is the significance of having Blood?
I get have it come out intermittently, maybe it's the food that causes it?
 
3. I have had wind in my stomach but why do I have so much rumbling noise and so much wind in my rectum?
How bizarre that I should have that, could it be he fibre supplements?
 
4. How long should I give the rectal meds? (one for for my fave Quincy)
It's been 10 days and I have only noticed slight improvement but no difference in mucous and wind. If the blood goes away and then comes back does it mean it is slowly working or has it just stopped working?
 
Many thanks and God bless.
LR

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/18/2008 2:57 PM (GMT -6)   
1. it's the nature of the disease, excess mucus can also be a symptom for IBSers as well.

2. bleeding, also the nature of the disease, usually from ulcers or even internal hemheroides.

3. fibre supplements most definitely cause increased gas and even bloating, which is completely normal and this happens to healthy people as well, be patient and continue taking them daily, it took my system 3 months to adjust and then all my bloating went away and gas cut waaaaay down, and I still take them daily as directed by my GI to do so indefinitely, flaring or not.

4. 10 days would not likely be near enough time for one to notice great improvements, again, be patient...the worse the proctitis the longer it takes to heal so contiune with your rectal meds until things have improved AND THEN wean off of them.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 9/18/2008 3:00 PM (GMT -6)   
Thanks pb4 - you are so very kind.

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 9/18/2008 3:10 PM (GMT -6)   
I agree with pb.  If I might add....I have been in a flare since April.  The last two days I didn't notice ANY blood in the stool (hope I didn't just jinx myself).  I've been on Cort enemas alternate nights with Canasa since beginning of flare.  Down to 5 mgm of prednisone, 50 mgm of 6MP and six Colazal daily.  Also taking probiotic (powerdolphilus), daily vitamin, fish oil capsule, flaxseed oil capsule and calcium...gag.  OH...blood pressure meds too!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/18/2008 4:04 PM (GMT -6)   
You're welcome londonred and I ditto what christine says about probiotics, daily and indefinitely like with fibre supplements.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 9/18/2008 4:12 PM (GMT -6)   
Rueteri didn't agree with me. And Natren are not vegetarian. What's a good powerful one a day probiotic for IBDers?

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/18/2008 6:57 PM (GMT -6)   
What issues did you have with rueteri...and was it primadophilus reuteri made by natures way that you tried and had issues with?

VSL3 is suppose to be #1 for probiotics out there especially for IBD, trials on UCers and VSL3 have been done with great success for the majority, most even going into complete remission while the rest noted improvements of sorts.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30591
   Posted 9/18/2008 10:07 PM (GMT -6)   
I think you posted those questions in the past and I answered them then.

But, in case these are different,,,

1) inflammation or irritation caused by stress or spasming.

2) friability which is fragility. The tissue is fragile enough to bleed due to inflammation. Hemmies or a fissure can also cause bleeding as does other things, but they wouldn't pertain to you since your last c-scope was within the last month.

3) Yes, it could be fibre supplements, what you just ate, stress, rectal inflammation....

4) 10 days isn't near enough time....and I still think you should be on oral plus rectal.

hope this helps.
q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 9/18/2008 10:33 PM (GMT -6)   
I am going to push my doctor for me to restart on Asacol in the mornings and rectal at night. Will also try the VSL#3 but it is so expensive to have long term - maybe I can have a month's course of it? The Primadophilus Reuteri by Natures Way gave me stomach cramps but I would be interested to hear other people's view on it.
 
I am going to try Reiki today for the stress.

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.

Post Edited (LondonRed) : 9/18/2008 10:38:10 PM (GMT-6)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/18/2008 10:43 PM (GMT -6)   
Some people do experiance "die off" symptoms when first taking probiotics, this could be what your cramps are from.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 9/18/2008 11:44 PM (GMT -6)   
I threw away the pack maybe I need to buy another one. The whole probiotic thing is so confusing...and so expensive.

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 9/19/2008 7:52 AM (GMT -6)   
Maybe you should also consider culterelle, bearing in mind what pb4 said...and it's not that expensive.

NBT
Diagnosed with Ulcerative Colitis January 2007
Meds: Mesaamaline (sp) Retention Enemas, herbal meds in the search to regain full health.


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 9/19/2008 8:08 AM (GMT -6)   
I am going to go for VSL3 for a month then settle for a cheaper probiotic.

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 9/19/2008 8:51 AM (GMT -6)   
Have you tried ordering probiotics online?  I ordered mine from countrylife.

LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 9/19/2008 1:29 PM (GMT -6)   
I think I am, going to order the VSL#3 and have that for a month and then get something common like Natren or Culterelle.

I am having so much mucous it is unreal and the blood is pooling up and coming out with each BM but always seperate from the stool. I missed the suppository last night by mistake but will use it tonight.

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 9/19/2008 7:20 PM (GMT -6)   
LondonRed your experience with the pooled mucus and blood is exactly what I get in a flare - gas, which then pushes mucus and blood out. Be patient - the rectal meds will squash that over time. It took almost a month last time for me, and almost 2 months of rectal meds total, but it worked and the problem hasn't come back, 9 months later.
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 

  • 3 500mg Pentasa a day
  • Psyllium powder.


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 9/20/2008 2:02 AM (GMT -6)   
That's reassuring Mitzo and like my flares are always triggered but antibiotics and medicine. I get so much gas and then that gas pushes out mucous and blood. I don't get huge amounts of blood, but it's there. I have been on rectal meds for 12 days now and it's still the same. I have weaned off the steroids now and am at 1 every 4 days (5mg only).

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.


Schmoner
Regular Member


Date Joined Apr 2007
Total Posts : 26
   Posted 9/20/2008 4:14 AM (GMT -6)   

Hi Londonred,

Sounds like we're in similar boats.....

I had to hound my consultant to let me try rectal meds. Firstly he gave me the predfoam a long time ago, but that stuff is a nightmare to keep in!

Eventually, he let me try Pentasa suppositories.  Despite the oral pred being less and less effective each flare, and the Asacol, in my opinion, doing absolutely nothing for me. The best result I have had for a long time came after using the suppositories, but it did take about 14-20 days for significant improvement.

Stick with it - they'll kick in soon.  I'm also just trying VSL#3. Been on it for about 10 days now, along with JarroDophillus E/C coated capsules.  noticed some die off, but I do genuinely think they are doing some good in there - i'll let you know!
 
Good luck
 
Craig
Diagnosed with UC March 2007 - Proctitis
 
Currently Taking:
 
Asacol 3 Tabs (400) x 3 Daily
Prednisolone 20mg AGAIN Daily 
Iron Supplement 200mg 1 Daily
Omeprazole 20mg (Acid)
Azathioprine 125mg Daily
Pentasa 1mg Suppository Daily
Various Asthma Medications (List too long)
Calcium supplements 400mg twice daily
Multivitamins + Minerals once daily


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 9/20/2008 4:59 AM (GMT -6)   
I am desperate for the VSL#3 - I have asked my doctors to prescribe it and if they don't then I will buy it.

Thanks guys, looks like I need to give the rectal meds a month and then take it from there.

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 9/21/2008 10:49 AM (GMT -6)   
Is there a factual or pathological reason for mucous discharge on it's own? Or is it like blood just a sign of something wrong?

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30591
   Posted 9/21/2008 12:15 PM (GMT -6)   
 
See what you come up with if you go through the process...interesting, but possibilities don't mean that's what it is.
 
q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 9/21/2008 1:16 PM (GMT -6)   
It say Hemmorroids or Proctitis - both of which I have!

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.


toriblue
New Member


Date Joined Sep 2008
Total Posts : 14
   Posted 9/21/2008 6:40 PM (GMT -6)   
heres one reason why there is mucous from the ccfa website; The disease is marked by inflammation and ulceration of the colon mucosa, or innermost lining. Tiny open sores, or ulcers, form on the surface of the lining, where they bleed and produce pus and mucus. Because the inflammation makes the colon empty frequently, symptoms typically include diarrhea (sometimes bloody) and often crampy abdominal pain.
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, June 21, 2018 8:39 AM (GMT -6)
There are a total of 2,974,017 posts in 326,152 threads.
View Active Threads


Who's Online
This forum has 161226 registered members. Please welcome our newest member, Cynpurr72P.
424 Guest(s), 13 Registered Member(s) are currently online.  Details
81GyGuy, mattamx, torontolyme, tarhoosier, physedgirl09, hammer8, Serenity Now, springsjean, valli1234, garyi, DJKWUK, Crazyick, MrAnxiety069