How often do you have colonoscopies?

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Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted Today 4:04 PM (GMT -6)   
I was just wondering....my GI doctor has me undergoing a yearly colonoscopy.  I have had UC for ten years.  Do all you UC sufferers have them yearly?

LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1194
   Posted Today 4:05 PM (GMT -6)   
After 10 years they are yearly but it obviously depends on symptoms at other times.

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted Today 4:11 PM (GMT -6)   
Yeah, It's supposed to be yearly after 10 years, some doctors say after 8. When I was first diagnosed it felt like I was having a camera stuck up my butt every couple of months, it was terrible. I'm going on 8 years now and I just had a colonoscopy done a few weeks ago because I hadn't had one in three years. Personally I'd rather have some sort of scope yearly just to be sure things are looking okay and not cancerous, but I'm paranoid.

Female, 23, Ulcerative colitis (pancolitis) for 8 years so far; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use....

Current Meds:
Lexapro 10mg, Lialda 2 pills a day, Rowasa enemas nightly

 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted Today 4:31 PM (GMT -6)   
I go every 2 years now I'm past the 10 year mark.
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Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted Today 5:11 PM (GMT -6)   
I am supposed to have them yearly, but we alway wait until I'm doing relatively well, so it's more like every two or three years.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering OFF prednisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, etc. diet which resolved flare. Also Replete probiotic, DGL (licorice root, slippery elm), Permeability Factors. Slow-release iron and B-12 shots for severe anemia.
Sept: Mild case of thrush in throat, prescribed antifungal mouthwash.


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted Today 5:22 PM (GMT -6)   
My Gi told me it should be yearly, when I was in a flare. But, now that things are going well, she said every 2 years.
*******Donna*******
 
South of Boston, Ma
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.
 


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted Today 7:09 PM (GMT -6)   
Once a year and that means that next month I go for mine. Cant wait for the prep
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


Lucky777
Regular Member


Date Joined Aug 2008
Total Posts : 128
   Posted Today 7:14 PM (GMT -6)   
There was no waiting 10 years for me. Yearly for 2 years in a row - that sounded to be the standard from my GI. Once per year (although I will be undergoing 1-2 others for the Army/VA before my next one from my GI).
Sean - 31
Prednisone again for another 12 days, 25mg
UC Since April 2006, diagnosed 2007 (Flex-Sig)
4 x Liada (4 am)
175mg Azathioprine
2 x Imodium (on days where I have to leave the house)
Remicade infusion starting
1 x 1000mg Fish Oil Cap
Activia yogurt and SCD-like foods to see if I can make a change. Just got in my 4 day trial of Haldi.


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted Today 8:41 PM (GMT -6)   
I was also told yearly but I've only been dx'd since May 07, but I know I've had it since 2003...so I'm doing the every 18 months to 2 years route although if I cannot control this stubborn flair soon I may ask for one very soon to determine exactly where the blood is coming from and how bad it is or is it not.


Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!

Post Edited (bbc) : 9/18/2008 7:50:29 PM (GMT-6)


kaykay29
Regular Member


Date Joined Aug 2008
Total Posts : 28
   Posted Today 9:15 PM (GMT -6)   
I go yearly. A couple of years ago I had a whack Dr who said "we can let it go to two years". I was worried to death so I scheduled it yearly anyway. Two years seems like a long time with the symptoms we have. Besides, I love whatever that is they dose you up on before the test. Just kidding. I am not drug seeking & if I were, colonoscopies wouldn't be the way to get them . . . . too much prep.
Dx UC 1979 at age 14 - (I know, some kind of record)
Was Mildly Chronic (flares every couple of years) until last 2 years now Chronically Acute
Can only get about a month symptom free between flares now
Asacol, Canasa, Rowasa, Cortifoam (on Sulfasalazine for 28 years previously also Pred)
GI Doc recently told me I have "lead pipe syndrome" which is advanced scarring of colon
No surgery - multiple colonoscopies reveal uc "from rectum to appendix"
My Best Friend is My Shih Tzu/My worst enemy is uc


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted Today 11:19 PM (GMT -6)   
I'm heading for the 20 year mark this coming January....I got one at diagnosis, one the end of the first year and then every three years. I wouldn't have one every year if all the biopsies came back unremarkable regardin cancer/precancer or if I don't have a predisposition for polyps.

A c-scope has risks as well....I wouldn't have one unless I need to.

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted Today 11:32 PM (GMT -6)   
I havent had one for 5 years but he says its time. I hate the prep and I am not paranoid about it. I saw my heart doctor the other day, had been three years, needless to say he was on my butt. If I feel ok I just cant make myself go to the doctor. my bad.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 9/19/2008 12:27 AM (GMT -6)   
I go every two years, I think. Although I've always had UC I was only diagnosed a couple of years ago and just had my "check up colonoscopy" at the beginning of the year. All the irritation from the prep and colonoscopy made me flare really bad. I'm not look forward to my next one in a couple of years. =(

Suffered for my whole life before being diagnosed.

Told to "Eat more fibre "



Currently on:

Salofalk
1500mg x 4/day
Entocort 6mg once a day
Imuran 150mg once a day


Samynic
Regular Member


Date Joined Aug 2008
Total Posts : 56
   Posted 9/19/2008 10:59 AM (GMT -6)   
never have had one no insurance and never told to ?
22 years old
Diagnosed with UC June 2005 at age 19
Just graduated from Virginia Tech but unemployed because current flare has left me out of commission
Have taken: Cortifoam, Asacol, Dicyclomine, Prednisone, Sulfasalazine, Cipro, Flagyl, Codine, Hydrocodone, Roxicodone, Canasa, Zoloft, Probiotics (recent), Aloe Vera Juice


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 9/19/2008 11:03 AM (GMT -6)   
Samynic said...
never have had one no insurance and never told to ?

have you had a sigmodoscopy?
 
 
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/21/2008 9:24 PM (GMT -6)   
When I participated in the drug study for Asacol before it was approved, I had a sigmoidoscope every few weeks.
(You're welcome).
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. 
Currently tapering OFF prednisone from lingering flare;
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy-free, dairy-free (other sensitivities) etc. diet which resolved flare. Also Replete probiotic. Slow-release iron and B-12 shots for anemia.
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 9/21/2008 10:37 PM (GMT -6)   
It also depends if one has Pancolitis, as when the entire colon is affected colonoscopies should be yearly according to most protocol...

The last 2 GI docs I've seen both said I did not need another scope and its's be about a year and a half...I was quite surprised and did not want to argue with them; the last opinion was from a well known and regarded GI doc who head's up GI at a teching hospital.


Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!

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