I believe in headed toward remission!

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Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 9/19/2008 5:19 AM (GMT -6)   
I am excited, but won't get too excited yet and jinks it, but I think I am headed towards remission.  I have been flaring since mid-may.  For the first time this a.m. I had a normal movement, I am not nauseated like I was, my arthritis is not gone, but much improved, my lower back/stomach aren't hurting like it was, just tender at times, and I am not as fatigued.  Perhaps, for me, living the bland life plus the meds, is working.
 
Here is my question - should I call my doctor and let him know.  Do you think he will keep me on the canasa and asacol?  Of course I will continue w/ the meds if he says so and I will continue, probably for life the enzyme, physillum, probiotic, fiber wafer, and we'll see about the nico patch.  Funny how I started improving when I put my nico patch on.  Anyway your knowledge is greatly appreciated!
 
Gigi1227
 
Diagnosised 8/25/08 GRRR
Currently Flaring GRRR
 
Canasa
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/19/2008 6:21 AM (GMT -6)   
Did the doc state how long you were to be on the Canasa? If you do stop the Canasa, do it slowly by tapering regardless what the doc says. I've learned over the years that by stopping any med cold can cause a flare to reassert itself. But personally I would say stay on your current regimine for a couple more weeks and if things are still good then maybe slowly taper down the Canasa. How many Asacol a day are you taking?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


mommafreds
Regular Member


Date Joined Sep 2007
Total Posts : 41
   Posted 9/19/2008 6:25 AM (GMT -6)   
Gigi, Asacol is what is supposed to keep people in remission. In the past, I have found if I miss doses it messes me up pretty quickly. I don't take the other med your on but I wouldn't stop anything unless you talk to your doctor. It so hard to face but I finally have realized I am going to have to take some of these meds for the rest of my life:( I am glad your better. I feel like I am headed that way too. I often have considered the patch because I am an ex smoker too. I am going to a new G.I. and I plan on discussing that with him. I want to try the fiber wafers but am afraid because my doctor told me I shouldnt because of being in a flare. I actually missed two doses of asacol this week and the next morning there was blood. I am not sure if thats it or something I ate. Good Luck.
DIAGNOSED 2004 PANCOLITIS
CURRENT MEDS: PREDNISONE 20MG (DOWN FROM 40MG)DAILY
AZATHIOPRINE 100MG DAILY
ASACOL 400MG 4TABS THREE TIMES/DAY
PROBIOTICS: FLORA-Q AND ALIGN
ANTIDEPRESSANT: BUDIPRION 150MG DAILY
SUPER B COMPLEX WITH C VITAMIN DAILY
OSCAL WITH D TWICE DAILY


madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 9/19/2008 8:14 AM (GMT -6)   
Great news that you are feeling better. I agree that you shouldn't be thinking of stopping your meds at the first sign of remission. I have done this myself several times and have always ended up regretting it. I have told by several GI's that many though not all UC'ers need to stay on some kind of medication always to maintain remission.

Remission doesn't usually happen in straight line string of good and better days. It happened (to me anyway) like a curving line of good and bad days so you need to keep on the meds probably longer than you would like.
UC diagnosed 10/05, first symptoms 1983
asacol 12/daily and rowasa as needed 
Trying out Digestive Fitness Probiotic
past rx: colozal, lialda, canasa


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 9/19/2008 11:48 AM (GMT -6)   
Thank you for your input everyone - I do plan to stay on them - I am sure that is what my doctor will say when he calls. My scripts are for 6 months so I am sure we'll stay on them for that long. It does feel good to add some extra goodies to my menu though! For example, I had a glass of milk again and I was fine. Now, for me that is exciting, in that I use to be a milkaholic!

I hope everyone has a wonderful day and weekend!

Gigi1227
Diagnosised 8/25/08 GRRR
Currently Flaring GRRR
 
Canasa
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/19/2008 3:54 PM (GMT -6)   

Good news Gigi.  I took my first Lialda this morning - no adverse affects yet.  I would think the only time to stop all meds would be when you have a very bad reaction like I did to Colazal.  But, my doctor gave me other medications - first Rowasa.

Hope the good feelings continue!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 9/19/2008 4:13 PM (GMT -6)   
FYI:

According to my GI doc one must be completelty symptom free for at least 2 weeks to be in remission.



GiGi1227,

Glad to hear you are getting better!!! : )
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/19/2008 4:25 PM (GMT -6)   

I was so close to two weeks when I took myself off the medication because of side effects - maybe it will work this time.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 9/21/2008 4:45 PM (GMT -6)   
I feel that I am still doing better - not symptom free, but have been able to eat salad and I had a Tbone Steak last night. So far so good - just mild lower abdominal discomfort - movements have been 4-5 a day then a day of none and then back to 4-5 a day. We'll see. Just thankful the pain isn't as excruciating as it was when in the biggest part of my flare!

Gigi1227
Diagnosised 8/25/08 GRRR
Currently Flaring GRRR
 
Canasa
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
 
 

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