Thank you for the check in. We operate 24/7, so I work screwy hours, and this past weekend was my long weekend for working. I've just been too tired at night to get to the computer. Luckily, I like my job, so it isn't much of a sacirfice being there, but it can be a trial with UC.
I wish I could've been at some parade yesterday! Doesn't sound hokey at all. If I had kids, I'd be taking full advantage of all the kid things like parades, playgrounds, and such. People tend to think any adult on a swing set by themselves is a kidnapper these days. Maybe I should try to borrow a coworkers kids some day just so I can go play...
I caught your calorie thread earlier, and I'm glad you are seeing some progress. My flare is definitely getting better, but whether it is due to the prednisone, lialda, VSL#3, diet or the recent addition of Colocort I don't know. I've started all of the above within the last month, so it is hard to separate benefits of any individual med. My guess is that the greatest relief is from the prednisone, but I can't use that stuff for very long. Too many side effects, the worst one being a short temper. I'm usually really mellow, so it is kind of disturbing when I fly off the handle about some stupid thing. Luckily, I know about this now, so I keep close tabs on my reactions. Plus, I have some clonazepam that helps to chill me out, but it also makes me soooo tired.
I have a doctor appt later this week, and he and I will discuss things, but I've been in touch with him and we've got me tapering from the prednisone. It really was a final alternative, because I couldn't function at work very well with my flare as bad as it was. Now that things are getting under control, I'm willing to see how things are sans oral steroids. The colocort is supposed to be the better version of steroids for me, but it has its own problems.
Thanks again for keeping tabs on me.
36 y.o. male