Beartooth, how's it going?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 9/20/2008 9:23 PM (GMT -6)   
Hey Brandon,

Just wanted to check in and see how you're doing. Feeling better, I hope, and enjoying this early fall weekend. We had our homecoming here today, and went to watch the parade as we do every year (as one must when one has a 5-year-old). Nothing exciting, but just the tradition itself is kind of comforting.

Hope you're well --
emory
40 years old and female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
UNTIL 9/4/08: Canasa 1000 mg suppositories nightly, 25 mg hydrocortisone suppositories in a.m.
CURRENTLY: Proctofoam at bedtime
Effexor 37.5, Clonazepam .5 mg (or more) and Trazodone 50 mg for sleep
2.5 mg methimazole for thyroid
Recently started probiotic (Garden of Life Primal Defense Ultra) and acupuncture
Osteopenia (and I haven't even taken steroids!)


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 9/22/2008 12:55 PM (GMT -6)   

Emory -

Thank you for the check in.  We operate 24/7, so I work screwy hours, and this past weekend was my long weekend for working.  I've just been too tired at night to get to the computer.  Luckily, I like my job, so it isn't much of a sacirfice being there, but it can be a trial with UC. 

I wish I could've been at some parade yesterday!  Doesn't sound hokey at all.  If I had kids, I'd be taking full advantage of all the kid things like parades, playgrounds, and such.  People tend to think any adult on a swing set by themselves is a kidnapper these days.  Maybe I should try to borrow a coworkers kids some day just so I can go play...

I caught your calorie thread earlier, and I'm glad you are seeing some progress.  My flare is definitely getting better, but whether it is due to the prednisone, lialda, VSL#3, diet or the recent addition of Colocort I don't know.  I've started all of the above within the last month, so it is hard to separate benefits of any individual med.  My guess is that the greatest relief is from the prednisone, but I can't use that stuff for very long.  Too many side effects, the worst one being a short temper.  I'm usually really mellow, so it is kind of disturbing when I fly off the handle about some stupid thing.  Luckily, I know about this now, so I keep close tabs on my reactions.  Plus, I have some clonazepam that helps to chill me out, but it also makes me soooo tired.

I have a doctor appt later this week, and he and I will discuss things, but I've been in touch with him and we've got me tapering from the prednisone.  It really was a final alternative, because I couldn't function at work very well with my flare as bad as it was.  Now that things are getting under control, I'm willing to see how things are sans oral steroids.  The colocort is supposed to be the better version of steroids for me, but it has its own problems.

Thanks again for keeping tabs on me.


Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06 - currently flaring
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Prednisone 30mg


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 9/22/2008 3:39 PM (GMT -6)   
So glad to hear your flare is getting better! It is frustrating to feel like a human science experiment, and it'd be nice to know what's working, but hey! if it's working, maybe that's enough for now. Hope the prednisone taper goes well.

The parade was pretty fun, and I love a good swing set, myself. It is nice to have an excuse to enjoy those things. But it's easy to get jaded when that's almost all you get to do...

Take care,
emory
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, July 16, 2018 3:38 PM (GMT -6)
There are a total of 2,982,122 posts in 326,965 threads.
View Active Threads


Who's Online
This forum has 161801 registered members. Please welcome our newest member, taylymy.
447 Guest(s), 17 Registered Member(s) are currently online.  Details
Nick_69, 73monte, Balladeer, Gemlin, Sr Sailor, Uniform Charlie, mcspike, Saipan Paradise, psbg, InTheShop, RobLee, garyi, RunJerRun, MacroMan, borborygmi, Noggin2u2, straydog