Now on colazal- instead of Lialda anyone helped by this

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 9/22/2008 5:42 PM (GMT -6)   
Today the doctor changed my meds. Colazal- 3 pills 3x a day. I have been taking Lialda for one year. He also doubled my remicade dosage and ordered a colonscopy for Next Monday. If this doesn't work, it is probably off to see a surgeon.
 
Any suggestions about Colazal- has this helped or is it the same old thing?
 
Thanks at my wit's end
Jackie, 43

Pancolitis, DX Jan. 07

Lexapro, Lialda, Sythroid, Protonix, Rowasa suspension

Remicade 9th infusion- Sept. 9th


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/22/2008 8:36 PM (GMT -6)   

Well, my doctor switched me from Colazal to Lialda.  But, I was having side effects I could not deal with.  Now day 4 on Lialda and everything about same.  Giving it time!

Good luck!  ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


barbl
Regular Member


Date Joined Jul 2006
Total Posts : 320
   Posted 9/22/2008 9:11 PM (GMT -6)   
Lialda threw me into a MASSIVE flare. Started Colozal and saw instant improvement smilewinkgrin
Dx'D in 1990. Remission 1991 - 1/2005
Both flares were in extremely stressful times in my life
Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"
*****9/2007 dumped my GI who I refer to as "Satan" New GI, new med TOTAL remission with in 2 weeks.
Colazal 9 capsules a day*****


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/22/2008 9:29 PM (GMT -6)   
Probably my age and the fact that I have very mild protosigmoiditis makes the difference.  Just shows you how we have try what we can and find what works for each of us.  ElaineNY

68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 9/23/2008 5:57 AM (GMT -6)   
I was switched from Asacol to Colazal about six years ago.  To tell you the truth, I don't see any difference.  The GI doctor also put me on the 6MP four years ago and I still get flares.  Latest flare is a doozy, in it since April, hospitalized ten days in May, still bleeding.  Meds: 50 mgm 6MP, 9 Colazal a day, Cort enemas in p.m., Canasa suppository in a.m.  I believe the enemas and Canasa are working better than the pills, but that is just my hunch.  I had a bad day Sunday but that may have been because I took an aspirin for a bad headache (Tylenol just didn't do the trick) and I ate French fries a few days before (big no no).  I also take a probiotic, multivitamin, calcium and flaxseed oil capsule....not to leave out my blood pressure meds...Benicar and Toprol xl.  What a joy!
 
Oh, main reason I was switched to the Colazal is that my UC is located in the rectum and Colazal treats the lower part of the colon moreso than the Asacol...that is how my doctor explained it to me.

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/23/2008 6:02 AM (GMT -6)   
Colazal is more effective in people that have left sided on down. But if Asacol or Lialda doesn't work then you might have better luck with a Basalazide such as Colazal. I was on Asacol for 12 years before I switched to Colazal. I had an increase of symptoms after the switch but that only lasted about 2 weeks. Colazal helped put me in remission but it was short lived because then my daughter gave me a stomach bug! :( But I can't tolerate mesalamines now but don't seem to have too much trouble with Colazal.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/23/2008 8:16 AM (GMT -6)   

How could you go that long without just quitting...

 

 "I had an increase of symptoms after the switch but that only lasted about 2 weeks."
Well, maybe you did not have other problems like I have with nausea/sweating, etc.  It gets worse every day and I say to myself I will feel better tomorrow.  All the meds seem to work on the bleeding, etc. but so sick otherwise mornings - hard to deal with!  When I quit the Colazal and Rowasa in August - I felt soooo good for almost two weeks until I had to start Lialda and Rowasa once again.  I am going to try to convince the NP/doc that 5-ASA's are not for me but where to go from there is the question?
ElaineNY
68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 9/23/2008 9:22 AM (GMT -6)   
Colazal has worked better for me than any of the older oral 5-ASAs-- probably because I have left-sided UC. Patients with right-side inflammation seem to do better on Asacol or Pentasa, which start dissolving in the terminal ileum. The most effective 5-ASA treatment, though, is the combo of oral + rectal meds that Quincy frequently mentions in her posts. It has been verified in research studies. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 9/23/2008 6:45 PM (GMT -6)   

That is interesting that you say Colazal works better on left side UC because that is the area that is the most inflamed- even though I have a bad case of protitis. Could it be that I already feel a little better after taking 6 pills or is it just a coincidence. I always felt that Lialda was not doing anything for me.

 

 


Jackie, 43

Pancolitis, DX Jan. 07

Lexapro, Lialda, Sythroid, Protonix, Rowasa suspension

Remicade 9th infusion- Sept. 9th


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/24/2008 5:52 AM (GMT -6)   
No Elaine, I didn't have those adverse side effects like you did. To me it definately sounds like you just can't tolerate the 5-ASA's. Which is unfortunate :( I only had an increase of D and rectal pain. Oh and of course the initial start up side effects. But every day that I was on it, it did get better.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/24/2008 9:54 AM (GMT -6)   

Well, I stopped both Rowasa and LIalda.  I tried Rowasa every other day and the two Lialda every morning and kept feeling worse.  Actually, the UC gets betteron 5-ASAs but I feel like I have the flu more each day.  This morning woke up 3 a.m. - nearly threw up - stomach ache (not colon), ringing in my ears worse, headache, etc.  Yesterday I ate very bland and lite so nothing to do with that.

I will call doctor tomorrow (as that is the day he is in my office) and tell him and NP to work on another plan.  No real cramping going on - two BM's - one with tiny blood - so I am fine for a few days and then start over again I guess. At this point - rather have UC than the side effects (that is how sick I feel) Going to take a nap.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
colazal
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday
 
 
 
 
 
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 9/24/2008 10:28 AM (GMT -6)   
jblue65-- Colazal could be helping your descending colon in a better way than Lialda. That seems to be why I do better on it. So far I haven't needed to try Lialda so I can't compare it to Colazal, but from what I've read, their dissolving action is different & that seems to be a very important factor for relief of inflammation in different sections of the colon. Hope you continue to improve day-by-day! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

slimswede
New Member


Date Joined Mar 2009
Total Posts : 7
   Posted 3/25/2009 9:06 PM (GMT -6)   
Colazal worked very well for me in 2 years, than catastrophe, started puking that yellow crap up. I was changed to Lialda, summer 2006 to end of fall 2008, complete catastrophe at the end couldn't leave my house or move my body. Now i'm on an old traditional drug, feeling better but i'm pretty sure i will have to change in another year and a half. it's like my body get used to the medicine and rejects it.
Diagnosed 2004 w. UC
Sulfasalazine 3 tabs x 2 day, D-vitamin, calcium


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 3/26/2009 6:24 AM (GMT -6)   
For some reason the colazal gives me D. Nice orange D. Worked for awhile. I still have almost 3 big bottles of it so every once in awhile I try and go back to it. Maybe I'll try and decrease it and mix it up with the lialda to hit different parts of the colon. If I could just get the lialda to dissolve. I've even used colazal in enemas.... don't try that.. burns, lol.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 3/26/2009 9:53 AM (GMT -6)   
Taking Colazal at the moment, still have no clue if it is helping or not. Been on edge of full remission but can't get there completely it seems.
Had to switch after Asacol decided it didn't like me and gave me pains in my side and kidney area. So far I haven't noticed any side effects with Colazal, by the way I am using generic Colazal.
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 19, 2018 7:40 AM (GMT -6)
There are a total of 3,004,563 posts in 329,154 threads.
View Active Threads


Who's Online
This forum has 161744 registered members. Please welcome our newest member, rju65654.
306 Guest(s), 7 Registered Member(s) are currently online.  Details
Naples, Sarge 83, boris_badenof, Dimitri71, oceanfisher58, getting by, RobLee