Judy - please tell it like it is!! LOL
I agree with most of what you say. I do have a wonderful NP but she is following the doctors instructions and I don't think HE really understands my sensitivity to 5-ASA's. One thing is that he rarely has a new patient my age - doesn't deal with many seniors with reactions like I have. I had an appointment with NP two weeks ago and she discussed my case with gastro doc and came up with the latest treatment. I told her I would TRY it. He is at three different offices during the week - miles apart and inconvenient for me - only one is near me and very limited appointments. But, if I insisted - however, Rachael actually listens to me and I like her so much better than doc.
Second factor - I have been educating myself a LOT here and every website online I think. Seems immunosuppressants might be next - Rachael said that. However, I cannot (don't want to) take them because it makes you susceptible to viruses, etc. and my husband's immune systme is compromised by cancer and chemo, etc. Also, I cannot have my knee replaced taking those.
As for changing doctors - my other choice would be his pardner or drive way over 50 miles one way. I know he has been treating me conservative because I am so sensitive to medicatons of all kinds and I have mild UC.
My thought might be steroid enemas next. I am extemely crippled by my knees and cannot exercise and very overweight. Makes me want to cry sometimes. I am a strong willed person and I think a strong person in general. BUT - impatient also.
Thanks so much for telling it like it is!!
68 yr. old granny
New diagnosed with proctosigmoiditis
canasa and proctofoam
Prilosec for GERD
Inderol for hypertension
Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Rowasa every night for now- trying Lialda starting Friday