Ok... so here's the deal. For the last couple of months I've been flaring and flaring and flaring... and its been getting worse to the point where I am fighting to keep my normal routine. My tummy is battling me big time. On top of that, my skin on my face, neck and chest is red and itchy and flaking, and getting worse.
Finally I had a chance to see my GI, and here's what he says. My colitis, which shows patchy in the last scopes, he thinks is more indicative of chrones, or chrones and colitis. So, off for another scope I go (my last was over a year ago) and they will do the full thing this time to look it there are patches in my small intestine too. On top of that he sent me off for a bunch more tests, saying that he's sure something else is going on, especially given my skin issue. I thought it was rosacea, he says it looks more like lupus rashes. So they are testing for lupus. They are also testing for celiac at my request.
I wasn't expecting the lupus thing. Honestly, it scares the poop out of me (pun intended). Does anyone else on here have both???
The other thing is, he's said its time for me to go on prednisone. I really really really am freaked out about
this, I've resisted it for years. What if I get crazy side effects???
33 yr old, female.
Diagnosed with UC in 1996, symptoms since 1990
Currently in a UC flare since July 2008 *grrrr*
On Imuran 2mg/day, Primal Defence 2 tables/day, now added cortifoam for flare