question about uc

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jordanko
Regular Member


Date Joined Sep 2008
Total Posts : 30
 		   Posted 9/23/2008 9:27 PM (GMT -6)   
Hi my name is Jordan, and I have had ulcertive colitis for about two years now.  I have never been fully off the steriods, every time I am almost off I get a flare up.  I have recently had a little blood in my stools but they are formed.  I am on 10mg of the steriods, taking iron, methodrexate, and just starting humera.  I dont want to go back up on the steriods, but I will if it is absolutly needed. any advice?
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potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
 		   Posted 9/23/2008 11:40 PM (GMT -6)   

Hi Jordan,

Welcome!  Have you tried probiotics, like culturelle or primadophilus reuteri?  Also a fiber supplement might be helpful.  Are you using any rectal meds?  They would be a good part of your treatment. 

There are lots of posts here with suggestions that you will find helpful.  Hang in there! 

Potato...  Female, 58, dx 11/07 mild left sided ulcerative colitis (50 cm)
asacol 3 3x a day, cortenema (generic) am & pm rowasa every other day  culturelle, benefiber wafers  generic acidophilus, metamucil wafers, activia, primadophilus reuteri
children's vitamin, Vitamin E 400 mg, omeprazole 2xday
oxazepam when needed, lomotil or ImodiumAD (not in the same day) when needed
Yoga, meditation, The Work by Byron Katie, exercise at least 5 days a week
 
 
 
 
 
 

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Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
 		   Posted 9/24/2008 6:23 AM (GMT -6)   
Hi, welcome to Healingwell :) What is the extent of your Uc? Have you tried any of the 5-ASA's such as Asacol or Colazal? What about rectal meds? Have you given those a go yet?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
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Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
 		   Posted 9/24/2008 7:00 AM (GMT -6)   
Just wanted to let u know that the longer u r on Humira, u will see a difference. I'm kinda partial to Humira since it's helped me for over a year. I was flared so bad around Feb. 2007 - April 2007, my doctor put me on 2 shots every 2 weeks. So, works! He's eventually taking me down to 1 shot every 2 weeks, but won't find that out til January. Hopefully with taking the Humira, u will be able to get off the prednisone. I haven't been on prednisone since last year too. But.... everyone's body is different.
Diagnosed with UC since March 2007
Taking Humira and Imuran since May 2007

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Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5957
 		   Posted 9/24/2008 8:43 AM (GMT -6)   
Sweetie..is Humira like Remicade?
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jordanko
Regular Member


Date Joined Sep 2008
Total Posts : 30
 		   Posted 9/24/2008 9:48 AM (GMT -6)   
humera is like remicade.  I was on the remicade but we (me and the doctors) felt that it wasnt doing much for me.  along with the medication I am also taking fish oil, and vsl3.  for humera this friday I am going down from two shots every two weeks to one shot every week.  Im praying this will work, just tired of having nothing work except the steriods.  Thanks for all your input!
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jordanko
Regular Member


Date Joined Sep 2008
Total Posts : 30
 		   Posted 9/24/2008 9:50 AM (GMT -6)   
oh and I was on colozal but I dont think it did anything for me, so I stopped taking it.
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