My 16 year old son was on Entocort, a milder form of Prednizone for 10 months. You are not supposed to be on it for more than 6 weeks. Every time we tried to wean him off, he would flare up. The harsh drugs the Dr. was wanting to use on my son as an alternative were very undesirable due to side affects. So, in desperation we put my son on the specific carbohydrate diet. First we just took him off of all sweets, gatorade, koolaid, sodas and within a week we saw results. His stool got better. So we went all the way with the diet. To do this though Nolan you really need the support of a parent who is willing to cook for you unless you are doing that all for yourself now. I bought 2 cookbooks that I would recommend called Recipes for the Specific Carbohydrate Diet by Raman Prasad and Eat Well Feel Well by Kendall Conrad. The baked goods are somewhat disappointing unless you can consume the item totally upon leaving the oven. The crackers are good to start with for baking though. If you decide to do this the diet recommends going easy the first 3 days, eating baked chicken, cooked veggies like cooked carrots, tender fish if you like that. Look up the diet on line and you will get a wealth of information. There is also a list if legal and illegal foods that you can consume on this diet which is a very helpful resource.
I should mention, that my son's ESR wasn't below 25 for 10 months until we started this diet. He also ate a yogurt smoothie every morning for breakfast with 3 scrambled eggs and cheese. Yogurt gives you that good bacteria. He never cared for yogurt but a smoothie with frozen sliced bananas, some honey, and a cup of yogurt in a blender was managable and good enough to him. You do need to make your own yogurt if you go serious with this diet. Lucy's Kitchen Shop on line can help you obtain that along with the starter enzymes needed to ferment the milk you heat on the stove.
I'm sure I have given you more information than you need but I want to give you hope.
My son was diagnosed with Crohn's disease 5 years ago at age 11 and he is now 16. A week after this diet his diarrhea had stopped. A month after this diet his ESR was 5. Two months after we got on this diet he had a week of what we thought might be a relapse but what I read said there is a sluffing off period in your gut that you can expect around two months so I figure that was what it was. Two months after starting the diet his ESR was a 2. He has been on the diet now 3 1/2 months and he has no symptoms. He is only on Pantasa, 6 pills a day. The Dr. said he could go down to 4 but my son seems to feel more secure with 6. Pantasa has never been enough medicine for him. I anticipate he can get off meds completely after being on the diet 6 months if the Dr. says go for it. What baffles me is that he has no symptoms, no fissures, no stabbing pain, no diarrhea, no joint pain, no exhaustion, no fistulas. He has been taking Lysine for the past 2 years for fissures and that has done wonders.
Hope is a good thing, especially when there are so many people out there that back this diet. If you ever read Breaking the Vicious Cycle by Elaine Gottschall, ( a nutritionist who had a child with Crohn's ) she says once you are on this diet for a year without any symptoms, you can cautiously start eating carbohydrates again gradually. Some people stay on this diet forever, afraid to go back eating breads, rice, potatoes. Elaine's daughter did though in moderation and she has been fine for years, medicine free. The idea is that somewhere along the line you got ahold of bad bacteria that found a home in the lining of your gutt. Antibiotics won't kill it. Sugars and starches feed it and keep it alive. By being on this diet you are starving this bacteria and while your cells in your body are replacing themselves over time, this bacteria dies out.
Wish you the best as you ponder all of this.