Cellcept - interesting info

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 9/24/2008 9:58 AM (GMT -6)   
So my Doc from the Chron's and Colitis center contacted me back about Cellcept.  I may need to go on it for my Kidney's and was hoping it would help my UC too if I did take it (I would have to be off aza, can't be on two immune suppressors at the same time).  Doc says that it helps out 25% of people w/UC and that he would want me to try that before trying remicade.  At least it's another option.....
 
Just wanted to throw that out there to others who may have tried lots of drugs that have not worked for them but not cellcept.  Maybe discuss w/your GI.
 
I try to look at the small percentages and think ok I can look at this one of two ways.  I am in the small percentage of the poplulation that has UC, I am in the small percentage of people who cannot take 5ASA's.............etc.  anyhow.
 
Hope everyone is doing well.  I am at 5mg for two days and 2.5mg of pred one day.  I then will go to 5mg then 2.5mg alt days for a month.  super slow taper.  I seem to get a tiny amt of blood about a week after each taper but then goes away. Please wish me luck, I hope to be off of pred in 2.5 mos 2 days, 3 hours and 47 seconds, but who's counting???????..........moi?
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 9/24/2008 9:59 AM (GMT -6)   
Good luck Beth!!!  By the way...how do you add your meds at the end of your posts?

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 9/24/2008 10:07 AM (GMT -6)   
thanks, click on control panel on the blue menu bar below the google search bar.
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


uckaren
Regular Member


Date Joined Jan 2006
Total Posts : 43
   Posted 9/30/2008 4:52 PM (GMT -6)   

Hi Beth:

I have uc and have had it since 1998.  I'm almost 43 years old.  I have been on Cellcept for almost one year.  I went on it because I had hemolytic anemia and they wanted to remove my spleen and I didn't want it removed.  My hematologist suggested Cellcept and he said it may help with uc as well.  I have to say I still take Asacol and had been on pred. when I was anemic, but I've been off the pred. for quite some time.  I am just getting over a stress induced flair and am doing prep today for a colonoscopy for tomorrow a.m.  I haven't had a c-scope in 2 1/2 years, I hope everything comes out o.k.   I know I was scared to go on Cellcept because I had read it can cause tumors.  If you check out the lupus forum on this site you will find alot of people on Cellcept.  I got alot of info there.  Good luck.

Karen

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