Research treatment for scleroderma may help other autoimmune disorders

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Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 9/24/2008 9:45 AM (GMT -6)   
See Yahoo health section for article "Resetting immune system in bid to beat scleroderma". I would have missed this except that my gastro was involved with scleroderma before focusing on IBD. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

mudua
Regular Member


Date Joined Apr 2007
Total Posts : 459
   Posted 9/24/2008 10:12 AM (GMT -6)   

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 9/24/2008 10:16 AM (GMT -6)   
Geez, that's a nasty disease (most die within the first 5 years)

I for pne would welcome the opportunity to have my immune system reset!
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 9/24/2008 10:34 AM (GMT -6)   
I keep saying, it's all the same disease, the difference is which body system(s) it targets. Great news, and I hope it expands to apply to all autoimmune diseases!

I've seen children with scleroderma - horrible, horrible.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 9/24/2008 12:28 PM (GMT -6)   
My best friend's brother in law died from scleroderma 8 years ago. He was 49 years old. I remember seeing him go through hell with this disease. Very sad thing. Hope they can do something for it soon.
*******Donna*******
 
South of Boston, Ma
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.
 


love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 9/25/2008 9:44 AM (GMT -6)   
Sounds very promising, thanks for sharing it with us.
 
 
Dx:  UC Proctitis 2006 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence. 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering, stopped. 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 Added: tumeric and probiotics.
 
 

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