Asacol and intolerance/allergy

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sadgirl1984
Regular Member


Date Joined Aug 2008
Total Posts : 55
   Posted 9/24/2008 2:20 PM (GMT -6)   
Hi..am pamela 22..diagnosed with uc since june 08. i have been on asacol since then..the problem is that i have never felt good even 1 day since i take that..i feel even worse..my cramping got worse..n i get extreme ab pain..plus am now having joint pain all over (am off work since 7 weeks due to that)..
 
cd it b an allergy to asacol?can som1 b intolerant to sascol?am so confused!i told my doc who told me to continue bcz asacol is the best!but i feel so baaad with it

DDR11
New Member


Date Joined Aug 2008
Total Posts : 16
   Posted 9/24/2008 4:33 PM (GMT -6)   

I have joint pain every time I have a flare.  I almost always know when I am going to start flaring because, I get horrible lower back pain which just never seems to go away.  This is usually a few weeks before.  I also ache horribly in my knees and hips.  Then the mucas starts and then.....I am heading to the doctor again.

I have been on Asocol for 10 years.  For me, I don't think the joint pain is from the Asocol, just part of having this disease.  I have been fortunate that I don't seem to have any side effects from the Asocol.  However, I think I am reacting somewhat to the Rowasa.  This makes me curious because I think they are the same type of medication, just goes in the other end.  But, I seem to just feel fluish all the time since starting back on the Rowasa.

I would definately talk to your doctor though!  Good luck.  :)

 


Have had UC since 1998. 
 
Current Meds:
Prednisone:  27.5mg
Imuran:  100mg
Rowasa: Nightly
Asocol:  3600mg/day
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 9/24/2008 4:33 PM (GMT -6)   
Some minority of us react to asacol and other mesalamines with increased cramping, diarrhea and nausea. Within two weeks of starting Asacol I had to stop it because I was so much worse. My doctor put me on Colazal and I tolerate it well. I know there are several of us here who can't take Asacol but do well on Colazal. I'd suggest you talk to your doctor again - or seek a second opinion if he won't listen to you.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


sadgirl1984
Regular Member


Date Joined Aug 2008
Total Posts : 55
   Posted 9/25/2008 12:33 AM (GMT -6)   
Yeah judilyn i think am reacting very badly to asacol. n i am going to talk to my doctor today abt it.

sadgirl1984
Regular Member


Date Joined Aug 2008
Total Posts : 55
   Posted 9/28/2008 5:13 AM (GMT -6)   
i talked to my doc. he doesnt want to chane the asacol! am so upset. i tel him that i dont feel well with it. n he doesnt care. can i change to another pill myself?i wana try colazal or lialda

Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 9/28/2008 5:17 AM (GMT -6)   
I do fine w/ asacol - funny how different we all are. I have joint pain - has settled down a bit because my flare isn't at it's height right now. But the joint pain is part of this ugly disease.

Gigi1227
Diagnosised 8/25/08 GRRR
 
Canasa
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
 
Feel like I am headed into remission! 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/28/2008 7:59 AM (GMT -6)   
No, you can't switch on your own but you can switch doctors. If this doctor is not going to listen to you then by all means find one that will.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 9/28/2008 2:25 PM (GMT -6)   
Hi..how many asacol are you on?

You should, however, discuss with him for you to also be on rectal meds of some kind....

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


sadgirl1984
Regular Member


Date Joined Aug 2008
Total Posts : 55
   Posted 9/29/2008 2:13 PM (GMT -6)   
4 per day!

wat r rectal meds?never heard of them!

quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 9/29/2008 2:23 PM (GMT -6)   
They're either retention enemas, foam enemas, steroid or 5-ASA (like ASacol) as well as supposiories in either steroid or 5-ASA.

Consider UC starts at the rectum....that's why you should/need to be on rectal meds.

It could be that you're not on enough meds treating both ends...not that you're sensitive to 5ASA meds.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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