Carbohydrate Intolerance Test

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kaykay29
Regular Member


Date Joined Aug 2008
Total Posts : 28
   Posted 9/24/2008 5:25 PM (GMT -6)   
To make a very long story short:  I have basically been flaring non-stop since July with only a let-up of the bleeding/diarrhea for a few days in a row, but never a total resolution of it.  I have been using Canasa, Rowasa, etc.  I cannot tolerate the Pred anymore as I get swollen ankles so bad I can't walk (among other delightful things).  Anyway, I had a CT of the abdomen last Monday which my Dr says was "essentially normal."  Yesterday I had an upper and lower endoscopy and he said things visually "looked good" but of course the biopsies are pending.  My main problem on top of the nonstop diarrhea/bleeding is intolerable left-sided pain whenever I eat (a few minutes after) and the number of "accidents" I have every day.  Today they scheduled me for a "carbohydrate intolerance test" next week.  They will be testing me for fructose intolerance first and lactose intolerance the next week.  I honestly don't think I have a lactose intolerance because sometimes when I am really sick all I eat is dairy (specifically ice cream, yogurt) and I actually get better in a couple of days.  Anyone had any experience with these tests??? 

Dx UC 1979 at age 14 - (I know, some kind of record)
Was Mildly Chronic (flares every couple of years) until last 2 years now Chronically Acute
Can only get about a month symptom free between flares now
Asacol, Canasa, Rowasa, Cortifoam (on Sulfasalazine for 28 years previously also Pred)
GI Doc recently told me I have "lead pipe syndrome" which is advanced scarring of colon
No surgery - multiple colonoscopies reveal uc "from rectum to appendix"
My Best Friend is My Shih Tzu/My worst enemy is uc


Tea42
New Member


Date Joined Aug 2008
Total Posts : 14
   Posted 9/24/2008 6:12 PM (GMT -6)   
Hi,
they tested me and I came up positive for glucose intolerance. Which explained alot. I always felt sick after eating and since I'm not eating sugar anymore I'm feeling much better. When I do feel ill, I can trace it back to fruit that was too sweet (bananas especially). I've really cut back on my carbs too since my doctor said that would help too, and it has. They found out mine through a blood test, is that what they are doing for you?

kaykay29
Regular Member


Date Joined Aug 2008
Total Posts : 28
   Posted 9/24/2008 6:19 PM (GMT -6)   
No, I have to drink some fructose-infused liquid and then I blow in a breathalyzer every 30 min for 3 hours total.  (I have to stay in the waiting area for three hours and they call me back for the testing.) This is how they measure the amount of fructose that is not absorbed.

Dx UC 1979 at age 14 - (I know, some kind of record)
Was Mildly Chronic (flares every couple of years) until last 2 years now Chronically Acute
Can only get about a month symptom free between flares now
Asacol, Canasa, Rowasa, Cortifoam (on Sulfasalazine for 28 years previously also Pred)
GI Doc recently told me I have "lead pipe syndrome" which is advanced scarring of colon
No surgery - multiple colonoscopies reveal uc "from rectum to appendix"
My Best Friend is My Shih Tzu/My worst enemy is uc


men8ifr
Regular Member


Date Joined Jul 2008
Total Posts : 124
   Posted 9/25/2008 8:32 AM (GMT -6)   

It's really good they are testing you for that I guess you are in the US I would love to be tested for that in the UK.

RE Lactose in cheese yoghurt etc the lactose is eaten up by the bacteria so none or little is left for you to react to milk however has loads which a lot of people react to.

I've never even heard of the carbohydrate intolerance test how does that work there are hundreds if not thousands of IBDers on a diet that specifically excludes carbohydrates however I guess it would be nice to have a test to see if you are not digesting or reacting to them...

Please keep us updated on how you get on and how they do the tests.

 

 


Ian

6 Asacol tabs/day
1 Pentasa Suppository / day
Fish oil 3/day (omega 3 only)
Multivitamin and mineral 1/day
Folic Acid 1/day
Aloe Vera 3/day
Specific Carbohydrate Diet SCD
Turmeric 3/day
Currently in no mans land between flare and remission


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 9/25/2008 8:46 AM (GMT -6)   
I've been tested for celiac etc but not for carbs overall...a carb specific test never been mentioned to me..I'd be very curious to see how I did on that as I eat lots of carbs but also with a good balance of protiens etc


Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!

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