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spudly
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 9/25/2008 12:56 AM (GMT -6)   
Hi Guys,
I saw my consultant yesterday and had a camera done! The disease has spread a lot further into my colon now and I am booked in for a full colonoscopy in October. He didn't want to go any further yesterday as he said I was pretty inflammed and I was in a lot of pain even with the sedation and gas/air. He has started me on 30mg pred tapering over 5 weeks, and also 2 x predfoam daily. I found the Proctitis bad enough to live with but these symptoms have been so different this time (re. my post from 20/9), I am really tearful and not looking forward to dealing with whatever my body decides to throw at me now! What worries me is that I work in an open plan, air-conditioned office with 200 people all in the same area. I seem to pick up every bug going and am concerned that my sickness levels will now go through the roof. I had 7 weeks off at the beginning of this yr due to bad Proctitis flare and i'm in my 2nd sick week this time and my doc has signed me off for another month. I'm wondering if I should quit my job and try and find work from home? This is so debilitating. At the moment I feel emotional and confused and in need of some advice/help as I feel like I am starting out with this darn disease all over again!...sorry to moan! x
Diagnosed with Proctitis in Sept 2006.
3 x 3 Colazide daily,Pentasa supp one a day,Predsol 1 x daily, vit c, ecinacea, aloe vera tabs, multi vit, pro-biot,pre biot, colofac and fish oil


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 9/25/2008 3:12 AM (GMT -6)   
Spud, hang in there, hopefully your gastro can find the right answers for you. Have you tried anything too boost your immune system and decrease inflammation? And as you know this board is a great place for seeking advice as we have all been thru the same thing. Dont quit your job, wait for this thing to turn around, good luck,
----------------------------------------------------

yuckygut

diagnosed 1998

now off prednisone and colazal

drink 1 Haldi daily

tums
Regular Member


Date Joined Apr 2008
Total Posts : 128
   Posted 9/25/2008 3:17 AM (GMT -6)   

I know how you are feeling but hopefully once they get your meds sorted out now that the disease has progressed you will start to feel better and have a different outlook.

You are right this is a debilitating disease, I was diagnosed back in 2001 and still fully haven't accepted it, I still get very teary when I am unwell and think why me? but you really have to try and look on the positive side.  My brother eventually had surgery for UC and although at the time it was very traumatic (I didn't have UC then) he now lives a med free life and is never ill and I remember him saying to me that at least with this disease they can take the affected organ (colon) out and you can live a pretty normal life but with any other diseases e.g liver, lung, heart, kidney you can't live without the organ so in some respects compared to people living with these diseases we are lucky. Although saying that I know when you are unwell it's very hard to think like that.

I did change my job, I used to work in the financial services where we under pressure to make certain sales and targets and when you are unwell most of the day and trying to deal with that it's very hard. I quit that and now work in the evenings (which is when I feel most well) and it has worked out a lot better. Also it is a very stress free job that I have, just the way I like it.

Best wishes to you and I hope you turn the corner soon and start to feel better.

 

 

 


32 year old female
UC diagnosed 2001
Asacol 6 per day
Azathioprine 100mg started 4/08
Steroids 5mg per day


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/25/2008 6:16 AM (GMT -6)   
Having Uc is an emotional rollercoaster. Having this disease is not only debilatating to your body but your mind as well. Sometimes it helps to see a therapist to talk out your feelings. Preferably one that specializes in chronic illnesses. I was in the same boat as you. I was first diagnosed with Ulcerative Proctitis and over the years it had progressed to left sided. Luckily it has not advanced even further - not sure if that is because of genetics or because I slapped myself in the head and told myself to take this seriously and to stick to a strict medication regimine. But there has been many of times that I would start flaring, feeling like crap and just bawl like a baby doing the why me's. That is all part of the game and feeling sorry for yourself is allowed but don't let it rule your life. Tums is so right when she says that there are much more serious conditions out there that you could have. I try to tell myself this as much as possible. It puts things in perspective for me. Of course, I know what we have is serious too but at least it is not a death sentence - though it can feel like it at times! Hang in there and remember to think of all the GOOD things in your life.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
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spudly
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 9/25/2008 7:24 AM (GMT -6)   

Thanks all of you, its good to know that other people understand where I am at. I am just in shock at the moment, I assumed Proctitis would remain Proctitis and it would stay the same indefinitely!...wishful thinking eh!

Tums- my job is in financial services and sales/target driven,I couldn't believe it when you posted your reply. Perhaps it's the nature of the job that stresses me...among other things!

I think I will wait until full exam done in October and decide where to go from there,but think I will either reduce my hours or try to work from home, although not too many opportunities for that here in the UK.

 

 


Diagnosed with Proctitis in Sept 2006.
3 x 3 Colazide daily,Pentasa supp one a day,Predsol 1 x daily, vit c, ecinacea, aloe vera tabs, multi vit, pro-biot,pre biot, colofac and fish oil

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