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DisasterGlitch
New Member


Date Joined Sep 2008
Total Posts : 8
   Posted 9/25/2008 5:18 PM (GMT -6)   
Heys.

I recently got told I have Ulcerative Colitis, and I came out the hospital nearly two weeks ago.
I signed up on this mainly to get information about a problem im concurned with.

After my trip to the hospital, my bowel habits have improved greatly but theres just one problem I have now.
I get random urgent bowel movements sometimes and it just scares me to go out of the house whenever I want to.
The worse thing is, I'm 17, and I already missed my enrollment for college due to being in hospital at the time, and I have to go in to sort it out tomorrow.

Can anyone provide me with some info as to how I can control my bowel movements at all?

Thanks in advance.

Post Edited (Ashthefenriswolf) : 9/25/2008 6:00:37 PM (GMT-6)


Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 9/25/2008 6:56 PM (GMT -6)   
I'm new to, to all of this so I don't have advise. But I have a ~hug~

DisasterGlitch
New Member


Date Joined Sep 2008
Total Posts : 8
   Posted 9/25/2008 6:57 PM (GMT -6)   
Hehe, thanks -hugs back- =]

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/25/2008 7:11 PM (GMT -6)   
Hello! Welcome to HealingWell.

I can't give any advice on how to control bowels; I mean, if you have to go, you go! How mild/severe is your UC? What meds are you on? Meds usually take a few weeks to kick in, so maybe in the next week or so you'll lose the urgency.

Good luck with the enrollment stuff tomorrow! (Just a suggestion: you may want to think about signing up w/ your college's disability services. They can help you w/ finding housing, explaining to professors about UC, etc)
Female, Age 19
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


DisasterGlitch
New Member


Date Joined Sep 2008
Total Posts : 8
   Posted 9/25/2008 7:16 PM (GMT -6)   
I don't really know much about it. I think i remember the consultant telling me it isn't too bad though. Atm I'm on 2g of Pentasa twice daily, and 30mgs of Prednisolone, and 1 adcal D3 tablet. (Just realised I'm spose to be reducing the prednisolone by another 5mgs lol)

And thanks. =] (Yeah, I read up about that on a website the consultant told me about, but I didn't really understand it to be honest. >_<)

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 9/25/2008 10:03 PM (GMT -6)   
17 with UC geez : (

Feel better and hopefully the meds will get you under contril asap.

How did they catagorize your disease, mild, moderate severe etc and where is your colitis?

With UC your brain is basically sending too many white blood cells to attack healthy intestinal tissue which causes the inflammation and ulcers etc.

One good thing about having UC so young is that IF you need the surgery you should be much better before you even hit 20 and your quality of life can be preserved and for the rest of it.
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


DisasterGlitch
New Member


Date Joined Sep 2008
Total Posts : 8
   Posted 9/26/2008 3:11 AM (GMT -6)   
Yeah, it does suck. I'm getting used to it though >_<

Thanks, and yeah, I really wanna get it under control cause I pretty much have no life atm. lol

I think they catagorized it Mild-moderate, but I can't really remember where though.

Ah right, now I can actually tell my friends what it is without looking like an idiot. xD

Yeah, I spose thats good. I just don't like the idea of having my body cut open and one of my organs taken out. Lol.

Thanks for the replies guys. Its good to know I've signed up to something where people can and usually do help. =]

dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 9/26/2008 6:02 PM (GMT -6)   
Welcome to HealingWell! Sorry you had to find us, but we're glad you did :)

For our newbies to UC, I suggest reading "The First Year: Crohn's Disease and Ulcerative Colits" by Jill Sklar. You can find out more about the book by visiting the book store link above in the yellow bar. The author has Crohn's Disease and really explains things well for those just diagnosed. The book will help you understand the disease and treatment options.

Another good source for information is the UC Resources thread at the top of the topics list. Also reading through old posts will provide a lot of info.

Hope to see you around the boards! Don't be afraid to ask more questions.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next infusion: 10/07/08
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 9/26/2008 6:35 PM (GMT -6)   
Hi, and welcome to Healingwell. When first dxed, it can be a really scary time. So many questions...What can I eat? What can't I eat? Am I always going to be using the crapper 15 times a day? What does blood in my stool mean? How are different meds going to affect me? Is the urgency going to be with me forever? A week or so ago, another newby was asking many of the same question you are, and the info that the UC vets gave out was simply marvelous. I think it should be required reading for all new members on the forum. Here is a link to the thread:

http://www.healingwell.com/community/default.aspx?f=38&m=1247440
The thread is titled : I just got diagnosed with UC...help!
Sorry that you'll have to copy and paste the above link. I'm not savvy enough to make a link be accessible yet.

It sucks to be missing so many teen social activities because of this illness. The sooner you can get yourself med stabilized, the better off you will be. Unfortunately, there aren't magic pills to take that will reduce symptoms immediately and keep you feeling 100% forever, but with the right med regime and following a diet that work for you, hopefully you can get thing under control and begin to get out and enjoy yourself again.

I was dxed with UC at 33, and it took me awhile to accept it, but it seems like most younger people new to the dx are be able to show a maturity beyond their years, and they quickly start to learn to take care of themselves. Don't be afraid to post any qusetions, regardless of how gross you might think it is. Common conversations around here center around bowel movements and other things that you just can't talk about with people who don't understand UC. The people on this forum not only understand, but have probably gone through it themselves. This site is a great resource, and the people here genuinely care. come back visit anytime.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06 - currently flaring
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort retention fluid, Prednisone 15mg and tapering down


DisasterGlitch
New Member


Date Joined Sep 2008
Total Posts : 8
   Posted 9/26/2008 6:47 PM (GMT -6)   
Heys, and thanks again guys.

I'm already kinda familiar with what UC is doing and stuff and why theres blood in the stools etc, its just the diet thing that I need to understand. As I said in the first post, its justy the bowel movements thats annoying me right now, and as I've not long recieved my timetable for my college course, I'm gonna need to go in pretty soon.

I've already accepted the fact that I have a IBD and its gonna change my life a bit. To be honest, I haven't really had trouble with telling other people about it either, the majority of my friends know about it and most of them have my back aswell. Its a shame about the 'magic pills' thing, would be amazing in my situation. Lol. I kinda wanna get out and have some fun for once as I've been housebound a month before I was in hospital, In hospital for 2 weeks, and housebound after hospital for 2 weeks, and I'm getting kinda bored. I just don't wanna risk having any accidents while I'm out with friends.

Yeah, I realised that myself recently that alot of people around my age are getting more mature towards things like this. When I mentioned this to people on my MSN contact list, there was only 2 - 3 people out of around 30 people (all around my age) that actually said anything negitive about it. I'm sure I'll be coming back here sometime soon with more questions, as I don't fully understand everything, as you could probably guess, and I hope that I could eventually be of help to someone on here.

Thanks again for your time. =]
Male, 17, Diagnosed with UC 12/8/08

Currently taking:
Pentasa, 2g twice daily.
Prednisolone, 30mg once daily.
Adcal-d3, One tablet daily.


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 9/26/2008 6:58 PM (GMT -6)   
The diet thing is one of the toughest topics to cover. This is a very personalized disease, and what works for one might not work another. Since you seem to already have a good grasp of UC, I'd like to recommend to you that you begin to keep a food journal. Just list what you ate in a particular day, and when you ate it. Leave room for a column to describe how you think that food affected you. Keep in mind that foods often take up to 24 hours before you see the effects. The journal has helped me to identify so many things I would have missed. For a long time, I kept saying I had the journal in my head, no need to write it down. But actually seeing, on paper, all that info, it really made things more obvious to me. Come on back anytime.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06 - currently flaring
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort retention fluid, Prednisone 15mg and tapering down


DisasterGlitch
New Member


Date Joined Sep 2008
Total Posts : 8
   Posted 9/26/2008 7:03 PM (GMT -6)   
Ah... A journal... One of my worst enemies... Lol
I don't really like writing much, and my memory is a bit sucky so I'd more likely forget to write things down. But I'll give it a shot sometime. What kind of effects would I be looking to write down? Because at the moment, the only thing I've had, as I mentioned in the previous post, was the bowel movements, but I think its too early to think thats the only effect eating is going to have on me, and I think it would be better if I was more aware of what other effects could happen and compare them to what actually happens.

Thanks again.
Male, 17, Diagnosed with UC 12/8/08

Currently taking:
Pentasa, 2g twice daily.
Prednisolone, 30mg once daily.
Adcal-d3, One tablet daily.


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/26/2008 10:40 PM (GMT -6)   
The book that dakotagirl recommended is very informative; I would suggest it even if you feel like you know a lot.
 
I would also recommend doing a food journal for a month or so. UC is a very individual disease, so diet differs for everyone. Also, doctors don't spend much time researching diets, so there's not just one diet that we know of that can help or cure UC. After keeping a food journal, I realized that I can eat just about anything as long as it is in moderation, and I just try to keep spicy, fried, and sour foods to a limit. If bleeding is not much of a problem for you, then some of the symptoms to look for would be looser stools and cramping.   
Female, Age 19
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


neednewbody
Regular Member


Date Joined Sep 2008
Total Posts : 59
   Posted 9/26/2008 11:20 PM (GMT -6)   
when i have to leave the house during a flare up, I take immodium one hour before i have to to out (to agive it time to take effect)
I try not to eat when I am out... if I eat, then i wait in the food place (all food places have to have washrooms - there is a public health law) I wait until I have to go. depends how much I eat and how long after the immodium
if I am out for more than 4-5 hours, I take another immodium if I feel like things are moving around in my bowel or i have gone to the washroom with urgency, etc.

but, caveat.. dont take too many immodiums in a row without letting yourself go. This can be very uncomfortable... lots of gas and cramps... I have done this to myself too many times.
Liver transplant 2004 -- liver is only healthy part of me
 
Remicade every 6 weeks - not working
pentasa 1500mg tid
palafer once daily
lomotil every day as needed
immodium every day as needed
 

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