Is this a flare up? ... and other stuff. I'm new to this so please help me out.

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WildGoldn2
New Member


Date Joined Sep 2008
Total Posts : 17
   Posted 9/25/2008 5:38 PM (GMT -6)   
Hi,
 
I was diagnosed with Pancolitis on 3/31/08.  I was put on two Lialda's in the morning and they got me back to almost normal.  Recently I have had a lot of stress because of other health problems.  I have so much anxiety and stress that I don't know how to handle and I think it has caused me a flare up.  Tell me what you think ... here is my story.  Last Thursday night we were at a wedding and I ate too much, which never is a good thing for me.  Friday and Saturday I had D.  I called the doctor on call on Saturday because I didn't know if this could be just like a normal person having an upset stomach from eating too much or a flare up.  He said to wait and see how I do over the next few days.  Over the next few days my stools became a bit more formed.  Meanwhile, all I've been eating is rice, plain pasta, bananas, potatoes and a little beef (I don't eat chicken or fish).  Today I had D again and there was blood in it, about a dime size so I called the doctor on call because my doc wasn't in.  He said the Lialda isn't working and to up my dose to 4 pills a day and see how it goes for 2 weeks.  Would this be considered a flare up?  Personally, I think so because this is how I was before my diagnosis.  The doctor told me if the Lialda doesn't work we will have to add another drug or swich drugs.  He mentioned Prednisone.  Okay, that's enough to give me even more stress and anxiety!  I do not want to have to go on that drug.  Can you please tell me what other choices I have?  Also, considering the fact that I'm so stressed out, I am thinking about starting Lexapro.  I've had the prescription since my diagnosis but never took it because when I mentioned I had gotten the it from my regular doc, my GI said "you don't need that, you will be fine in 2 weeks".  This doctor is a real winner by the way!  She's the same doc that makes colitis seem like the common cold.  Tells me all the time "just go live your life".  How do you just go live your life when you aren't feeling the greatest and having to run to the bathroom all the time?!?!  I'm in the process of finding a new GI.  Anyway, is anyone on Lexapro and if so, how does it work for you?  I'm kind of scared to take it.  I worry about side effects.  I'm losing a lot of hair and I think it might be from the Lialda or stress ... who knows.  I don't want anymore side effects. 
 
Thanks for any advice you can give me.  I appreciate it so much.  I'm really scared about what the rest of my life will be like.  I have a almost 4 year old son who is really suffering seeing his mommy like this.  We are also in the process of adopting a newborn and I'm really worried I won't be able to go through with it if I stay the way I am.  :-(
 
Tami

ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 9/25/2008 6:11 PM (GMT -6)   
I would say if you're having blood then it's likely you are flaring. But it could also be internal hemmorhoids so there are other explanations. But anxiety and stress can certainly make things worse- it always does for me. I am on Lexapro right now actually, have been for about a year, and I must say it really has helped. Not so much with my actual colitis symptoms, but it has helped me cope a lot better and it has helped me get out and do things and make friends where I was terrified to before.

I would try to find a doctor that you like and trust and one that you can build a treatment plan with- it gets really confusing when there are "too many cooks in the kitchen" ie: too many doctors telling you what to do! And the one that treats UC like a cold has no business being a GI in my opinion.

It sounds like you have a lot on your plate right now! I know the prospect of having a lifelong disease is scary- trust me I still think about the "what if's" constantly but the best thing to do is just take it one day at a time, try to find something that works for you (for some people it's easy, others it takes longer) and try to relax and take a deep breath when you're feeling frazzled :)

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Sulfasalizine 3000mg/day

 
 

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