In his defense, I could have been off the prednisone when I saw him. I weened myself off for two weeks in August, I saw him August 14th, but was still bleeding a bit, not bad. He examined my rectum and it was after that visit that my symptoms started getting worse. Guess he stirred things up in there. I had to go back on 30 mgm of prednisone with slow taper. Two weeks ago was weened off again...symptoms back, bleeding, urgency. My GI doctor said to start with 40 mgm of prednisone this time for only five days then to taper to 30 for five days. He sees me on Oct 6th ( I am sure he is going to mention Remicade again) and by that time he wants me down to 20 mgm. Believe me my GI doctor is sooo frustrated that he cannot help me. Remicade is not an option because I was exposed to the TB virus back in the 60's and Remicade can activate the TB virus in your system. His associate disagrees with him too...said I am NOT a candidate for it. How can two men in the same practice disagree like this??? His associate actually witnessed a patient die from the Remicade infusion for the same reason I am not a candidate for it. Scary huh?
To tell you the truth, I was a little surprised that the surgeon said I was not a candidate for surgery either. These guys usually like to cut.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Still flaring. Afraid that I am pred dependant. Back on Pred 40 mgm for five days, then taper. Other meds...Colazal, 6MP, Nexium, Cort enemas, Canasa suppository, Benicar, Toprol xl, water pill.
Calcium, Probiotic, Flaxseed oil capsule, multivitamin with Iron
Also have osteoporosis and high blood pressure
Remicade NOT an option. Not a candidate for surgery yet..says surgeon.