Yep, we are all different. I was diagnosed ten years ago, in the hospital, very sick. Enjoyed two years of remission, while off all meds (Asacol and Prednisone). In 2000, experienced another flare, short term pred, back on Asacol. Back in remission after two months. Then another flare in 2003, doc started me on Colazal because my problem is in rectum and 6MP along with prednisone. Getting flares every year now and this one started in April and I am still flaring. Cannot get off the prednisone for longer than two weeks at a time. So basically I would say I am prednisone dependant. You can see by my lengthy statement below what meds and supplements I am on.
Everyone is different. Unfortunately, they don't know the cause of this and therefore, no cure. By the way, my GI doctor wants to send me over to the Univ. of Pa. Hosp. I live in south Jersey. However the doctor he wants to send me to, I heard was a specialist in Remicade and he knows I was exposed to the TB virus back in the 60's and Remicade can reactivate the virus and it could be fatal.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Still flaring. Afraid that I am pred dependant. Back on Pred 40 mgm for five days, then taper. Other meds...Colazal, 6MP, Nexium, Cort enemas, Canasa suppository, Benicar, Toprol xl, water pill.
Calcium, Probiotic, Flaxseed oil capsule, multivitamin with Iron
Also have osteoporosis and high blood pressure
Remicade NOT an option. Not a candidate for surgery yet..says surgeon.