Hi neednewbody...I do too..lol.
I have been in a flare since April. My GI doctor has never mentioned surgery to me, so I took matters into my own hands in August. I saw a top notch colorectal surgeon and guess what? To my surprise he said he did not recommend I have the surgery. Now, mind you, when I saw him I was off the prednisone for two weeks, still had some bleeding and urgency. He had a look "up there", did a tad of scraping and said it didn't look bad. He read over my colonoscopy results which was done while I was hospitalized in May. In his very knowledgeable opinion, he said he considered my ulcerative proctitis...mild!!! Well, if this is mild I sure hate to see what severe is.
about a week later, I still felt the results of his exam and started to bleed more with urgency and six or seven bm's. Had to go back on the prednisone. Tapered off two weeks ago and guess what....back on the prednisone again!!! This is getting old and I am getting very annoyed. I don't know what else to do. My GI doctor wants to send me over to the University of Pa Hospital to see some Remicade specialist but he knows darn well I am NOT a candidate for Remicade. You realize these doctors get kick backs from these drug companies don't you? My neighbor has her doctorate in pharmacy and works for the company who manufactures Remicade and she didn't want to admit that is the truth..but she didn't deny it either.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Still flaring. Afraid that I am pred dependant. Back on Pred 40 mgm for five days, then taper. Other meds...Colazal, 6MP, Nexium, Cort enemas, Canasa suppository, Benicar, Toprol xl, water pill.
Calcium, Probiotic, Flaxseed oil capsule, multivitamin with Iron
Also have osteoporosis and high blood pressure
Remicade NOT an option. Not a candidate for surgery yet..says surgeon.