Thank you all for the support and advice! And yes, definitely the stress level has been higher than normal around here. It is breaking my heart to see tears everytime we go to preschool, and I am paying for this!!
But back to the pred-my highest dose was 40mg and I started that at the beginning of April. I started tapering off of it after being on the highest dose for about
9 weeks. They had me taper 5mg/week until I got to 20mg, then 2.5mg/week from that point on, so it took a few months to taper off completely. There are still plenty of other things I am still dealing with from the pred, so I know patience is key on this, but I hate the way I am feeling. The physical side effects don't seem to bother me as much as the mental.
I will definitely let my doctors know what is going on and see what they have to say.
33 years old, stay at home mom of 2 girls, ages 3 and 22 months
Diagnosed in 2007
Prednisone -DONE!!!! Last dose was 8/27-still having joint pain and also experiencing lots of fatigue and some edema-being told to just hang in there!
Biweekly injections for Humira clinical trial-going well so far!!