what started this for you?

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Blue587
New Member


Date Joined Sep 2008
Total Posts : 12
   Posted 9/28/2008 5:40 PM (GMT -6)   
I have a question for those who were diagnosed with UC in their late teens or later.

For me I wasn't diagnosed until i was about 18 1/2 yo (3 yrs ago). A few months before I was diagnosed I got in bad cut from working outside landscaping (cut my finger deep with an electric hedge saw) and I needed to go to the ER and get a Tetanus shot and stitches, etc.. A few weeks later... I began developing the symptoms of UC and then when it got to the point when I became too sick to be embarrassed about the diarrhea and blood I came out to my parents and doctor.

Now my question is did anyone who was recently diagnosed or anything remember any traumatic events that happened before you were diagnosed?


I read in an article a long time ago that people who have UC has always had the problem in their genetics but it takes something to spark it. I wish I could remember where I saw this article but it was when I was first diagnosed I was looking up everything.

--thanks
-Diagnosed Fall '05. UC and PSC
-Current Rx: Asacol 6 BID (4.8g) ; Urso Forte 1 TID (1.5g) ; Vitamin B Complex; Prednisone 10mg QID (40mg); Allopurinol 50mg; 6-MP 25mg


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 9/28/2008 5:58 PM (GMT -6)   
I was 16 when I was diagnosed. I went to the dr and they found that I had h-pylori so I was put on antibiotics. I ended up ODing on them and it wiped out all the natural flora in my system. We (meaning my parents and I) think that that is probably what started it all because I was diagnosed about 6 months after that. We do have a lot of autoimmune diseases in my family so genetics very well could have lend a helping hand.
Sam 19 year old college student
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, 600mg calcium with vitamin D
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/28/2008 6:32 PM (GMT -6)   
I am convinced that I developed UC because I used Accutane. The timing is just too suspect. Accutane of course kills the bacteria that causes acne...and apparently more. There have been at least two largement judgements against the manufacturer of Accutane because of this, and the litigation continues. I don't normally advocate suing drug companies, but looked into it. My case is too old (records are gone) to pursue a case. I was 25. No one in my family has ever had digestive or autoimmune issues.
My Naturopath says he is also noticing cases of men who have used baldness medication.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA maintenance for 20+ years, usually 3 pills 2x day. Use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free diet, also none of the other foods tested sensitive to (cow's milk, soy, tomato, egg white, others)
Achieved remission for the first time in many, many years! 
Replete probiotic. Slow-release iron and B-12 shots for anemia.
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 9/28/2008 7:01 PM (GMT -6)   
Mine seemed to appear out of thin air.  I hadn't taken any antibiotics.  I had recently switched birth control pills but was told that there's no chance it was the cause.  I did have a baby a year and half earlier.  Leaving my job to stay at home with him was pretty traumatic and stressful.  It was quite an adjustment and the only thing I can think of that may have brought on the UC. 

Katie, 30.   Chicago 'burbs.
DX:  Pancolitis
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 3X daily, Zoloft 50 MG daily, Bentyl 20 MG and Tylenol (as needed).
Diet/Exercise:  Avoiding trigger foods, eating very healthy.  Yoga or walking, when possible.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare
 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 9/28/2008 7:24 PM (GMT -6)   
I think almost everyone can think of something to blame for the onset, but then that would be true of any disease. Just because two things are close in time doesn't necessarily mean one caused the other.

I can't think of anything terribly unusual, although I'd been having other autoimmune issues for some time.
Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 9/28/2008 7:47 PM (GMT -6)   
I was diagnosed when I was 25, but I was symptomatic since I think 1993 (5th grade for me). In 1993, my dad was going through the Ulcerative Colitis situation, in and out of the hospital, my mom spent most of the time at my dad's side in the hospital. He ended up having his colon removed with a reconnect surgery later on, but I never knew I was developing it til last year when I got a job with a boss that reminded of a horrible life growing up at home. Every time I approached her I would break down and cry. So, I think that triggered that MAJOR flare, but I know I was symptomatic for quite a while but didn't know what it was.
26 year old, Married, Female.
Diagnosed with UC since March 2007
Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 9/28/2008 9:36 PM (GMT -6)   
The only thing I can think of is I had just started my first full time job after college. I absolutely hated it, was extremely stressed out, sleep deprived and depressed because of it. Although, I did notice the first slight spots of blood a couple weeks before I started the job, so I guess I had the beginning stages beforehand. I had also been drinking more than I ever had in the past (I'm not a real big drinker, but was drinking to the point of throwing up at least once or twice a week for about a month or two before seeing the blood), so I've always wondered if that played a role. I also had mold in my apartment bathroom for a year and a half before getting UC. I tried cleaning it off, but it always came back.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 9/28/2008 10:52 PM (GMT -6)   
I truly honestly don't think it was just a coincidence. The same thing happened to me when I was a baby and I had problems with my ears. They often say it just needs a trigger and that is true of various diseases.
Sam 19 year old college student
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, 600mg calcium with vitamin D
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 9/28/2008 11:36 PM (GMT -6)   
Back in May of '06, I developed a bacterial infection in my digestive tract. Through stool cultures, it was eventually dxed as a c diff infection. It took 2 rounds of flagyl, and two round of vancomycin to get rid of the infection. At the time, I was getting ready to complete a trade school program, and my plan was to move to another state immediately after graduation to a job I had lined up. Due to the infection, I ended up postponing leaving, and wound up hanging around being sick for a month. I pushed to get a c-scope, because I wanted to be sure there wasn't any underlying cause for the c diff infection. (Main causes for getting a c diff infection are being on antibiotics, being elderly and in a hospital/nursing home, or travelling out of the country). I fell into none of those categories. Well, my c-scope revealed that I had colitis, and I was imediately put on Asacol. Prior to the infection, I had had blood in my stool occassionaly, but I had never had anything even remotely resembling a full blown flare, and I always assumed the blood was hemmies. After the infection was cleared up, I was put on Asacol and a probiotic, which kept the UC under control to the point that I doubted I actually had it. Then I stopped the Asacol, and all doubt of my having UC was erased from my mind. Do I think the c diff brought on the UC? No. I think I was genetically predisposed to UC, and it needed a major upset to get going. 7 years earlier, I had giardia, that took 2 rounds of flagyl to eliminate, but I didn't notice any UC stuff after that. For me, it took a major imbalance (like an extremely hard to eliminate infection) to get things revving up, and once it happened, there is no going back. Now I'm trying to get back into remission, and I have an appreciation of what a flare feels like. I will be more carfeul in the future to do what is necessary to prevent a flare.  And I avoid antibiotics unless it is absolutely a last alternative.


Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06 - currently flaring
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort retention fluid, Prednisone 15mg and tapering down

Post Edited (beartooth) : 9/29/2008 4:53:20 AM (GMT-6)


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1198
   Posted 9/29/2008 1:32 AM (GMT -6)   
Flu medication and Antibiotics. But most of all I remember a severe anxious time and general anxiety which caused my problems.

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Asacol Enema, 800mg Asacol Tablets x 2 a day.


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/29/2008 6:34 AM (GMT -6)   
Lots and lots of anitbiotics because I was always sick and my hubbys gma's poisonous turkey (food poisoning) is what I believed to have triggered mine.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/29/2008 9:54 AM (GMT -6)   
My symptoms also started at 18 1/2. I was really really stressed out in all of high school and I was just getting over depression, so I think all that triggered my UC. If only I could go back and change things...
Female, Age 19
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3670
   Posted 9/29/2008 10:51 AM (GMT -6)   
Stress at work (the emotion of fear) binge drinking, taking advil sinus and cold all the time, getting married and not wanting to be nono   I hope this isn't the middle finger he's waving, it looks like it. I don't mean it to be :)
First scope 7/05 should no UC, but I was bleeding with urgency. Sigmoid showed UC at rectum, 2nd colonoscopy & Endoscopy 7/27/07, Left sided colitis and near cecum (mild)
8/1/08 on sulfasalazine 2 2x's a day, canasa often.


daniella510
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 9/29/2008 11:49 AM (GMT -6)   
My onset at 14 came out of stress and anxiety I believe.  My family moved, I started public school for the first time, took honors classes and a new sport.  Seems so silly now but it was a huge deal to me then, I cried every day b/c I hated it. 
Danielle  26/F
Dx: Pancolitis for 12 years
Meds: Asacol (400mg x12 daily)
         Prenatal vitamins + extra calcium supp.
         Fish Oil
         Culturelle x2 daily


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 9/29/2008 12:12 PM (GMT -6)   
I was on accutaine in the 80' for a short while and I too believe its what caused my UC...I too do not have UC etc in my family.  I called the attorneys that are handling the class action and they said my case was too old etc...great, no zits on my face but ulcers throughout my colon!!!
Peety said...
I am convinced that I developed UC because I used Accutane. The timing is just too suspect. Accutane of course kills the bacteria that causes acne...and apparently more. There have been at least two largement judgements against the manufacturer of Accutane because of this, and the litigation continues. I don't normally advocate suing drug companies, but looked into it. My case is too old (records are gone) to pursue a case. I was 25. No one in my family has ever had digestive or autoimmune issues.
My Naturopath says he is also noticing cases of men who have used baldness medication.


Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 9/29/2008 12:14 PM (GMT -6)   
Hi I have pancolitis too (I'm sooo lucky) and I noticed in your sig you list no rectal meds just asacol...how are you doing?
daniella510 said...
My onset at 14 came out of stress and anxiety I believe.  My family moved, I started public school for the first time, took honors classes and a new sport.  Seems so silly now but it was a huge deal to me then, I cried every day b/c I hated it. 


Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 9/29/2008 12:42 PM (GMT -6)   
I have dealt with anxiety my whole life (runs in the family). I was extremely shy as a child and my parents constantly moved us around, I was always the new kid in school, very stressful for me. I took a lot of antibiotics growing up. I think what set off my first flare in 2000 was that I was engaged but knew I did not want to marry the man. Spent months stressing about it, finally broke it off and moved far away but then felt guilty. When I met my now husband my symptoms disappeared! I had minor blips here and there and no official diagnosis until 2008. I'm pretty sure what set off my flare in the summer of 2007 was that my wonderful (ha!) Mother in Law would constantly visit every 2 weeks for 4 months straight. (We usually didn't see her THAT often). I DREAD her visits, they are very stressful to me. Her constant visits combined with me taking Alli for a short time sent me into a flair I'm pretty sure. Now I'm pregnant and I think the pregnancy hormones along with a short stint on pred for poison oak has put me in remission - thank you Lord!
31 yr old female, currently pregnant. Due 1/09.
Diagnosed 2/29/08 with Mild Universal UC
I've had UC since 2000 but was in remission for most of those 8 years med free
Lialda Colazal & Asacol made symptoms worse, MUCH worse
Not taking any more meds for now. Trying a holistic approach.
Dare I say...REMISSION.


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 9/29/2008 3:09 PM (GMT -6)   
I quit smoking and all hell broke loose. I am sure I had it all along, but this is what caused it to rear its ugly head
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


LightenUp
Regular Member


Date Joined Jun 2008
Total Posts : 20
   Posted 9/29/2008 8:39 PM (GMT -6)   

I smoked cigars until I developed a really bad case of bronchitis in 1997, which helped me to quit them. However, I remember taking a bunch of antibiotics for the bronchitis at the time. Anyway, I was dx'ed with UC in 1999 and I'm sure it was a direct result of quitting smoking.

 

Funny thing is, smoking cigars gives some UCers some relief from the disease, according to my PCP.


Darryl, 58, Male, FL
Dx w/ moderate left-sided UC in 1999
Meds:
Colazol, 6 per day / Methotrexate, one 5mg injection each week /  Prednizone, 10mg per day / Calcium, 1200mg per day / Zocor, 40mg per day
Good news? Never seem to have complications from any meds.


mh53mike
Regular Member


Date Joined Aug 2008
Total Posts : 149
   Posted 9/29/2008 9:02 PM (GMT -6)   
I think a 6 month course of doxycycline along with bad diet, stress and PPI's lead up to my UC. Maybe the anthrax series shots too idk.
26y old male medically disharged USAF veteran.Diagnosed with UC (lower proctitis) in 2004.
 
Current daily treatment:                               Probiotics & supplements:
1000mg sup asacol                                      50 Billion CFU's acidopholis&Bifidobacterium daily
2400mg oral asacol                                      Digestive enzymes before each meal
20mg prednisone tapering                             5grams of glutamine
75mg azathioprine                                       folic acid & calcuim with V-D
20mg Nexum                                               Whey protien  
 
Diet:Little/no sugars, fats, carbs, caffine,sugars,yeast. Stay natural as possible.  
 
Results:1 Bowel movement in the morning no blood! Remission


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 9/29/2008 11:10 PM (GMT -6)   
As the stress in my life reached exponential levels I developed UC, and when my stress levels get back up there the flares return and increasing in reoccurances and duration...Stress and UC don't mix!
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1198
   Posted 9/30/2008 12:32 AM (GMT -6)   
It's is obvious that IBD is an extension and inflammatory version of IBS which is a proven stress induced illness.


Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Asacol Enema, 800mg Asacol Tablets x 2 a day.


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 9/30/2008 6:51 AM (GMT -6)   
I quit smoking in january symptoms started in march and dx in may so i am convinced that giving up smoking was partly to blame.
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started Salofalk supps 1gm 26/6/08
  Mesalazine 400mg 2 tabsx2 day


BevJay
New Member


Date Joined Sep 2007
Total Posts : 7
   Posted 9/30/2008 8:13 AM (GMT -6)   

My UC started soon after I was admitted to the hospital with gallstones and pancreatitis.  I was in my 50's at the time.  My doctor isn't sure this started the UC, but I had no problems until that incident.

 

 


Deleuze
Regular Member


Date Joined Nov 2007
Total Posts : 22
   Posted 9/30/2008 2:54 PM (GMT -6)   
One of the most stressful times of my life (getting rejected to Ph.D. programs I thought I would certainly get into + pressure from my then fiancee to move) and a bad night of food poisoning or some kind of bacterial infection. Immediately after the stomach bug disappeared I had UC.

My Dad, who has Crohn's, also was diagnosed with his condition while he was going through a divorce and right after a bout with a stomach bug.

As an incredibly analytical, skeptical, and scientific person I find these "coincidences" to edge closer and closer to causality the more I hear of similar situations.
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