10 year colonoscopy anxiety

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soleil99
New Member


Date Joined Sep 2008
Total Posts : 14
   Posted 9/28/2008 6:45 PM (GMT -6)   
hi everyone!! well, i have my 10 year colonoscopy tomorrow, and i'm scared. i think the reality of it just hit me. i had my first colonscopy in 2000, and was diagnosed at that time, but i've had uc since 1997 while in high school. i initially took sulfasalazine and asacol, but stopped taking it, b/c i didn't have insurance (i was a student at the time) i told my dr that i had to pay for everything out of pocket, and at the time, 1 month of asacol was >$130. i asked to be switched back to sulfasalazine which he refused. since i was feeling better, i decided to drop the issue and stopped seeing him as my gi. i haven't had any flairs like i did back in 2000 when i was first diagnosed, which i thought was a good thing. if i saw symptoms of a flair coming, i'd ask a dr to write me a prescription, which usually helped and prevented me from going through a full blown flair. well, im finally am done with school (did grad school after undergrad) and have a job, and insurance and started back seeing a gi. after seeing him, i'm officially scared. he reminded me that although i feel fine, there could be a lot of damage going on. and i'm such a worrier, i'm really thinking about the worse. i just want to get this over and done with. i'm mad at myself and cry sad at the same time. hopefully everything will go well.

munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 9/28/2008 8:02 PM (GMT -6)   
Don't be too worried. As you can see from my signature I went many, many years without any meds at all. Ya, it did spread, but it's not as bad as it could be and who knows if it spread because I didn't take any meds for so long or is it because of the natural progression of this disease??? Don't stress, that won't help. If you are not having symptoms right now, chances are, it may not have progressed.
*******Donna*******
 
South of Boston, Ma
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.
 


soleil99
New Member


Date Joined Sep 2008
Total Posts : 14
   Posted 9/28/2008 8:53 PM (GMT -6)   
thanks for the words of encouragement.

uckaren
Regular Member


Date Joined Jan 2006
Total Posts : 43
   Posted 9/29/2008 6:45 PM (GMT -6)   

Well, how did it go?  I have my colonoscopy on Wednesday, I too cannot wait to get it over.  I've had alot of stress and a mild flair for quite some time now. I did not take pred. for this flair, so I hope things are doing just fine.  We never know and it's so darn scary, it makes me crazy sometimes. 

Would like to know how you made out.

Karen. :)


soleil99
New Member


Date Joined Sep 2008
Total Posts : 14
   Posted 9/29/2008 7:34 PM (GMT -6)   
well, i'm still groggy, from the drugs. but, i was really scared yesterday and today. but, with the drugs they gave, i really don't have too much memory of the procedure. i remember continuouslly asking the dr what everything was on the screen, then falling back to sleep, which i feel soo embarressed about. i almost felt drunk, which is exactly what the nurse told me i'd feel like. i was a little upset though, b/c i asked my dr to tell me about his findings after the colonoscopy which he agreed. and while i was in the restroom, he decided he couldn't wait, and left. so, they had to page him, so that i could get my instructions. but, i was told i had mild colitis. so, i have a f/u appt in a week, b/c they're awaiting my biopsy results.

LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1198
   Posted 9/30/2008 12:42 AM (GMT -6)   
That's not so bad, I hope you are feeling well.

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Asacol Enema, 800mg Asacol Tablets x 2 a day.


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 9/30/2008 2:01 AM (GMT -6)   
I love the drugs, and I never remember a thing about the procedure. Still doesn't make it worth the prep, but I console myself by remembering that while my chances of getting colon cancer are slightly higher than the general population, my chances of dying of colon cancer are much lower. Because I get scoped every two years, it would be caught early while it's highly curable.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


soleil99
New Member


Date Joined Sep 2008
Total Posts : 14
   Posted 10/4/2008 5:25 PM (GMT -6)   
well, i got my results back. it says i have left sided colitis and proctitis. i don't think my biopsy or lab results are back yet though. but, last time i talked to my doctor, he said it was mild. but when reading my report, it seemed pretty bad, with all the findings found during my procedure. :-(

quincy
Elite Member


Date Joined May 2003
Total Posts : 31005
   Posted 10/4/2008 6:21 PM (GMT -6)   
so what meds did the doc prescribe for you?

Happy to hear it all went smoothly.

Hope all the biopsies come back unremarkable. Do get a copy of the biopsy results, however.

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


soleil99
New Member


Date Joined Sep 2008
Total Posts : 14
   Posted 10/4/2008 6:31 PM (GMT -6)   
he hasn't prescribed me anything yet. i just got a copy of the findings in the mail today. this is what he was supposed to go over with me on monday. so, i'm going to call on monday to find out whats next, and to find out if any of my lab tests have come back yet.

soleil99
New Member


Date Joined Sep 2008
Total Posts : 14
   Posted 10/4/2008 6:35 PM (GMT -6)   
quincy- thanks for asking. i see you're a veteran member, so maybe you can provide insight into this though.my report says that "2 nodules were found, and that mucus,hyperemia and a granular appearance were found in the rectum, and varibablly from the transverse colon to the rectum? this sounds pretty bad to me, should i be concerned? i'm going to try not to worry myself too much, until i can talk to someone on monday, but i can't help it.

quincy
Elite Member


Date Joined May 2003
Total Posts : 31005
   Posted 10/4/2008 6:59 PM (GMT -6)   
Hi....nodules aren't supposed to be in the colon...hopefully he took biopsies or removed them for pathology.
There would be a range of benign to cancer possibilities....you'll have to wait for the results unfortunately.
Some of us with UC have pseudopolyps....not precursors to cancer.

hyperemia is where there is increased blood circulation in an area.

Mucus is usually found where there is increased activity or inflammation of an area. Spasming of the colon (severe increase of activity) can cause increase of mucus without inflammation as seen in IBS. The purge/clean-out for the c-scope can cause some slight inflammation and increased mucus...
Could be a combo of yours...mild flaring and from the purge.

As inflammation increases, it changes the appearance from smooth to "bumpy" or granular (like how a rash looks on the skin).
 
It sounds as though you would have inflammation completely up the left side with variable visual changes.  It could be worse at the rectum and getting less as it gets to the transverse. 
 
He didn't mention patchy which would lean more toward CD.
 
This link might give you a few visuals.
 
No bleeding or friability so that's good.....
 
 
Hope this helps.
 
What are your symptoms at this time...just curious.
quincy


*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 10/4/2008 6:10:55 PM (GMT-6)


soleil99
New Member


Date Joined Sep 2008
Total Posts : 14
   Posted 10/4/2008 7:01 PM (GMT -6)   
thanks for the thorough explanation, i really appreciate it. i tried to google it, but kept getting other stuff. he did biopsy the nodules, so i know he said it would take a week for the results to come back, so hopefully this week, those results will be available. thank you!!!

quincy
Elite Member


Date Joined May 2003
Total Posts : 31005
   Posted 10/5/2008 2:26 AM (GMT -6)   
you're welcome.....keep us updated as to the results. Remember, get a copy!

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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