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Regular Member

Date Joined Oct 2006
Total Posts : 24
   Posted 9/29/2008 7:35 AM (GMT -6)   
My GI tells me on every visit that food has nothing to do with flares. He says that if it was as simple as that we could tell you to avoid those foods! Maybe true maybe not. I'm sure everyone has a story. But before I developed UC I loved milk. There was nothing better to me in the morning than cereal and milk. But after my last flare almost 2 years go I gave milk up. I always used skim milk. But now I am craving a bowl of cereal and milk.
My question is: Does anyone use skim milk? Does it cause any problems?

Prevacid 1 /day
asacol 2-3/day
VSL#3  1/day

New Member

Date Joined Sep 2008
Total Posts : 14
   Posted 9/29/2008 7:39 AM (GMT -6)   
same with me, it was dairy and eggs. but, i later realized i'm also lactose intolerant. it was a slow progression, but now i'm only really able to tolerate cheese without taking lactaid. i can occassionally eat yogurt, but now, i just drink soy milk, tastes just like regular milk to me. but, i haven't drank milk in 9 years now.

Veteran Member

Date Joined Mar 2008
Total Posts : 1766
   Posted 9/29/2008 9:26 AM (GMT -6)   
I don't use milk (including skim) b/c it loosens my stools and increases urgency; however, I don't have much trouble with cheese or ice cream, but then again I don't have those everyday.
You could always try skim milk and see what happens. Or jump straight to soy milk.
Female, Age 19
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort

Regular Member

Date Joined Feb 2007
Total Posts : 436
   Posted 9/29/2008 9:43 AM (GMT -6)   
I also used to love milk and was a cereal breakfast eater big time before UC.
I was on a business trip all last week. Scared b/c I tapered off prednisone the day before the trip and knew I was going to eat out a lot. Hotel had fruit and cakes and muffins for breakfast and 10:00 breaks and I ate a lot. Then we had huge buffet lunches and 2:30 breaks with cookies and sweets and fruit. then I went out to eat dinner.
I am a huge believer that my UC and back and knee inflamation is related to my diet somehow, and my body and gut was truly tested and passed. The only thing is I ate skim milk and cereal the last day (I waited b/c I was scared of milk and being away from home) then I had a quesadilla at the airport for dinner and sure enough my body started aching and my colon got very tender. Why did I pig out all week then when i had milk and cheese I felt bad. I don't think it was a coincidence.
28/M/TX single parent of gorgeous 2.5yo girl (revised 5/8/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  4 month flaring;improving; 2bm/day; no visible blood
RX/day:  Currently 20mg of prednisone per day. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: seldom use probiotics, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: Prayer, food combos, enzymes, good posture, chewing more, etc.

Regular Member

Date Joined Aug 2008
Total Posts : 327
   Posted 9/29/2008 10:32 AM (GMT -6)   
I seem to be fine with milk in all its forms. When first diagnosed, I tried to avoid milk because I'd heard it was a problem food. Then I had the lab test from Prometheus for lactose intolerance and results said it was highly unlikely I was intolerant, so I went back to my Dairy Girl ways, and things seem to be fine -- no diarrhea or cramping. Just to be safe, I am still limiting intake somewhat by using soymilk in my cereal some days, etc.

If you're really craving some cereal and milk, you should give it a try (on a day when you have some flexibility in your schedule, maybe).
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments

Veteran Member

Date Joined Jun 2008
Total Posts : 742
   Posted 9/29/2008 10:32 AM (GMT -6)   
I realized milk was a trigger for me, so I started drinking Lactaid and it doesn't bother me at all.  Tastes just like regular milk when eaten with cereal. 

Katie, 30.   Chicago 'burbs.
DX:  Pancolitis
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 3X daily, Zoloft 50 MG daily, Bentyl 20 MG and Tylenol (as needed).
Diet/Exercise:  Avoiding trigger foods, eating very healthy.  Yoga or walking, when possible.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare

Regular Member

Date Joined Jul 2008
Total Posts : 94
   Posted 9/29/2008 11:17 AM (GMT -6)   
I can't have milk or any dairy products anymore without it causing problems. I have switched over to Almond Milk (I just couldn't get past the taste of soy milk, even the flavored ones) and i have been fine with that.
Diagnosed with UC 3/2008
10mg Prednisone
75mg 6-MP
Entocort 9mg daily
800mg Asacol 3X daily

Eva Lou
Veteran Member

Date Joined Sep 2006
Total Posts : 3442
   Posted 9/29/2008 11:26 AM (GMT -6)   
I love dairy...yum! I drink Lactaid skim milk, just because whole milk sort of grosses me out (too fatty), & I only use milk in cereal or cooking so I may as well save on the calories & fat & go skim. I use it a lot- in cereal, oatmeal, cooking, etc. It never bothers me. I eat ice cream, frozen yogurt, regular yogurt, all with no trouble. The only time dairy bothers me is if I eat too much- by that, I mean eating a big bowl of Haagen Dazs after dinner or something. Just too much food overall. I find the high fat stuff bothers my GI system more than the actual food type, like dairy. I'd definitely give it a try- I am one of those who doesn't believe that food has much to do with IBD.
diagnosed with UC '02
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Fiber supplement

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 9/29/2008 12:21 PM (GMT -6)   
I love dairy and it doesn't bother me at all. In fact, when I'm flaring and need less fiber in my food, it's a primary source of protein for me. You can be tested for lactose intolerance, or you can try a little, keep a food diary and see what happens.

Be aware that if you have your skim milk with a high-fiber cereal like bran or shredded wheat, it will be difficult to know whether it's the milk or the fiber causing any problems that may occur.
Judy - Southern US 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

Veteran Member

Date Joined Apr 2006
Total Posts : 3402
   Posted 9/29/2008 3:59 PM (GMT -6)   
I LOVE milk! (Cheese, ice cream, etc) I drink/eat it whenever possible - EXCEPT when I have lots of D or a head cold. Milk products can increase mucous production. Like Judy, I use milk for protien. Also, when I'm flaring and need extra calories, I use milk with Carnation Instant Breakfast. Sometimes even a bit of hard cheese - like cheddar - can calm my very upset tummy. I don't know how...
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next infusion: 10/07/08
Last Prednisone dose:  7/15/08
Co-Moderator UC forum:  Keep HealingWell running smoothly:

Veteran Member

Date Joined Feb 2005
Total Posts : 2103
   Posted 9/29/2008 4:28 PM (GMT -6)   
I'm absolutely lactose intolerant. I found out in 7th grade (3 before my UC). However prior to my UC I found that I could handle things that were from skim milk better than others. I often wondered if it was because skim milk has less milk sugar in it. I should ask my GI some time...
Since UC I can't tolerate even a little during a flare but now that I'm in remission I can eat cheese and yogurt but never a glass of milk or in cereal. I still drink Lactaid and I really don't mind it. It is a little thicker than 1% (which is what I grew up on) but tastes just fine. When my mom cooks or bakes she'll substitute my milk in the recipe and it tastes the same.
Sam 19 year old college student
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, 600mg calcium with vitamin D
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou

Old Hat
Veteran Member

Date Joined Feb 2007
Total Posts : 5191
   Posted 9/29/2008 6:10 PM (GMT -6)   
I do well on Lactaid 100, nonfat or 1% milkfat. It is sold in extra calcium formulas as well as regular. A big blessing because regular milk did give me considerable bloating & gas: yuck! / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

Regular Member

Date Joined Aug 2008
Total Posts : 128
   Posted 9/29/2008 7:35 PM (GMT -6)   
I drink Silk religiously (the plain type to cook with, and the vanilla to bake with and mix with shakes).

I also eat Activia yoghurt and I LOVE colby jack cheese. Neither of those give me issues.

Milk is just an afterthought now, since Silk has replaced it. I have also tried Rice Dream, which is just the same to me as Silk, but Silk is cheaper :D
Sean - 31
Prednisone again for another 12 days, 25mg
UC Since April 2006, diagnosed 2007 (Flex-Sig)
4 x Liada (4 am)
175mg Azathioprine
2 x Imodium (on days where I have to leave the house)
Remicade infusion starting
1 x 1000mg Fish Oil Cap
Activia yogurt and SCD-like foods to see if I can make a change. Just got in my 4 day trial of Haldi.

New Member

Date Joined Aug 2008
Total Posts : 14
   Posted 9/29/2008 7:55 PM (GMT -6)   
when I sense my tummy girgling or my bm's are a little too soft because of something I ate (sugar or coffee or chocolate usually)
then I have a bowl of rice krispies and 2%milk and half a banana... I do that for a few days and usually things settle right down... I think if your body is craving something then it needs the vitamins from that food...unless of course it is chocolate then I think that may be just hormonal or a simple craving.

Regular Member

Date Joined Oct 2007
Total Posts : 348
   Posted 9/29/2008 8:02 PM (GMT -6)   
I drink milk everyday, no problems at all with it. I drink skim milk, 1% & 2% whichever I happened to purchase. Never had a problem with it.
South of Boston, Ma
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.

Regular Member

Date Joined Jun 2008
Total Posts : 20
   Posted 9/29/2008 8:20 PM (GMT -6)   
Three months ago my GI suggested I replace milk with Silk - and to not worry about any cheese or yougart I eat - to reduce the gas problem. That was the best advice I've gotten from him because I've been just about gas free since. The one time I drank a shake I paid for it the following day, so I'm a believer.
Darryl, 58, Male, FL
Dx w/ moderate left-sided UC in 1999
Colazol, 6 per day / Methotrexate, one 5mg injection each week /  Prednizone, 10mg per day / Calcium, 1200mg per day / Zocor, 40mg per day
Good news? Never seem to have complications from any meds.

Veteran Member

Date Joined Aug 2008
Total Posts : 903
   Posted 9/29/2008 8:22 PM (GMT -6)   
I like milk too, always have cereal and milk. Had to switch to Lactaid when diagnosed. Have no problem with that milk.
26 year old, Married, Female.
Diagnosed with UC since March 2007
Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)

Regular Member

Date Joined Mar 2007
Total Posts : 369
   Posted 9/29/2008 9:03 PM (GMT -6)   
I drink milk everyday and have been in remission for over two years so its not a problem for me. Also when I was flaring I didnt notice any problems with it.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 9/30/2008 12:40 AM (GMT -6)   
A lot of IBDers become lactose intolerant, you could use lactaid products and see if it helps, if it helps then you probably do have lactose issues, or you could even get a lactose tolerance test done, there are varying degrees of lactose intolerance from mild to severe...luckily the probiotic I use also aids with lactose intolerance issues...I got tested for lactose tolerance because from things I was describing to my GI he suspected lactose may also be an issue and since the symptoms are easily masked by IBD, getting tested is one sure way of knowing.

My bum is broken....there's a big crack down the middle of it! LOL :)

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