Danni, if it helps any, we are in the same boat. My GI doctor HATES me being on prednisone and I am not too thrilled either, but looks like this time I am prednisone dependant. I've been on it since April, hospitalized for ten days in May and only been able to be off the pred for two weeks in August...boom flare again....went back on 30 mgm with slow taper...off it for two weeks and then last week...horrible! Bleeding, urgency, cramping. I've had UC for ten years. Went to see a colorectal surgeon in August, he said I wasn't bad enough for surgery...can you imagine? Seems like with the surgery comes a myriad of possible complications. I am 62 yrs old with high blood pressure and osteoporosis....all from the prednisone. I am really tired this time but wonder if it can be due to my heart doctor prescribing the water pill along with my BP meds. This really helps keep my BP down though. When I went into the hospital in May it was 216/96 and they had a heck of a time regulating it in the hospital. Hmmm....weird not one doctor suggested water pills in there. My heart doctor explained that the prednisone makes you retain water in your tissues, therefore I need that water pill. My list of meds is at the bottom. I cut out the flaxseed oil capsules, someone told me that they could cause diarrhea.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Still flaring. Afraid that I am pred dependant. Back on Pred 40 mgm for five days, then taper. Other meds...Colazal, 6MP, Nexium, Cort enemas, Canasa suppository, Benicar, Toprol xl, water pill.
Calcium, Probiotic, Flaxseed oil capsule, multivitamin with Iron
Also have osteoporosis and high blood pressure
Remicade NOT an option. Not a candidate for surgery yet..says surgeon.