I am so sorry she is dealing with all of that, it has got to be so difficult for her. The advice here is all really good and I can add nothing to how to deal with the schools.
The only thing that I can and would like to add is that it may be good for her to meet some other people her own age with UC or as close to her age as possible and/or some people who have had UC a while. I think it would help her feel not alone and better about
sticking up for herself and dealing with this disease. Maybe your Dr. can recommend support groups or maybe help put you in touch with another family.
I wish her all the best and I know how mean kids can be. I got my period on the back of my pants in 7th grade and the whole school knew and some kids were very mean.
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 5mg/2.5mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your blood protien level!