Definitely request a 504 plan. You can (and should) make sure many accommodations are in place, even if your daughter may never use them.
My daughter's 504 plan includes unlimited bathroom breaks, food and drink at anytime, 50% extra time for test taking, extended time to complete homework and projects. We had these put into place because, as you know, UC has a mind of its own. Some days she would need to be in the bathroom many, many times. Some days not. Sometimes, she needed to eat and drink more. The extended time for completing work was put in place because she missed many weeks of school (9 weeks in Fall 2006, 9 weeks in Fall 2007, 7 weeks in Spring 2008) and we were concerned about the pressure of trying to catch up in all her classes. The extra time for test taking just relieves the pressure of possibly having to use the bathroom during a timed test and not having the full amount of time to actually take the test.
You can also request accommodations for ACTs and SATs. Depending on where the tests are held, my daughter will use them. She actually prefers to take her tests in less crowded rooms. Her 504 plan comes due in November (they review and renew it each year). Because she just had surgery (and will have her step 2 in November) we may need to make some changes. But I will still make sure she has a 504 plan in place.
A 504 plan is a great safeguard for the child. I think it also makes the school and district much more accountable. Be on top of the school. You are your child's best advocate.
--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds
Step 2 scheduled for November 10
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp