One day @ a time

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Amare
New Member


Date Joined Sep 2008
Total Posts : 3
   Posted 10/1/2008 7:46 AM (GMT -6)   
Hi evryone,
 
I frist wont to say that I'm sooo glad I found this chat site last night I started reading all your messages and could not stop!
I was just dignosed w/ UC august 08.I had some bleeding off and on for a couple of years ( did'nt tell anyone becouse it was mild and off and on ). But it started geting more consistant and I was seeing mucose for the first time I just new something was worng. I went to my doc then to specialist, had colonoscopy. Doc said it was sever UC in my rectum ( I never heard of it). Put me on colazol. I asked for some info on UC went home and started reading when I read that 20 to 40% of people need surgery I started crying I was an emotional mess. A few months before being dignosed alot of new and stressful things wore happening in my life I'm only 21 and I felt like I was having a nervous breakdown! It definetly seems that my simptoms and my stress went hand in hand. The messages about pearsonality definatly hit home! I can be very picky about things always cleaning, not sitting still, like things on set scedule, on and on lol! For the last couple of months I have been doing much better leting the small stuff go and trying to chill out more. But always thinking of this problem I have and the worst case senario ( surgery ) It has been a battel @ times to look on the positive side I tend to be negative about myslef alot.
 
Anyway, I have a woderful Mom and Brother who are very suporting. Finding this chat has already helped so much!! smilewinkgrin

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/1/2008 8:43 AM (GMT -6)   
Welcome to HealingWell, Amare, and thank you for introducing yourself.

Adjusting to having any chronic condition, much less one that is embarrassing and personal, is a difficult process. It's sort of like going through all the stages of grieving, if you've read about those. First we have to get over thinking "No, not me, this will go away. I'll be that very rare person who has one flare then never any more problems." For some of us (me), that takes a year or so. Then we enter the "Why me?" stage. Once we realize the only answer to that is "Why not?", we can move on. Give yourself time to grieve. While this disease isn't as bad as we all tend to think initially, it's still a lefe-changing, self-concept shattering event.

Glad to hear you're learning to be positive. This DD tends to teach us to be patient, to embrace the good stuff and to let the bad stuff go.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 10/1/2008 9:00 AM (GMT -6)   
Hi, Amare. I'm sorry you have UC but welcome to HW.

Don't worry about surgery yet! That's a last resort; your GI will probably try many other meds before suggesting surgery. I hope Colazal will help and send you into remission. If your UC is the worst in the rectum, you might want to ask for some rectal meds (I know it's sounds gross and not fun, but it helps).

I'm glad you're stressing less. I think stress affects my symptoms too and I was also diagnosed after a stressful time. At least the disease has a silver lining--it forces us to let go of small things and re-prioritze our lives.
Female, Age 19
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 2 Anucort
 


Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 10/1/2008 12:02 PM (GMT -6)   
your story is similar to mine. I got diagnosed in August too. ((((((((((big hug))))))))))))) We will get through this, one day at a time.

jmm1016
New Member


Date Joined Mar 2008
Total Posts : 7
   Posted 10/1/2008 2:11 PM (GMT -6)   
this site helped me so much too! my dad actually found it for me, and i would visit the site often. It really is comforting to know that you're not alone, and its especially helpful that there are a lot of young people who know what your going through. So welcome and i hope that this site continues to help you!!!! :)
Jen
22yr old college student
diagnosed with UC in April 2007
tried- asacol, colazol, lialda, 6MP, methotrexate, and Humira
J-Pouch Surgery: step 1: July 8, 2008
                                step 2: September 15, 2008!
Doing Great!
 

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