What do you wish you'd asked your GI?

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Limeycricketlover
Regular Member


Date Joined Oct 2008
Total Posts : 67
   Posted 10/1/2008 3:09 PM (GMT -6)   
Hi,
I'm seeing my GI for the first time since initial diagnosis during a nine day stay in hospital. I was pretty out of it when I spoke to him, and didn't know much about UC when he told me the good news (soooo relieved it wasn't the big C!!!). I really want to make best use of the time with him, so would welcome suggested questions from all you guys out there. You know the kind of think, you walk out the door and slap your forehead going (WHY did I forget to ask about.....)
Well, guess the obvious questions would be:
How severe was my flare up?
Assuming I have another flare up, is it likely to be around the same, less severe, or (God forbid) worse?
How extensive is the illness?
Any way I can get below an average of 5 bowel movements a day?
Which IS the softest toilet tissue?
...
UC - diagnosed Sep 2008
Seeing GI for first post hospitalization consultation Oct 9th - should get full diagnosis then

Omeprazole 40mg
Prednisolone 20mg
Calcium (Adcal-D3) 3000mg
Mesalazine 4000mg
Mesalazine foam enema


Mackster
Veteran Member


Date Joined May 2007
Total Posts : 768
   Posted 10/1/2008 5:21 PM (GMT -6)   

I can answer the first question for you limeycricketlover and I'm not even a GI!

The fact that UC landed you in hospital would definitely indicate your flare-up was pretty serious.

From my own experience re question #2, I suffered a major flare in '06 for about a month before being diagnosed with UC (pancolitis) which put me in hospital for a week.  During that initial flare I had gone from 185 to 155 lbs and was averaging 12 bms a day.   I have since gained weight to 195 lbs.  I now average about 3 bms a day which I guess could be considered 'normal' for us guys.  I never want to go though that again, and if it's any consolation I doubt that your goodself will ever have to have to either.  Simply because you have been diagnosed and the correct steps are being taken.

I have done the 40 mg prednisone and other meds for the first year and for the past year I've been on solely 6mp (azathioprine imunosuppresent) as a 'maintenance' drug.

Q #3  ( see above)

Q #4 If you get down to below 3 bms (no urgencies) some might say you're in 'remission'.

Q #5 Check your local drugstore/supermarket!

Good luck!


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 10/1/2008 5:28 PM (GMT -6)   
Hmm... My parents have this toilet paper, I'm pretty sure it's Charmin but I'm not 100%... Anyway, it is SOO soft. But actually as nice as it is, sometimes it feels like it's too soft and I have to try extra hard to get completely clean after a BM if you know what I mean. It's like since it's not abrasive at all, it doesn't do the job as easy. I don't know, it's weird. I use Cottonelle though and I like it.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Sulfasalizine 3000mg/day

 
 


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 10/2/2008 7:57 AM (GMT -6)   
There are really not too many options for this disease, compared to some. One question for the doc is to hear his/her philosophy on whether to hit it hard first with big doses or start small, and build up. I have mixed feelings and so do they. The Pred, for example, low and build up, or hit it hard and taper for a long time? If you need to get on another drug, like the 6mp, it takes time. The testing for is can be 2 weeks, and that is a long time if you are in a flare. Make sure the doc is proactive, and does the enzyme test for it now, just in case.
BYW, Cottonele, with aloe and E is the paper I buy by the gross... Splurge, this is no time for one-ply
:-)
Daughter,15 diagnosed 1-08 w/ UC Learning from you all.
Asacol,Colazol, Prednizone 50mg, major flare, now off!, Hosp. @ U of C, Comers three x this yr. Low residue diet still, and still in a flare.
6MP, ,horrible acne/moon. No more Pred,but 6mp isn't working. Remicaid next up.
Trying probiotic and Mangosteen for kicks.

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