When Bratcat was first diagnosed in Fall 2006 we knew nothing about IBDs. We figured she would be able to take some medicine and go into remission within 2 weeks (sort of like when you take an antibiotic). Who knew! Even though the GI did explain it to us. He did discuss how she would start on asacol and enemas and how, if they worked, he would prefer to keep her on them. It took prednisone to jump start it but she did finally go into remission (more than 2 months later). That lasted a year. When she flared again and the drugs didn't seem to be working, she went to 6-mp (which the year before we swore she wouldn't go on). That, along with prednisone got her into remission again. We figured if she could find a medicine regimen that worked and kept her in remission, she would be able to deal with having UC. Unfortunately she didn't stay in remission and had to start Remicade. When that didn't work (and the prednisone was the only medication that seemed to get her into remission but not keep her there), we decided on surgery.
But she (and the family) always figured one of the meds would work and keep her in remission. Surgery wasn't even a serious discussion in the beginning. Maybe it is our optimistic attitude. Maybe our rose-colored glasses. But each time she tried something new we figured this would be the thing that kept her "normal". That is how we look at her surgery now. Just a new type of "normal".
--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds
Step 2 scheduled for November 10
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp