My daughter was also told to limit her activity on the computer while wearing the "black box". However, my son had his capsule endoscopy several weeks earlier and his doctor never mentioned that. And my son lives on his laptop!!
Thanks bbc about the concern about my son. He is 20. He has always been extremely tall and thin and not a great eater. But he is built just like my father-in-law and was always healthy so that was never a big concern with the pediatrician or us. He went to the bathroom several times a day but again it wasn't a real concern because everybody's body is a bit different (and he does/did tend to eat alot of junk). Junk in/junk out. In the spring he finally mentioned to us that he had something "growing" down below. And he finally let us look at it (what an experience). He went to a GI (he was 19 at the time and just missed the cut off to go to my daughter's pediatric GI). It turns out to have been an abscess. And the doctor feels that it had been there before. A round of antibiotics helped. He had a colonoscopy and has mild inflammation in the colon. He started on asacol. He was also started on 6-mp. The capsule endoscopy shows some very spotty inflammation in the small intestine so the doctor switched him to pentasa instead of asacol. At his last annual checkup his bloodwork showed he was anemic. But he is not bleeding when he goes to the bathroom (so he tells us) and his abscess is looking good (so the doctor tells us). For a short while he also lost weight (he is 6' and normally about 125 lbs, he went down to 119). So the doctor suggested Boost or Ensure-type drinks. He drinks Boost daily and it has helped alot. He put some weight back on. During the weight loss time he also started getting tired. Not sure if it was from the weight loss, the anemia, or the fact that he was working 2 jobs and getting back into full-time school. Anyway, he looks good and feels good. He just had more bloodwork and goes to the GI next week. We will see. His symptoms are completely different from his sister's and he also doesn't openly tell us how things are going (we have to ask detailed questions).
Sorry for hijacking this thread. But thank you for asking about him.
--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds
Step 2 scheduled for November 10
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp