Prednisone withdrawal :( (i think pineapple is helping)

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Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 10/3/2008 2:16 PM (GMT -6)   
I tapered off prednisone finally. I am dependent and had been using it already for about 6 months straight. I felt great even at 5mg, but off it my body started aching horribly. my neck, back, right knee and right hip were killing me. It was a week after tapering off, inflammation hit hard throughout my body. My chest was so tight i couldn't even sneeze and when it was the worst I was litterally limping around for a two days.
 
Why did my body start aching a week after stopping prednisone? Why did I sneeze today and play basketball at lunch better than I have in months?
 
I have to think diet and stress play a big role in my UC an my body's inflammation. I was in Dallas on a business trip for a week the first week off prednisone. Of course i was scared I was going to flare over there but my Dr wouldn't prescibe me any more steroids. My stools were looser maybe b/c I ate nonstop but it was mostly healthy foods and a lot of pinneaple every morning. I probably ate more that week than the average person eats in a month. lol. but really i'm serious. but then the last day there i ate cereal with regular milk and a cheese quesadilla for dinner at the airport and guess what. My body started feeling like crap the next day. So I had been feeling bad and aching all over for about a week but my stools were still looking as good as they get for me so I was happy about that. but anyways I figured there might have been somthing to those pineapple chunks I was eating. So I baught one. (funnyiest thing is my toddler says all excited "Tata spongebobs house" lol. Whhhooo lives in a pineapple under the see-spongebob squarepants. you have to have kids to know the song and cartoon.)  but I had some yesterday morning and today and I felt great today. I also had 2 shots of vodka and 2 cranberry vodka drinks last night and danced a little and had some fun so that was something else out if the ordinary for me...
 
Well something helped me for a week after stopping prednisone and today since my pains are almost completely gone away and I sneezed fully for the first time in a week. I think the pineapple had a lot to do with it...
 
                                                                                         
28/M/TX single parent of gorgeous 2.5yo girl (revised 10/3/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  Remission.
RX/day:  Tapered of Prednisone 9/20/08. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey (Off all prescriptions)
OTC: seldom use probiotics, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: Prayer, food combos, enzymes, good posture, chewing more, etc.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5968
   Posted 10/3/2008 2:48 PM (GMT -6)   
   Hmm...funny you should mention pineapple.  I haven't given it much thought, but I saw a nutritionist shortly after being discharged from the hospital in May.  She gave me a ton of info, most of what I knew already, since I have been battling UC since 1998.  One of the pamphlets contained a research study of the positive effects of pineapple on patients with UC.  Just found the pamphlet.  The researcher's name is Laura Hale, M.D., Ph.D.  It is the bromelain, the enzyme found in pineapple.  Laura and her colleagues, in 2002, did a study and found that bromelain stripped the white blood cells of certain molecules involved with adhesion and activation.  A later study showed that when mice ate bromelain, it remained active throughout the gastro tract.
     This pamphlet was written last spring, but the research is continuing.  Dr. Hale feels that bromelain is one of several promising options for treatment of UC.  So...hey, why not give it a shot!  Why have I waited till now?  Your post lit a bulb in my head.  Thanks!
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Still flaring.   Afraid that I am pred dependant.  Back on Pred 40 mgm for five days, then taper.  Other meds...Colazal, 6MP, Nexium, Cort enemas, Canasa suppository, Benicar, Toprol xl, water pill.
Calcium, Probiotic, Flaxseed oil capsule, multivitamin with Iron
Also have osteoporosis and high blood pressure
Remicade NOT an option. Not a candidate for surgery yet..says surgeon.


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 10/3/2008 4:19 PM (GMT -6)   
Hmm... It seems whenever I eat pineapple it hurts me. Maybe I will try some though for a bit and see if it has an effect.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Sulfasalizine 3000mg/day

 
 


mh53mike
Regular Member


Date Joined Aug 2008
Total Posts : 149
   Posted 10/3/2008 4:35 PM (GMT -6)   
If you ate a pumpkin pie would that have had alot to do with it?? lol
26y old male medically disharged USAF veteran.Diagnosed with UC (lower proctitis) in 2004.
 
Current daily treatment:                               Probiotics & supplements:
                                         50 Billion CFU's acidopholis&Bifidobacterium daily
2400mg oral asacol                                      Digestive enzymes
15mg prednisone tapering                             5grams of glutamine
75mg azathioprine                                       folic acid & calcuim with V-D
20mg Nexum                                               Whey protien  
 
Diet:Little/no sugars, fats, carbs, caffine,sugars,yeast. Stay natural as possible.  
 
Results:1 Bowel movement in the morning no blood! Remission since 08Sept08


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5968
   Posted 10/3/2008 5:17 PM (GMT -6)   
Edie,
     Why not just try drinking pineapple juice?  Maybe the pulp in the pineapple could disturb you.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Still flaring.   Afraid that I am pred dependant.  Back on Pred 40 mgm for five days, then taper.  Other meds...Colazal, 6MP, Nexium, Cort enemas, Canasa suppository, Benicar, Toprol xl, water pill.
Calcium, Probiotic, Flaxseed oil capsule, multivitamin with Iron
Also have osteoporosis and high blood pressure
Remicade NOT an option. Not a candidate for surgery yet..says surgeon.


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 10/3/2008 8:47 PM (GMT -6)   
Mike I really didn't laugh out loud with that comment I really didn't find it funny at all. But to each his own. But actually if I ate some pie (or anything jam packed with refined sugar) my stools would go from semi-formed smooth looking to looser and rougher looking and fall apart during the flush. I have made straight A's my whole life and love learning but with this disease it's hard to even try to understand it b/c not even Dr's and brain surgeons (lol) can find a cure. So what I did for the first 3 years with UC was write down every thing I consumed and documented everything that came out but I didn't eat pinneaple or I never ate it everyday for a week Like I did in Dallas. I have to give you credit for your diet you have listed, that's basically how I eat but now that I'm in remission I can tolerate a lot more. I really don't know if it was the pineapple that helped me but I thought that might be it. you don't even understand how bad my inflammation gets and for some reason I felt so so so good today so I thought I would share it. Good luck to everyone.
 
                                                                                         
28/M/TX single parent of gorgeous 2.5yo girl (revised 10/3/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  Remission.
RX/day: none! Tapered off Prednisone 9/20/08. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: ensymes everyday, seldom use probiotics, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: Prayer, food combos, good posture, chewing more, etc.


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 10/3/2008 10:43 PM (GMT -6)   
My gut doesn't tolerate pineapple juice, or really even pineapple out of the can. I found while out in the islands i could eat fresh cut pineapple like nothing and it was wonderful. I can't get it fresh around here : (
Proctitis DX 1999, Pancolitis DX 2008
Lialda 3 day
Immuran
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/3/2008 10:49 PM (GMT -6)   
Eat some pineapple after each meal, it'a a natural digestive enzyme, it helps break food down to make it easier on digestion.

FYI, kiwi, papaya and mango are also all natural digestive enzymes, eat which ever you can tolerate after every meal.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5968
   Posted 10/4/2008 8:01 AM (GMT -6)   
     Got 2 believe,  I didn't like Mike's comment either, so just ignored it.  I ate some pineapple last night and it didn't bother me at all.  Of course I am on prednisone and know that is helping me...again...but trying to see if some of the foods can aid in my regaining remission too.
     Good luck to you.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Still flaring.   Afraid that I am pred dependant.  Back on Pred 40 mgm for five days, then taper.  Other meds...Colazal, 6MP, Nexium, Cort enemas, Canasa suppository, Benicar, Toprol xl, water pill.
Calcium, Probiotic, Flaxseed oil capsule, multivitamin with Iron
Also have osteoporosis and high blood pressure
Remicade NOT an option. Not a candidate for surgery yet..says surgeon.


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 10/4/2008 9:49 AM (GMT -6)   

I don't think Mike intended to be insulting with his comment.  I think he is trying to point out that all of us with UC try so hard to find a food, a diet, or a supplement to be the magic element to gain remission.  We have all been desperate to find and latch on to anything that reduces are symptoms and make us feel better.  This is why many of us are willing to try just about anything, including spending lots of money on scams, to improve our situation.  When I had UC I had similar experiences and spent lots of money chasing the elusive remission.  If pineapple makes you feel better and reduces your symptoms, continue to enjoy it!

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/4/2008 2:19 PM (GMT -6)   
I'm with Sue, I don't get mike's comment as being insulting either, I've gone back and read all the posts a couple of times to see if I missed something but I don't see his comment as rude or insulting so I'm confused by anyone being offended by it.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4411
   Posted 10/4/2008 2:48 PM (GMT -6)   
I found his comment insulting.

Anywho...I love pineapple and pineapple juice! Glad it seems to be helping you. And thank you to the poster who talked about the bromelain component of it...good info.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/4/2008 3:39 PM (GMT -6)   
Okay... what am I missing then? I don't get it confused he did leave an LOL, so to me I take what he says as a joke and I don't get the joke about pumpkin pie, needless to say I'm totally lost here confused

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/4/2008 3:56 PM (GMT -6)   
Be careful with pineapples and/or pineapple juice. I recently read an article that said that said that consuming citrus fruits/juices can make some medications less effective. The one that stuck in my head was Allegra, because I take it for allergies. I'm not sure if pineapple falls into that category, but it is something to think about.

PB - I don't think you're missing anything. I didn't see anything insulting either, but I also didn't get the joke. Let's just agree to not discuss pumpkin pies and I think everything should smooth over.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema, Prednisone (trying to taper down)


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 10/4/2008 3:58 PM (GMT -6)   
ya know, I just made a butternut squash pie- very similar to pumpkin, but even yummier! maybe a slice or two of that, eh??? wink
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 10/4/2008 6:37 PM (GMT -6)   
mmmmmm, it's getting to be pumpkin pie season again...my fave!
thanks for the reminder Mike.



Bromelain is proposed to help with body pains...it would be better to have fresh pineapple than the juice. If not, take the capsules...

We all have days where we have pains and can hardly move or days we feel like dancing (don't need booze for that, however)....it could be summed up as we are how we feel sometimes. I don't think we can analyse it to just one thing.

Rainy days and low pressure have me feeling completely ugh...

Thinking about those pies again....

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 10/5/2008 8:29 AM (GMT -6)   

yup, I've been baking & cooking like a fiend!!!!! the change of seasons does it to me, every year. plus the fact that I could stand to put some weight on helps. It's funny, I know sugar is "supposed" to be bad for IBD & all, but my homemade sweet things never bother me. I swear it's the artificial flavorings/preservatives put into mass marketed sweets that are the killer. oh yeah, & pineapple is mighty tasty too! I love it with Thai food- I make a killer Thai chicken, & serve it over rice with a side of pineapple chunks. I'm hungry..... I always look at it this way- food is food is food....nothing more than fuel. What goes in must come out, so if you put in more "basic" stuff, you most likely will have an easier time passing it. Like, eat a bag of nacho cheese doritos & see how you feel in the AM. Eat a bowl of homemade soup & see how you feel in the AM. It's pretty elemental.


diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 10/5/2008 12:44 PM (GMT -6)   
I started my birthday this morning with a good present, a perfect BM. lol. I didn't find his comment offensive just a little inappropriate but it really doesn't matter... I love pumpkin and at least once a month I buy a couple pumkin empanadas at a local mexican bakery that are awesome. I'm actually going to have some birthday cake today, but maybe just a small piece b/c I really do notice the difference in my BMs after eating sweets or over eating. I can pretty much guarantee my BM tomorrow will not be like the one I had today, but It's my 29th B-Day and I just have to have cake with my daughter an my 2 neices and family.
Oh, and i finished the rest of my pineapple that I had baught and I will definately be buying more in the future... They're really good and if they help me then even better.
                                                                                         
28/M/TX single parent of gorgeous 2.5yo girl (revised 10/3/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  Remission.
RX/day: none! Tapered off Prednisone 9/20/08. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: ensymes everyday, seldom use probiotics, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: Prayer, food combos, good posture, chewing more, etc.


LR2112
Regular Member


Date Joined May 2008
Total Posts : 26
   Posted 10/5/2008 1:04 PM (GMT -6)   
Somewhat on the subject, my mom is making a pumpkin pie and asked me to see if pumpkin would aggravate my UC. I didn't see any negative things about pumpkin, then I come on here and see this post.

Kind of funny.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4411
   Posted 10/5/2008 2:28 PM (GMT -6)   
I love pumpkin pie. I've been trying out different squash recipes lately and they all seem to sit well with me. I love squash and it's really abundant in the stores here this time of year.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 10/5/2008 4:08 PM (GMT -6)   
squash, pumpkin, all those types of veggies are REALLY good for IBD'ers. They have tons of vitamins, are easy to prepare, & are naturally sweet. I love squash soup, pureed with an apple thrown in, some ginger, a blob of honey, salt & pepper... same for pumpkin. They're about as easy to digest as possible. And they have soluble fiber too! GOOOOO squash! yeah
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 

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