Well, I went to my appointment with my NP today (after her consult with my gastro doctor. They don't like you guys! LOL I had told my NP who is very understanding, etc. that I go here for info/support/etc. Now she says she understands but that they both (her and doc) agree that the "blogging" may be making me more nervous and scared! BALONEY!
Anyway,after all that I agreed to try the Lialda (1/2 dose) and one Canasa every night as it seems the mesalamines that I said I would never take again are working! Doctor (who I do respect - just don't always LIKE) says I do not have UC serious enough for stronger drugs. I have to agree that all mesalamines (except maybe Rowasa) has helped. I have only been on one Canasa at night for a week and have slowly improved.
AND - he scheduled a colonscopy for Setember 28 and if no substantial improvement when he looks in there - maybe then something more. He (and I) just know I will develop strong side effects if I have to take anything stronger.
Only thing I did not like - the NP "implied" that the doctor thinks I am giving up too soon on the medication. All I know is I kept getting sicker both with Colazal and Lialda (along with Rowasa). The UC was getting better but I felt like a truck run over me and could not leave the house. With no medication I can do most of my daily routine. Every day got worse until I could barely get out of bed. I had to quit twice. Well - maybe it was all in my head - NOT!
Sooooo, sorry this is so long - surely I need you guys to talk to and no one is taking that away from me. I will read with an open mind.
AND - I will give one Lialda and Canasa a fair chance!!
And look forward to the colonoscopy - yuck!!
68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol