No need to apologize. We are all happy to help you if we can. I think we all draw comfort from each other. My hubby said to me today "Don't you get depressed talking to sick people?" Sometimes he just doesn't understand, he means well though. I felt so sorry for him while I was in the hospital, he looked soooo worried. He gets so frustrated that the doctors are having a time of it trying to get me into remission this time. By the way, my answer to him was..."No way does the healingwell formum depress me. I feel like I learn something from everyone."
I see you were diagnosed in September. September was the month I became ill for the first time too. Since then, my flares have always been either in the spring or fall. I just know they are going to find a common seasonal allergen that sets us all off.
I am doing pretty well now. My prednisone is cut down to 25 mgm today. Tomorrow I see my GI doctor. Prednisone is the wonder drug for me...always has been. Unfortunately, side effects are not good. Before I started this last regimen of pred (a week ago Thursday at 40 mgm), I was having six to eight BM's a day and bled all over the bathroom floor before I made it. Terrible urgency too. I started the pred that day...by Saturday, no sign of blood, no urgency, no diarrhea. Everything still under control. I do feel tired but my heart doctor (no heart problem, just high blood pressure) put me on a water pill while I am taking the prednisone to keep my BP down. Been on prednisone better part of six months this time...oh well.
Glad ativan is doing the trick for you. Yes, anxiety certainly is NOT pleasant. You have a great day too!
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Still flaring. Afraid that I am pred dependant. Back on Pred 40 mgm for five days, then taper. Other meds...Colazal, 6MP, Nexium, Cort enemas, Canasa suppository, Benicar, Toprol xl, water pill.
Calcium, Probiotic, Flaxseed oil capsule, multivitamin with Iron
Also have osteoporosis and high blood pressure
Remicade NOT an option. Not a candidate for surgery yet..says surgeon.