Tapering Remicade and 6MP for pregnancy - help!

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jones_77
Regular Member


Date Joined Dec 2005
Total Posts : 77
   Posted 10/5/2008 7:46 PM (GMT -6)   
Hey all,

I'm just returning from a one day CCFA symposium here in Maine, and my spirit's feeling a little broken. I've been on 6MP (50mg/day) and Remicade since March, and I've been doing so well. This is the longest - by far!! - that I've ever gone without flaring since I was diagnosed in 2003. I'm not crazy about taking these drugs to begin with, and I'd been planning to taper off 6MP in November and Remicade in February so that my husband and I can start trying to conceive in the spring/summer of next year.

Here's the thing: One of the presenters yesterday showed us a chart of patients who stay in remission after they stop taking Remicade and 6MP and the stats are not. good. I know that many, many doctors advise that an active flare is much more harmful to a fetus than an active drug, but I'm simply not willing to take the risk of Class D drug (6 MP). I might consider staying on Remicade, but again - mouse hormones + pregnancy = super wary of this.

Am I being delusional here? I'd love to hear from those of you who have gone off 6MP or Remicade and what worked (or didn't) to help you maintain health. I'm enormously grateful to these meds for giving me my life back, but I'd like to be able to have a healthy life without them, if at all possible. Surgery was mentioned as the thing that would "cure" UC, and though I shudder at the thought, I wouldn't rule it out.

Thanks so much - blessings to all.

Jones

_______
Left-sided UC to 40cm
6MP (50 mg) + Remicade every 8 weeks
Supplements include Omega 3's, multi-vitamin, Vitamin D3 (2,000 per day), probiotics and prescribed Chinese herbs.

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 10/5/2008 7:55 PM (GMT -6)   
You might stop the 6-MP first, and that doesn't require a taper. My GI took all of his Remicade patients off immunosuppressants due to the very small increase in lymphoma seen in people taking both.

As far as the Remi, I started out getting the induction series, then had to stop due to insurance issues. It kept me quite a bit better for about a year. I was also lucky enough to be able to re-start it 18 months later, but not everyone is able to tolerate Remi after they've once stopped taking it.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

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