Years in remission????

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wvueer
New Member


Date Joined Sep 2008
Total Posts : 7
   Posted 10/5/2008 7:22 PM (GMT -6)   
i have been in remission for approx. 5 years.  I'm on colazal (3 pills 3x a day) & imuran (150mg a day).  I am just wondering if anyone knows if there have been people that have been in remission for 10, 20 or even 30 years?? Some days I feel like at any moment I am going to be in a flare like I was last time - 27 days in the hospital and  1 day away from surgery. 

Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 10/5/2008 8:03 PM (GMT -6)   
I so know how you feel. I've been in remission for about a year and a half. I was in the hospital for 25 days, sent home with a pic iv because I contracted a staff infection, and C-Dif while in the hospital. I'm thankful for the remission, but I too wonder when I will step out of it. I do pray that I stay in for a while though.
26 year old, Married, Female.
Diagnosed with UC since March 2007
Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 10/5/2008 8:22 PM (GMT -6)   
As you can see in my signature, I have enjoyed a very long remission. I really, really hope I can achieve that again. So, as you can see, it is possible. Good Luck.
*******Donna*******
 
South of Boston, Ma
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.
 


xpsunny
New Member


Date Joined Oct 2008
Total Posts : 9
   Posted 10/9/2008 8:16 AM (GMT -6)   
My dad is in remission since 32 years (he is 51 years old right now).....believe it or not. He has a marvelous psychological control over UC.
18 years old male.

Diagnosed with Left Sided UC on May 2006. In remission since June 2008. Reason for Flaring: Reaction to Nickel Metal Present in Dental Braces.

Current Medicines: Kutajganwati 2 tablets twice a day (it's an Ayurvedic Preparation with zero side effects).


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 10/9/2008 9:15 AM (GMT -6)   
I've been in Remicade remission for over three years.

Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


LightenUp
Regular Member


Date Joined Jun 2008
Total Posts : 20
   Posted 10/9/2008 12:19 PM (GMT -6)   

...and now I'm confused. I distinctly remember reading a definition for UC remission that said something to the effect that remission from the disease is full absence of any of its symptoms while not being influenced by medication. In other words, after you complete your Remicade treatments Loneylane, after I can fully taper off this dam*ed Prednizone and the rest of the drugs in my sig. line, etc.

Am I wrong? I have seen other posts by some who live a drug-free life and say they are in UC remission and it sounds like a thing of beauty.

Even though my own symptoms are virtually nonexistant for the last several weeks (thank you Lord!), I'm not inclined to claim remission because I fully believe it's the drugs that are responsible and that any deviation from that routine and I'll soon find myself back on the UC treadmill.


Darryl, 58, Male, FL
Dx w/ moderate left-sided UC in 1999
Meds:
Colazol, 6 per day / Methotrexate, one 5mg injection each week /  Prednizone, 10mg per day / Calcium, 1200mg per day / Zocor, 40mg per day
Good news? Never seem to have complications from any meds.


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 10/9/2008 12:22 PM (GMT -6)   
That's exactly why I said Remicade remission. To me, having no symptoms while taking Remicade is a remission I'll take.

Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


cycling_sasquatch
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 10/10/2008 9:20 AM (GMT -6)   
My father hasn't had major problems for over 20 years. No major UC symptoms in that time (and no cancer!) He's 65. He still gets diarreah from time to time, depending on what he eats and stuff, but nothing major.
UC diagnosed Dec. 2006
Azathioprine 200mg/day
Multivitamin, fish oil, fiber supplement, Nature's Way Primadophilus Optima, Digestive Advantage Crohn's & Colitis


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 10/10/2008 12:14 PM (GMT -6)   
I felt that way at first, but over time, I've learned how to monitor and manage my UC so that I no longer fear it ever getting to the point where I'm as sick as I was when diagnosed.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 10/10/2008 1:07 PM (GMT -6)   
I know how you feel! It would be amazing to be in remission for long periods of time, especially through my 20's. I think the definition of remission is different for everyone. To me being on maintenance medication and feeling good is remission. I would much rather be on medications and feel great than take the risk of stopping them and flaring again. I take 9 UC related pills a day and I'm totally cool with that.
Sam 19 year old college student
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, 600mg calcium with vitamin D
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou

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