I was hospitalized twice for UC. First time ten years ago when I was diagnosed and last time this past May for ten days. My UC is located in the rectum, although my CT scan showed inflammation throughout the colon when I was admitted. At first I was on a liquid diet in the hospital, but not getting enough nourishment. They then put in a PIC line and I received my meds through it and they could do the blood draws.
I'm STILL in this flare and not able to get off the prednisone. Saw my GI doctor today. I am tapered to 25 mgm of the pred and he increased the 6MP to 75 mgm. We'll see how that goes. I too was told my UC was mild!!! LOL!! Easy for them to say huh? Prednisone does keep it at bay but it has bad effects on the system. I have terrible insomnia. Even the Ambien doesn't work for me anymore. I also have high blood pressure, which increases with the use of pred and osteoporosis.
The bleeding stops about the second day I take the prednisone. Unfortunately, I have only been off pred for a grand total of four weeks out of six months, not consecutive either. You can see my long list of meds at the end here.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Still flaring. Afraid that I am pred dependant. Back on Pred 40 mgm for five days, then taper. Other meds...Colazal, 6MP, Nexium, Cort enemas, Canasa suppository, Benicar, Toprol xl, water pill.
Calcium, Probiotic, Flaxseed oil capsule, multivitamin with Iron
Also have osteoporosis and high blood pressure
Remicade NOT an option. Not a candidate for surgery yet..says surgeon.