Nightmare doctors visit - VENT!!!

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Regular Member

Date Joined Apr 2008
Total Posts : 128
   Posted 10/6/2008 4:51 AM (GMT -6)   
Background - been on Azathioprine 100mg for about 5 months (not seeing any difference in symptoms). Last time I seen specialist nurse about 6 weeks ago she told me to stay on 2.5mg pred and use predsol enemas at night and predfoam in the morning. Cannot tolerate predfoam in the morning it seems to just act like a clear out enema and I am on the loo until it seems everything is out of me so I have only been using predsol at night.
Had doctors appointment last Thursday so 1 week before going i stopped the oral pred as I knew he would tell me to do that anyway and I figured if things would get worse I wanted that to happen for my visit and anyway I was starting to feel good anyway I had also reduced the predsol to every second night (hate using them although I will if I have to).
Anyway went to doctors appointment and had to take my 3 year old son with me. I had toy cars, juice, sweets everything to keep him occupied. Firstly I was taken half an hour late for appointment so already my son had sat this long being very good then went into doctors room and my doctor took a phone call which lasted at least 5 minutes and can I add that this was not a medical phone call. Any way he finally got around to dealing with me and came out with "you need to help yourself" "your problem is when you are ill you expect me to fix you well I have not got a magic wand".  My son sat cuddling me and playing with my hair being very quiet.  Well, twice my doctor told him to settle down although he was not playing up. Then on the 3rd occassion he said "come on son, settle down you have your mother for the whole day, I only need 5 minutes of her time now let me speak to her" and this was said in quite a forceful voice to which I responded "look he is not bothering me I am quite capable of ignoring him and listening to you so can you do the same" aaaarrrrgh. He really p'd me off. Anyway I came out being told to use predsol for a full 3 months - (to help myself)!!!!!
Sorry about the rant and long posting but was just a bit annoyed. By the way when he had a go at my son my son just kind of looked at him like he was a nutter as he was probably thinking to himself you think this is playing up wait till you really see me in action!!!!
32 year old female
UC diagnosed 2001
Asacol 6 per day
Azathioprine 100mg started 4/08
Steroids 5mg per day

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 10/6/2008 7:29 AM (GMT -6)   
Some docs are clueless sheesh.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
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Regular Member

Date Joined Aug 2008
Total Posts : 50
   Posted 10/6/2008 7:47 AM (GMT -6)   
I changed doctors a while back - I don't know if this one is necessarily better than the last, but the big difference is that I can communicate with her - she responds to e-mails quickly and engages. The last one was fine, but his staff were impossible - getting an appointment or a repeat prescription could take more than an hour on hold and getting passed around from person to person. The old doctor apologised for this. But the cumulative effect was that I didn't get a sense of overall support. I have this now with the new doctor.

UC has a psychological element - even if you don't think it has a direct bearing on physical symptoms (which evidence suggests it has, but that's another discussion) your experience of the disease will be necessarily a lot to do with your state of mind about it. Feeling that you lack the support of a medical professional is going to make your experience of UC worse I think.

Of course, it's a matter of luck whether you have a doctor you feel comfortable with. But if you don't have to, I would say that settling for someone you don't feel is fully on your side is not worth it.
Diagnosed November 2007
10cm moderate
Canasa 1000mg 2 per day, Asocol 2x2 per day, Digestive Advantage Crohns and Colitis probiotic, Animal Pak multivitamin, Aloe gel, concentrated fish oil

Veteran Member

Date Joined Jun 2008
Total Posts : 742
   Posted 10/6/2008 8:18 AM (GMT -6)   

I agree with PalaceDan completely.  I had a doctor that was awful to me, and I actually cried in his presence (something I would NEVER typically do).  I cried because his lack of sympathy and professionalism was more than I could handle after months of bleeding, diarrhea, cramping and outright misery.  You can only be expected to handle so much.  Part of your healing has to include a feeling of confidence in your doctors.

And what is this business of "helping yourself?"  What does he think you're there for?  If you could help yourself, would you voluntarily subject yourself to waiting rooms and co-pays and terrible medications?  What an idiot.

Lastly, I have to say that if ANYONE tried to discipline my two-year-old after having him wait patiently for over a half hour, I would probably slap him across the face.  How DARE he???

I'm sorry if I sound all angry, but I really feel for your situation because I've been there.  I think you should look for another doctor who's more sympathetic and professional.  Just my opinion.

Good luck and I hope you don't have to go through that ever again.

Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 3X daily, Zoloft 50 MG daily, Bentyl 20 MG as needed.
Diet/Exercise:  Spinach/sunflower and low-residue.  Yoga and walking.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare

Veteran Member

Date Joined Dec 2006
Total Posts : 517
   Posted 10/6/2008 8:56 AM (GMT -6)   
Unless you've been with this doctor for a long time and trust him completely, or there are no other doctors around, I'd drop him. But first, get your son really wound up, and then take him with you to an appointment. Then when your doctor gets annoyed, tell the doctor to calm down, and the the doctor know that while you will have your son all day, you expected that your doctor would have more than five minutes to spend with a sick patient. Then tell him what to do with his magic wand.

(okay, I'm a little grumpy right now, but that doc needs to work on his bedside manner!)

36 y.o. male
Diagnosed w/ moderate UC in May '06
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema, Prednisone (trying to taper down)

Post Edited (beartooth) : 10/6/2008 8:32:59 AM (GMT-6)

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 10/6/2008 9:20 AM (GMT -6)   
Well I guess we see why he didn't go into pediatrics. He probably has a very low tollerance for children but that does no excuse his rudeness to you.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

New Member

Date Joined Jun 2008
Total Posts : 11
   Posted 10/6/2008 1:57 PM (GMT -6)   
I feel your pain, my GI did not have time to see me, I finally switched after seeing him 3 times in 5 months (I couldn't get in aside from that). It actually took me two months to get a follow up after I was diagnosed, he told me to look it up on the internet and schedule a follow up, which was with his nurse practitioner, not him. I thought I was overreacting, and that bleeding for 6 months was just part of the gig, all he tried was canasa until last month. (I was diagnosed in May)

Veteran Member

Date Joined Jun 2008
Total Posts : 2865
   Posted 10/6/2008 3:16 PM (GMT -6)   

I always see my doctor's NP.  She is so much more compassionate than the doctor.  He is good and confers with her about my case but never seems to have the TIME to spend she does.  I prefer it that way.  However, if I wanted to only see the gastro doctor - I could schedule that also.

This disease is bad enough, hard enough to deal with, etc. and then to have a doctor who does not listen, seems to know our bodies better than we do - no good.  Get a new one.


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol

Regular Member

Date Joined Aug 2008
Total Posts : 149
   Posted 10/6/2008 3:46 PM (GMT -6)   

IMHO these GI doctors are pretty much worthless, they are only good for getting you the meds.  Really all the medical society does today is treat the symptoms, treatment for this disease is pretty repetituous, and slowly over time you have to change things up cause stuff stops working. After having UC for awhile you will have tried about every drug out there, so you learn what your options are or what works.  I dont know this is really just my opinion i guess, i rather not see a GI spec anymore alls they do is crame pills down my craw, i dont expect anymore from them.  Hopefully i can continue to self medicate through diet and natural supplements and leave the specailists out of it, hey why not they dont know crap about the disease anyways. And I am doing better than ever currently. Do i feel that i am better than them at treating this? YES I DO.



26y old male medically disharged USAF veteran.Diagnosed with UC (lower proctitis) in 2004.
Current daily treatment:                               Probiotics & supplements:
                                         50 Billion CFU's acidopholis&Bifidobacterium daily
2400mg oral asacol                                      Digestive enzymes
15mg prednisone tapering                             5grams of glutamine
75mg azathioprine                                       folic acid & calcuim with V-D
20mg Nexum                                               Whey protien  
Diet:Little/no sugars, fats, carbs, caffine,sugars,yeast. Stay natural as possible.  
Results:1 Bowel movement in the morning no blood! Remission since 08Sept08

potty girl
Veteran Member

Date Joined Dec 2006
Total Posts : 835
   Posted 10/6/2008 4:43 PM (GMT -6)   
just wondering did he explain how you where suppose to help yourself, when him being a doctor cant seem to help. I would find a different doctor, I went threw a couple before I found one that actually seemed like he cared. Alot of them is just in it for the money.

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,

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