went to another second opinion last wed.

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Regular Member

Date Joined Feb 2007
Total Posts : 344
   Posted 10/6/2008 3:41 PM (GMT -6)   
I had been considering all sorts of treatments and even surgery.

The new doctor, who my GI who saved me from bad doctors originally - had recommended, told me surgery is crazy for me. He mentioned how lots of doctors ignore the overlap of IBS and UC. He put me on a higher dose of asacol (4, 3 times a day) and rowasa and canasa every other day (I tried canasa over the summer but it wasn't enough and this is my first try with rowasa), and brand name Konsyl (fiber supplement) which you have to request at the pharmacy for bulking. I have had maybe 3 bms the since sat morning. I think I might have started to go into remission even though i am tapering ( went down to 25 mg on sat.). I feel different, still a little cramping but urgency has disappeared. I'm in shock almost that almost 4 years of thinking about using the bathroom all the time could be fading. I'm really happy and relieved but don't want to get my hopes up. Just figured I would share my experiences as so many people have. Knock on wood for me.
Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, dicyclomine (still flared), Remicade - 7 treatments (stopping because no dramatic changes), allergy shots (03-07), levbid
Current meds: Asacol 4 - 3x, Aciphex (acid reflux), prednisone 25 mg now tapering, rowasa and canasa every other night, konsyl (fiber for bulking stool), multivitamin, caltrate 2x a day. probiotic (florasmart), astelin (nasal spray as needed for allergies), fosamax (bone density)

Post Edited (ThePostModernIrony) : 10/6/2008 3:44:17 PM (GMT-6)

Veteran Member

Date Joined Jun 2008
Total Posts : 742
   Posted 10/6/2008 8:41 PM (GMT -6)   
Wow, you have been through a lot and for a LONG time.  I really hope you're headed toward remission.  Four years is a very long time to suffer.  I'm knocking on wood for you. wink
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 3X daily, Zoloft 50 MG daily, Bentyl 20 MG as needed.
Diet/Exercise:  Spinach/sunflower and low-residue.  Yoga and walking.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare

Regular Member

Date Joined Oct 2008
Total Posts : 67
   Posted 10/7/2008 1:17 PM (GMT -6)   
I have now annoyed the neighbours by knocking on wood so much for you. Glad you've had some relief at long last - long may it last!! Three cheers for your new doc as well.
UC - diagnosed Sep 2008
Seeing GI for first post hospitalization consultation Oct 9th - should get full diagnosis then

Omeprazole 40mg
Prednisolone 20mg
Calcium (Adcal-D3) 3000mg
Mesalazine 4000mg
Mesalazine foam enema
Probiotic (acidophilus)
Any types of green leaf - big time.

Veteran Member

Date Joined Dec 2006
Total Posts : 517
   Posted 10/7/2008 5:10 PM (GMT -6)   
I hope that you've found the formula to keep you good for a while. It'll be quite an adjustment to to be able to think less about the bathroom, and more about you can do because you're not chained to the toilet.
36 y.o. male
Diagnosed w/ moderate UC in May '06
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema, Prednisone (trying to taper down)

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