I can't live, if living is without probiotics

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damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 10/7/2008 11:21 AM (GMT -6)   
To paraphrase Mariah Carey's song my bowel seems to need large dosages of probiotics to function properly. Once I stay on these high dosages everything seems fine. I can get to 1 or 2 BM per day no problem. But any drop off from these high dosages and the bowel doesnt function as well. Complete drop off and the bowel growls with gas and moans with mucus.
 
What does this say about my bowel? Has it build up a dependence to probiotics? Do I have a problem retaining the good bacteria in my gut? Is correcting an imbalance of flora in your gut a really long term issue.
 
Thanks,
 
D
  
Probiotics and maintenance 5ASA's in rectal form
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/7/2008 12:42 PM (GMT -6)   
Most definitely correcting an imbalance of your gut flora is long term...IBDers (as well as IBSers) tend to have bacterial overgrowth issues which is why probiotics are essential indefinitely, flaring or not you should continue with probiotics to help keep gut flora balance. Because of the overgrowth issue that would cause you to have issues with having problems retaining good bacteria.

You have not built up dependance in a matter of speaking, your gut flora needs balance and as an IBDer you have to take supplements (probioitcs) in order to keep things running smoother.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 10/7/2008 1:48 PM (GMT -6)   
how much do you take?

ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 10/7/2008 5:11 PM (GMT -6)   
I agree 100%. I function so much better when I take probiotics (60 bil). I can usually skip two or three days but I start noticing that things are on the decline when this occurs. I don't start flaring but I can tell that my body likes the probiotics just by noticing the way I react when I come off or skip a few days. Bifido bacteria are a staple in my natural way of staying in remission med-free. I wish it would work for everyone with UC.

I strongly attribute my probiotic usage with maintaining my remission status. I also think that they are good for prevention aids for flares. Once you start flaring, the benefits of probiotics seem to go down the toilet... pun intended.

mh53mike
Regular Member


Date Joined Aug 2008
Total Posts : 149
   Posted 10/7/2008 5:13 PM (GMT -6)   
Yeah i have read trying to balance the gut flora can be a long term process. And maybe your good bacteria isnt forming the colonies it should be. Probiotics alone cant really balance a really messed up gut, you need to change the diet and take natural or prescribed antifungals and bacteria killers. Or maybe you will never get it right and just take the probiotics forever.
26y old male medically disharged USAF veteran.Diagnosed with UC (lower proctitis) in 2004.
 
Current daily treatment:                               Probiotics & supplements:
                                         50 Billion CFU's acidopholis&Bifidobacterium daily
2400mg oral asacol                                      Digestive enzymes
15mg prednisone tapering                             5grams of glutamine
75mg azathioprine                                       folic acid & calcuim with V-D
20mg Nexum                                               Whey protien  
                                                                Multivitamin
Diet:Little/no sugars, fats, carbs, caffine,sugars,yeast. Stay natural as possible.  
 
Results:1 Bowel movement in the morning no blood! Remission since 08Sept08


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/7/2008 5:51 PM (GMT -6)   
The bacteria in probiotics aren't nearly as durable as the bad bugs in our system. That is why we have to keep taking them. If it was as easy as taking a couple of rounds of pro-bs and everything would be happy again, I think we'd all have a lot less trouble. It is especially important if you've had overgrowth of the bad stuff, or been on long term antibiotics. I've often noticed that I notice if I skip my probiotic dose, I can tell a lot faster than if I miss a prescription med dose.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema, Prednisone (trying to taper down)


SocalJohn
Regular Member


Date Joined Oct 2008
Total Posts : 160
   Posted 10/7/2008 5:56 PM (GMT -6)   
I keep hearing everyone talk about Probiotics. Ive never taken them. Can anyone give me a brief overview/summary, or point me to a good resource? What kind do you guys take (brand, quantity, etc)?

beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/7/2008 6:20 PM (GMT -6)   

Here's a wikipedia link on probiotics:

http://en.wikipedia.org/wiki/Probiotic

To get ideas of what people take, look at their signatures.  Most people list their meds, supplements, and probiotics.  Each different formula has different benefits, and some people respond better to one kind than another.  When you start taking them, if one doesn't help you, don't lose faith, just try a different brand.  I don't think I've seen anyone here who hasn't benefitted from the use of probiotics. 


Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema, Prednisone (trying to taper down)


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 10/7/2008 6:25 PM (GMT -6)   
Probiotics are a form of beneficial bacteria produced by labs to be used by the consumer to increase their numbers of "good" bacteria. The human intestines contain trillions of bacteria and organisms that are in harmony with the humans they live in.

Not all of these organisms are harmless. There are pathogenic yeasts and bacteria that are normally present in every human being in small amounts. However, things like antibiotics, stress, and poor diet can cause an imbalance. The healthy "good" bacteria normally keep the bad guys in check but when the scales tip there is an overgrowth of harmful pathogens that can cause numerous health problems.

Many people take probiotics to stack the deck in their favor by maintaining high levels of supplemented organisms. I don't want to give you a bio lesson here, it can be a little overwhelming at first. Many searches under: Probiotics, bifidobacteria, lactic acid bacteria, etc. should point you in the right direction.

There are many reputable dealers of probiotics out there, just make sure numbers are in the billions of live cells and they are enterically coated to keep stomach pH from killing them. Nature's Way is a confirmed good source. Hope this helps.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/7/2008 7:03 PM (GMT -6)   
SocalJohn said...
I keep hearing everyone talk about Probiotics. Ive never taken them. Can anyone give me a brief overview/summary, or point me to a good resource? What kind do you guys take (brand, quantity, etc)?




I highly recommend the one I use, Primadophilus Reuteri made by natures way, it should be in most health foods (in their fridge as they must be kept cold, only downside), only 1/day is needed, it has guaranteed intestinal release (won't die off in the stomach acid) and aids high cholesterol and lactose intolerance (which many IBDers get but often don't notice because symptoms are masked by the IBD symptoms).

It's affordable mainly because only one/day is needed, in Canada I pay 29.00 for 90 caps, that of course lasts me 90 days, many of them cost that much or more and you're expected to take up to 4/day from a bottle of 60.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4412
   Posted 10/7/2008 8:37 PM (GMT -6)   
damo,

What kind of probiotics do you take? Glad they're working so well for you. I'm sorry I don't know the answers to your questions.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 10/8/2008 4:03 AM (GMT -6)   
I'm taking the max dosage of 3 kinds of probiotics. So I guess I'm taking triple the normal dosage. I guess I could take 3 times the normal dosage of just one brand but I thought it better to expose my gut to different products. I'm taking Yakult in fermented milk form, Acidophilus in a minty sweet form we have over here in Ireland and then a really strong for of probiotic in capsule form.
Probiotics and maintenance 5ASA's in rectal form
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 10/8/2008 9:05 AM (GMT -6)   
I agree it's a long-term deal. You may also need to look into eliminating bad gut flora with some type of antimicrobial supplement as opposed to only crowding them out with probiotic supplementation. I've found the dual approach works better for rebalancing the gut.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


Sunshineonmyface~
Regular Member


Date Joined Sep 2008
Total Posts : 202
   Posted 10/8/2008 10:04 AM (GMT -6)   
I tried the oregano oil and it hurts my stomach.
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