I think I have a drinking problem (not that kind)!!

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twoply
Regular Member


Date Joined Jun 2008
Total Posts : 24
   Posted 10/7/2008 12:08 PM (GMT -6)   
Someone tell me they have or had this.

I can't drink milk due to lactose. I can't drink fruit juices or lemonade or gatorade as the acid gives me heartburn and indigestion. I can't drink tea as the caffeine affects me. I can't drink soda as the carbonation causes too much gas. I'm down to water.

I feel bloated a lot of the time. I started taking DA probiotic but I think it also caused more gas and bloating and a lot of D. I'm a big drinker in the sense that I consume a lot of liquid. Water is fine for a while but I sometimes have cravings for some flavor!!!

Has anyone else had this experience?? What can I do??

Thanks for listening.


shocked
Dx w/ UP in 2005; Dx with UC in 2008
Currently taking: Lialda and Mesalmine Enema (1x per day); Tricor for Cholesterol
Male; age 42; Located in Atlanta


kops2da
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Date Joined Jun 2008
Total Posts : 2865
   Posted 10/7/2008 12:53 PM (GMT -6)   

I get very tired of water also.  Only suggestions I have is herbal teas - I drink Celestial Seasonings peppermint - no caffeine in herbal tea as it is not actually a "tea". 

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


Samynic
Regular Member


Date Joined Aug 2008
Total Posts : 56
   Posted 10/7/2008 12:54 PM (GMT -6)   
crystal light...either the bottle packages or make a whole 2 quarts

no sugar, no calories...pretty must just water with a better taste
22 years old
Diagnosed with UC June 2005 at age 19
Just graduated from Virginia Tech

Have taken:
Cortifoam, Sulfasalazine, Cipro, Flagyl, Codine, Hydrocodone, Roxicodone, Canasa, Aloe Vera Juice

Currently:
Asacol, Dicyclomine, Prednisone,Zoloft, Probiotics, Flintstones Vitamins with Iron


JrNYC
Regular Member


Date Joined Mar 2006
Total Posts : 66
   Posted 10/7/2008 12:55 PM (GMT -6)   
As far as milk try Lactaid... works for me, fruit juices can be tough I water down my OJ or buy the reduced acid version of tropicana. Soda and gatorade your better off with out its all sugar. I was getting acid in my throat and then diarrhea after drinking sports drinks because i thought I needed it after rigorous workouts. But in reality as long as you eat nutrient packed foods and wash it down with water your good to go. Hope this helped. By the way Lactaid makes darn good ice cream :)
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kops2da
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Date Joined Jun 2008
Total Posts : 2865
   Posted 10/7/2008 1:13 PM (GMT -6)   

Crystal light is good if you can tolerate the artificial sweeteners but I can't!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


dakotagirl
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Date Joined Apr 2006
Total Posts : 3402
   Posted 10/7/2008 1:34 PM (GMT -6)   
What about decaf tea? Hard to get when you're out to eat...

I cannot do the Crystal Light packets as the artificial sweeteners cause major discomfort. However, Celestial Seasonings has a version using stevia - I don't have any problems with that.

I will water down lemonade or fruit juices about 50-50. That helps me with the acid issue at times.

I also have better luck with fountain soda than canned sode - on the rare occasions that I drink it. Or I pour the canned soda over ice...

I hope you find some answers as plain water gets very boring!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next infusion: 10/07/08
Last Prednisone dose:  7/15/08
 
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Kiss520
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Date Joined Jun 2008
Total Posts : 742
   Posted 10/7/2008 1:37 PM (GMT -6)   
Lactaid is great for chocolate milk, too, since its kinda thick and sweet. So yummy!
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Asacol 1200 MG 3X daily, Cortenama 100 ML nightly, Iron 325 MG 3X daily, Zoloft 50 MG daily, Bentyl 20 MG as needed.
Diet/Exercise:  Spinach/sunflower and low-residue.  Yoga and walking.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa.
Status:  Flare
 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 10/7/2008 1:57 PM (GMT -6)   
I'm with you on this one! I get soooo sick of water but I can't drink much else. I sometimes drink soda fountain drinks too but usually either Sierra Mist or Sprite. I do indulge in coffee and yes it bothers me but I refuse to give it up :)

Crystal light! Ugh that stuff will do me in! What about Kool Aid? You can try using Stevia to sweeten it instead of real sugar.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
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twoply
Regular Member


Date Joined Jun 2008
Total Posts : 24
   Posted 10/7/2008 2:34 PM (GMT -6)   
Thanks. At least I'm not alone on this. I have used Lactaid but I'm afraid it will still give me bad D and cramps. I may try watering down some juice but that's not much of a choice.

I can't stand Crystal Light. I guess it's water for the most part.


On another note, can you get probiotic yogurt without lactose in it? The lactaid pills don't seem to work for me.

Thanks all.
Dx w/ UP in 2005; Dx with UC in 2008
Was taking: Lialda and Mesalmine Enema (1x per day);
Now Taking: Colazal (9 per day); can't retain enema any more; tried probiotic (DA) but not taking regularly
Tricor for Cholesterol
Male; age 42; Located in Atlanta


potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 10/7/2008 3:43 PM (GMT -6)   
You could also try soy milk, especially Silk vanilla flavored or chocolate flavored. 
 
I don't know about the yogurt.
 
 
Potato...  Female, 58, dx 11/07 mild left sided ulcerative colitis (50 cm)
asacol 3 3x a day, cortenema (generic) pm rowasa every other day 
culturelle, benefiber wafers  generic acidophilus, metamucil wafers, activia yogurt, spinach & sunflower diet, primadophilus reuteri
children's vitamin, Vitamin E 400 mg, omeprazole 2xday
oxazepam when needed, lomotil or ImodiumAD when needed
Yoga, meditation, The Work by Byron Katie, exercise at least 5 days a week
 
 
 
 
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 10/7/2008 4:29 PM (GMT -6)   

Some good info here....

 

New diagnosed with proctosigmoiditis - 6/2008
10/3/2008 - agreed to try one Lialda and one Canasa every day due to my sensitivity to all medications and side effects. Colonoscopy 10/28 to reaccess.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


vega19
Regular Member


Date Joined Sep 2008
Total Posts : 91
   Posted 10/7/2008 4:32 PM (GMT -6)   
I'm pretty much down to water also with the occasional sprite thrown in when I feel like living on the edge. I put some wild berry flavored aloe vera juice in my water just to give it a little flavor.

31 year old female diagnosed with UC (entire colon) Feb 2008
(4) 400mg Asacol 3x a day
Remicade 10mg/kg every 8 weeks 6 weeks
Rowasa enemas nightly
Omega 3 supp, calcium supp, probiotics
metamucil wafers
Prednisone again!!  30mg


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 10/7/2008 4:42 PM (GMT -6)   
I am in the same boat I drink nothing but water and decaf tea, but I really like green tea so I dont really miss the soda and other stuff. I throw a cinnamon stick and or crystallized ginger in my hot tea every now and then. The ginger helps for upset stomach also.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 10/7/2008 4:45 PM (GMT -6)   
Vitalyte. Great electrolyte beverage without the crap. Made with glucouse instead of sucrose but very light in sugar and flavor. You can purchase it at REI stores or online at www.vitalyte.com Buying in bulk is cheaper than by packet.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 10/7/2008 5:02 PM (GMT -6)   
Silk is a good one. I've tried their chocolate flavor and it takes like normal chocolate milk.
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort
 


mh53mike
Regular Member


Date Joined Aug 2008
Total Posts : 149
   Posted 10/7/2008 5:19 PM (GMT -6)   
You could drink that flavored water..Propell. Hey its kind sporty too so maybe it will make you feel like you worked out too!
26y old male medically disharged USAF veteran.Diagnosed with UC (lower proctitis) in 2004.
 
Current daily treatment:                               Probiotics & supplements:
                                         50 Billion CFU's acidopholis&Bifidobacterium daily
2400mg oral asacol                                      Digestive enzymes
15mg prednisone tapering                             5grams of glutamine
75mg azathioprine                                       folic acid & calcuim with V-D
20mg Nexum                                               Whey protien  
                                                                Multivitamin
Diet:Little/no sugars, fats, carbs, caffine,sugars,yeast. Stay natural as possible.  
 
Results:1 Bowel movement in the morning no blood! Remission since 08Sept08


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/7/2008 5:38 PM (GMT -6)   
You sure know how to narrow your choices down. Have you ever tried those lightly flavored waters? Someone makes ones that aren't carbonated, but have just a hint of flavor to them. I don't mean like Vitamin Water, because I assume the juice aspect would be a problem for you. I'm lactose intolerant as well. I use Silk soy milk, vanilla flavor. I wish I could suggest something to make water more interesting for you. I drink a ton of water every day too, but I can do a little variety with fruit juices and Gatorade. Soda has been off limits for a while. Hope you find something to make your water a little more exciting.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema, Prednisone (trying to taper down)


twoply
Regular Member


Date Joined Jun 2008
Total Posts : 24
   Posted 10/7/2008 7:02 PM (GMT -6)   
Thanks for all the feedback. I'll check into the Soy milk. I forgot to mention that I occasionally drink Snapple (Kiwi Strawberry). It's got a lot of sugar but it has not affects. I've had a hard time finding it but it's a nice diversion. Remember when Snapple was huge - back in the Seinfeld days!!
Dx w/ UP in 2005; Dx with UC in 2008
Was taking: Lialda and Mesalmine Enema (1x per day);
Now Taking: Colazal (9 per day); can't retain enema any more; tried probiotic (DA) but not taking regularly
Tricor for Cholesterol
Male; age 42; Located in Atlanta


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 10/7/2008 8:26 PM (GMT -6)   
Have you tried soy or rice milk? I like the chocolate flavored kinds, but the added sweetness might not sit well with you. There are lots of great teas with no caffeine. I've been drinking a lot of ginger tea lately.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/10/2008 12:06 AM (GMT -6)   
Go to whole foods and check out their flavored waters. They don't contain sugar or artificial sugars. It is just fruit and water. I like the metromint one. Also, I buy the juices I used to like and add a shot or two to a glass of water. I handle that fine and it is just flavored water. Sometimes I can drink the V8 Mango Peach drink straight. My grocery store used to sell "O water" too... which was just fruit and water. I know they are loaded with sugar but I tolerate capri suns just fine.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/10/2008 10:58 AM (GMT -6)   
I like decaf green tea with a bit of honey it it. The caffeine bothers me too, it's a bummer!

I bought an iced tea maker which I love, my husband thought that was the weirdest thing to buy and now he uses it more than I do. I got my friend one too and she loooooves it!
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 5mg/2.5mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/10/2008 4:11 PM (GMT -6)   
I like Propel, the grape flavored is my favorite. It's pretty watery and not too sweet (low-carb, too), and reminds me of grape Kool-aid I loved as a kid.
But I made the mistake of using it to mix my colon prep...so I might not want it for a while...
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 2400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy, dairy-free diet. Replete probiotic. 
Achieved remission for the first time in many, many years!? 
Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & now recovering from irritation scope caused. Will be using Rowasa again. But I AM better.
 
 


cooper67
Regular Member


Date Joined Oct 2008
Total Posts : 30
   Posted 10/13/2008 4:07 PM (GMT -6)   
Peety,i see that you have gluton intolerance.I was diagnosed with UC in 2003 and last week was diagnosed with celiac disease as well.I am on Colazal now and am waiting to hear back from my doctor today or tomorrow to get started on a gluton free "lifestyle".Do you have any websites that would be helpful for me or any other suggestions.I have been looking through this web site to see if there are any people out there with both UC and Celiacs.I have lots of questions!

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/13/2008 4:37 PM (GMT -6)   
cooper67 said...
Peety,i see that you have gluton intolerance.I was diagnosed with UC in 2003 and last week was diagnosed with celiac disease as well.I am on Colazal now and am waiting to hear back from my doctor today or tomorrow to get started on a gluton free "lifestyle".Do you have any websites that would be helpful for me or any other suggestions.I have been looking through this web site to see if there are any people out there with both UC and Celiacs.I have lots of questions!
I simply google "gluten" and whatever food I'm wondering about, and some info comes up from different sites or message boards -- not very scientific! Most of the boards seemed to deal with people who were highly allergic, that's not me.
I didn't eat a lot of bread anyway, since lo-carb helps me control my weight. And there are gluten-free beers, yay! That was the greatest discovery. But restaurants don't have them, too bad. My grocery has a health-food section with gluten-free pasta and frozen bread (it's yucky), etc. and our community health food grocery (I live in a college town) has a binder listing what is gluten-free on every aisle. Amy's (rice) mac and cheese is delish, as are gluten-free cookies! Some of the large chain restaurants have gluten-free menus, I've checked some and it's been pretty obvious: no pasta and nothing breaded.
I lost a few pounds at first from not knowing what to eat besides fruit... then I discovered I could eat potato chips...
Congrats on knowing, you'll feel much better now, I certainly did!! Start a new thread, it would be interesting since I haven't seen one in a while.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, now Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


bratcat
Regular Member


Date Joined Jan 2007
Total Posts : 74
   Posted 10/13/2008 5:12 PM (GMT -6)   
I know you said that carbonation in soda causes problems of gas but have you tried seltzer? After being diagnosed with UC I drank LOTS of seltzer and still do. Soda upsets my stomach more than causes gas but with seltzer it just causes a small amount of gas. Flavored seltzer changes the taste of drinking something bland and it's also not bad for you either. I can drink 4 liters a day and it doesn't cause any problems more than just a smidget of gas.
Diagnosed with UC 10/12/06
Daughter of Bennie
17 years old
Flared 3 times in a year and a half tried almost all medicines
Current Meds:None!!
JPouch Step 1 of 2 on July 3

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