how many of you have stopped working cause of UC?

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cyn555
Regular Member


Date Joined Aug 2008
Total Posts : 309
   Posted 10/7/2008 2:41 PM (GMT -6)   
i wanna know how many of you guys have stopped working cause of UC?
 
- 23 year old female, Gatineau, Quebec
 -diagnosed with UC june 2007 panacolitis
- Asacol (6 daily)800mg


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/7/2008 3:04 PM (GMT -6)   
I have not, but if I did, I would have the jpouch surgery, I have to work to carry the benefits, my husband is basically self employed. I just see no other option for myself.
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 5mg/2.5mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 10/7/2008 3:24 PM (GMT -6)   
This is something I never would have considered. There is such a great surgical fix for UC that is life-giving. I can understand making that decision if you have mulitple health issues but it makes me sad when UCers let their disease rule their life. I opted for surgery.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


cyn555
Regular Member


Date Joined Aug 2008
Total Posts : 309
   Posted 10/7/2008 3:28 PM (GMT -6)   
im in a small flare right now. no diarhea but i do see blood and i get cramps. i went to see my GI last week and he told me that my stressful job doesnt help with the symptoms. i think either i will try to find a new job or do things to help me relax like getting massages :).
 
- 23 year old female, Gatineau, Quebec
 -diagnosed with UC june 2007 panacolitis
- Asacol (6 daily)800mg


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 10/7/2008 5:02 PM (GMT -6)   
Oh, massages definitely help. There's is a chain place called Massage Envy that is very affordable. Their website is www.massageenvy.com if you want to see if they are near you. I go every other week and it's really quite helpful. I also took up needlepoint over the summer and I find that very relaxing. In fact, I was working on my needlepoint during a Remicade infusion and every time they took my blood pressure during the infusion it was lower and lower! That may not be something for you, but the thing is, finding a nice craft or hobby that you enjoy can be helpful.

When I was working at a stressful job I did not like I took up pottery. I had a boss I could not not stand and did not respect and throwing the clay, kneading it and punching it down ... well, it did release a lot of pent up stuff ;-) I'm now self-employed and really do enjoy my work, even when I am not feeling well I like to work, although it's a physical job so working while unwell is a real challenge.

Even if you get disability, the payments are barely enough to live on, I imagine it would be far more stressful to try to live on disability payments than to try to keep working in whatever capacity you can.

Hang in there!!

Meesh
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08
10 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Tylenol Arthritis Formula or Tramadol as needed for arthritis pain; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;
Past meds: Prednisone 4/06-4/08; Entocourt EC; Rowesa; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix;Lexipro


vega19
Regular Member


Date Joined Sep 2008
Total Posts : 91
   Posted 10/7/2008 5:24 PM (GMT -6)   
I was a stay at home mom before I was diagnosed in Feb this year. I was actually looking for a job when a major flare landed me in the hospital. I still want to go back to work but I know that stress is my trigger so I need to find something that isn't too stressful (if it's possible). I am also dealing with my husband who is a germaphobe and doesn't want me to have to deal with the public because of being on an immunosuppressant. I am definately not going to let this disease keep me prisoner in my own home.

31 year old female diagnosed with UC (entire colon) Feb 2008
(4) 400mg Asacol 3x a day
Remicade 10mg/kg every 8 weeks 6 weeks
Rowasa enemas nightly
Omega 3 supp, calcium supp, probiotics
metamucil wafers
Prednisone again!!  30mg


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 10/7/2008 5:35 PM (GMT -6)   
vinny, I am also on Remicade and have been for more than a year. I haven't gotten ill at all and a lot of Remi takers on the forum report the same thing. Just remain vigilant about hand washing and stay on your family for the same. When my DH comes in from his public transportation commute I remind him to stop at the kitchen to wash his hands before he touches a thing. My job brings me in close contact with dogs and all their filth and issues (I'm a dog groomer) but I still haven't had any problems with infections or anything. So, yeah, if you're willing you can and should work, sitting around the house mulling over every ache and pain is definitely not the way to go. Life is stressful, so learning to deal with it and finding coping mechanisms is very helpful. That said, no need to go out and be an air traffic controller, right?
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08
10 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Tylenol Arthritis Formula or Tramadol as needed for arthritis pain; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;
Thinking seriously about the surgery option.
Past meds: Prednisone 4/06-4/08; Entocourt EC; Rowesa; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/7/2008 5:42 PM (GMT -6)   
In all the time I've had UC, I've worked, and have only missed a handful of days. It really can be a struggle for me, but I have no choice. No job = no health insurance and no $. I've been lucky enough to find an employer that is tolerant of my condition.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema, Prednisone (trying to taper down)


barbl
Regular Member


Date Joined Jul 2006
Total Posts : 320
   Posted 10/7/2008 6:03 PM (GMT -6)   

I processed medical claims for one of the major insurance companies.

The center here in Phoenix has the worst processing record in the nation. It was run by a bunch of unhappy, older, bitter woman. They went through top management like water through a seive. I was the top processor with the highest financial accuracy. Unfortunately I'm petite, wear nice clothes and drive a corvette. THEY HATED ME. I was going to the restroom @ work at least 10-15 times with nothing but blood and severe cramping, I ended up in emergency with dehydration. I'm not a quitter, but I had enough. So I gave my notice. My manager almost fainted, begged me not to quit. I said no I quit probably 10 times. She then said you can go on short term disability for up to 6 months!

I filled out all the info, note from my Dr. saying I probably should have been hospitalized.

4 weeks later I got a letter listing my 10-15 bloody diahrea a day, extreme pain, dizziness, dehydration. The letter then went on to say that because my job involved sitting at a desk there was no reason I could not perform my duties.......well....Cigna can kiss my inflamed rectum smilewinkgrin


Dx'D in 1990. Remission 1991 - 1/2005
Both flares were in extremely stressful times in my life
Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"
*****9/2007 dumped my GI who I refer to as "Satan" New GI, new med TOTAL remission with in 2 weeks.
Colazal 9 capsules a day*****


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/8/2008 2:24 PM (GMT -6)   
barbl said...

I processed medical claims for one of the major insurance companies.

The center here in Phoenix has the worst processing record in the nation. It was run by a bunch of unhappy, older, bitter woman. They went through top management like water through a seive. I was the top processor with the highest financial accuracy. Unfortunately I'm petite, wear nice clothes and drive a corvette. THEY HATED ME. I was going to the restroom @ work at least 10-15 times with nothing but blood and severe cramping, I ended up in emergency with dehydration. I'm not a quitter, but I had enough. So I gave my notice. My manager almost fainted, begged me not to quit. I said no I quit probably 10 times. She then said you can go on short term disability for up to 6 months!

I filled out all the info, note from my Dr. saying I probably should have been hospitalized.

4 weeks later I got a letter listing my 10-15 bloody diahrea a day, extreme pain, dizziness, dehydration. The letter then went on to say that because my job involved sitting at a desk there was no reason I could not perform my duties.......well....Cigna can kiss my inflamed rectum smilewinkgrin

I bet it is one of those situations where they automatically deny, and you have to appeal and/or get a lawyer for them to comply, no matter what. Sounds like an unhealthy environment, anyway! Did you quit?
Good luck, and know all works out for the best. I wish you peace!!
 
BTW, I missed two weeks during my first flare in 1986, but have not missed another day that I can recall, although I spend a lot of time in the bathroom some days!!  And sometimes I'm late, but I don't really have to keep a set schedule.  I would turn to surgery before I would quit, and probably before I would take disability if I were that sick.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 2400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Tested gluten intolerant and started gluten-free, soy, dairy-free diet. Replete probiotic. 
Achieved remission for the first time in many, many years!? 
Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & now recovering from irritation scope caused. Will be using Rowasa again. But I AM better.
 
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 10/8/2008 3:06 PM (GMT -6)   
Most often you are always denied at first blush.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


heathd
Regular Member


Date Joined Sep 2008
Total Posts : 40
   Posted 10/8/2008 3:10 PM (GMT -6)   
I curently get a flare 1 or 2 times a year and after remicade quiet working i have been flared for over the last year or so. 3 times in the hospital this year so far. I work as a mechanic working on heavy equipment, which includes anything from chainsaws (the hand operated kind) to earth moving equipement. Most of the time i work on refuse trucks (garbage trucks). Even when i was on remicade and in remission i was able to stay mostly sickness free, i washed my hands often wore gloves when working and tried to keep myself warm all the time. In the united states as long as you have been employed at your work for over a year and i believe they have to employ so many workers, (the number 12 seems familiar but i could be wrong) you can have your doctor fill out FMLA papers, (stands for Family Medical leave Act) which gives you 12 weeks a year of leave from your job. This unfortunatly is not paid leave unless your employer offers a short or long term leave. For me as i am hospitalized a cpl times a year becouse of severe cramping urgency and bleeding as well as i usually become anemic and dehydrated i am on leave from my work usually 2 to 3 weeks a year. I have worked through UC since 2004 or 2005. I hope this information helps you. If you google it im sure there is a ton of information out there for it. My job is through a municipality so every couple years it is very stressful when the politics start. I wish you well and im sure there is a job out there that you may be able to tolerate, hopefully you will find something.

JOVIGIRL71
Veteran Member


Date Joined Sep 2003
Total Posts : 660
   Posted 10/15/2008 12:20 AM (GMT -6)   
Hello,
Well , I am one of those given few on disability I guess who has UC. I worked since I was 16 and that is when I was diagnosed.
I worked till I was 33 and I'm not ashamed to say I'm on disability. I had to do what was best because my UC was or is more on the servere side. I try to sell on ebay to make life seem a little independant in earning my own money.
If you don't feel well you can go on short term disability to you feel better then go back to work also. Thats an opition if you have it.
Good luck CYN555
~~ Donna ~~
 
Diagnosed with UC in 1987 at age 16
Imuran ~ 2 1/2 pills a day,Pentasa 2x4 a day
Lexapro ~ 20 mgs daily for sanity  :-)
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 10/15/2008 6:38 AM (GMT -6)   
When I quit my job, my hubby's insurance wasn't that great nor was mine. It hardly covered anything. And my pay wasn't the greatest either. So surgery wasn't an option for me at that point in time. I had a hard time working since then because working to me is a major source of stress and my gut has always reacted negatively to stress. And of course I would flare again. I even tried temp jobs but I would have to quit them too because of flaring. Now my hubby has a great job with awesome insurance (even though it's a pain in the tush sometimes!) so now I have that luxery of not having to work for which I am grateful.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
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GISGuy31
Regular Member


Date Joined Feb 2008
Total Posts : 79
   Posted 10/23/2008 9:40 PM (GMT -6)   
I work for a state government agency so they have to follow the state and federal laws, or they would lose a sizable lawsuit in court. If your diagnosed with UC, go to your BHR department and fill out a FMLA form - not just for having babies (as what I initially though) but they also cover you for a chronic condition to yourself or an immediate family member.

The form is good for one year, so you and your doctor have to have to fill a new one out annually. Your doctor fills out his portion, and you fill out your portion, and the company by law has to hold your job for up to 12 weeks per year if you go on an extended leave with a hospitalization from UC or even if go on temporary disability. They don't pay you under FMLA, only hold your job for you for up to a total of 12 weeks. If they fire you and you have copies of that form and are still within that time period, you can sue them and probably win in court. What a wonderful world we live in if you know the rules that the corporations have to play by.

I would recommend the j-pouch surgery if life is so bad you cannot work. If you just want the guaranteed one surgery option, just have them remove the colon and live with the ileostomy for the rest of your life, or pursue the remaining operations for a j-pouch later. Either way, you'll feel perfectly normal after the defective colon is out and the recovery time from the initial surgery (either route) is 8 weeks. Then you can work and do whatever you want again.
Age 0 to 30 - 100% healthy, no meds, no doctor visits, no hospital stays
Oct. 2006 - Symptoms of UC began
3/5/2007 - Diagnosed with UC - Pancolitis (entire colon involved)
20mg-40mg/day Prednisone, 4.8 g/day Asacol - didn't work at all
10/12/2007 - Steroid Induced Osteoporosis from Prednisone and Anemic
add Actonel (75mgx2 pills/month) and daily iron pills
2/12/2008 - open Subtotal Colectomy with Temporary Ileostomy Surgery
8/05/2008 - Unexpected surgery to remove blockage caused by scar tissue
11/20/2008 - J-Pouch Surgery and possible Ileo Reversal Surgery Scheduled
"When life gives you lemons...make lemonade"


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 10/23/2008 10:37 PM (GMT -6)   

Great advice on the FMLA forms. I have an intermittant leave set up that falls under FMLA and covers me whenever I'm out w/a flare or have to see my GI doctor. It is an unpaid leave or can be funded by sick/vacation days if you have them. Its mainly set up for job security so they cant fire me.

Massage envy is a great place! Very affordable and helpful for my UC and fibro symptoms.


Dee-38yrs old 
Diagnosed with UC in 2004-PTSD/Panic Disorder/Depression in 2007 & Fibromyalgia 2008
750mg colozal 3 pills 3x a day, .5mg clonazepam, 7.5mg Lexapro
1,000mg canasa suppositories (PM),
 Fioricet-Migraines
Prilosec-Not sure(Heartburn/GERD), Fish Oils
GNC Womens Active Formula Multi-vitamin
Colonoscopies-4 


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 10/23/2008 11:18 PM (GMT -6)   
I work construction as a plumber and there were times when installing gas lines on walmarts roofs that I could not make it across the roof and down the ladder and to the front of the building to the outhouse so I started carrying a bucket around with me and going in it on the roof. Also there were times when driving to jobs that I would have to go so I sometimes went in a bucket in the back of my work van. I never quit a job because of it, just found ways to work around it. There were a few times at work that i did crap my pants and had to go home early and I tell you it was a nightmare trying to cover up so nobody could see that I crapped my pants, I dont miss those days at all now that im in remission.

Socalsd
Regular Member


Date Joined Jul 2008
Total Posts : 100
   Posted 10/23/2008 11:56 PM (GMT -6)   
I have been out of work on disability for the past two months. This was the first time since my diagnosis that I had to miss time. I have always been able to handle the UC but this time I landed up in the hospital for 19 days, on top of the UC I also contracted C-diff in the hospital. After I got out I was so weak and anemic which for a guy is not common my hemoglobin was like a 7. I did have a blood transfusion which helped I am just now getting back to normal. I have a standing appointment with my GI weekly since I was so bad off I am hoping to go back to work by November. I have an office job which makes it alot easier to deal with. Luckily I have good insurance. Make sure to understand FMLA policies and your state disability compensation. I don't know why I felt guilty applying for it. I used up 18 vacation days before I opted to apply. My doctor actually yelled at me and insisted I apply for it. Luckily my job is supportive and I have a back up.
Prednisone 35mg a day
Clotrimazole Troche (keeps the thrush away from the Pred.
Remicaid
VSL 3DS


34 year old male Southern California


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 10/24/2008 6:36 AM (GMT -6)   
I went down to 2 days a week - Tuesdays and Thursdays.
 
Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
 
 


Born2fly
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 10/24/2008 10:57 AM (GMT -6)   
My first flare got pretty bad right in the middle of my annual flight training at my company. Its the time of year when the company would reward us with training to fly better helicopters and as a result we make more money. I did all my recurrent training, but just couldn't hang on for the last little bit of training in which I was to learn to fly the MD500. Now this year I didnt even make it back to training as this flare has been persistant and I didnt think it would have healed by the time I am supposed to go back. I called and told them I couldnt make it to the training, and they laid me off :(
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